US HB3381 | 2015-2016 | 114th Congress
Status
Spectrum: Bipartisan Bill
Status: Engrossed on December 7 2016 - 50% progression, died in chamber
Action: 2016-12-07 - Received in the Senate.
Text: Latest bill text (Engrossed) [PDF]
Status: Engrossed on December 7 2016 - 50% progression, died in chamber
Action: 2016-12-07 - Received in the Senate.
Text: Latest bill text (Engrossed) [PDF]
Summary
Childhood Cancer STAR Act Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2016 This bill amends the Public Health Service Act to permit the National Institutes of Health (NIH) to provide support to collect the medical specimens and information of children, adolescents, and young adults with cancer to improve the understanding of these cancers and of the effects of treatment. The national childhood cancer registry is reauthorized through FY2020 and revised to require the Centers for Disease Control and Prevention to award grants to states to improve tracking of childhood cancers. This bill amends the Federal Food, Drug, and Cosmetic Act to require manufacturers and distributors of investigational drugs to publish policies for compassionate use of the drugs. The Department of Health and Human Services must: (1) support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives, (2) convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors, (3) establish a task force on standards for high-quality childhood cancer survivorship care, and (4) carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care. The NIH must support research on: (1) outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations; and (2) follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications. The Government Accountability Office must make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.
Title
Childhood Cancer STAR Act Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2016
Sponsors
History
Date | Chamber | Action |
---|---|---|
2016-12-07 | Senate | Received in the Senate. |
2016-12-06 | House | Motion to reconsider laid on the table Agreed to without objection. |
2016-12-06 | House | On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H7193-7196) |
2016-12-06 | House | DEBATE - The House proceeded with forty minutes of debate on H.R. 3381. |
2016-12-06 | House | Considered under suspension of the rules. (consideration: CR H7193-7198) |
2016-12-06 | House | Mr. Burgess moved to suspend the rules and pass the bill, as amended. |
2015-07-31 | House | Referred to the Subcommittee on Health. |
2015-07-29 | House | Referred to the House Committee on Energy and Commerce. |
2015-07-29 | House | Introduced in House |
Same As/Similar To
SB1883 (Same As) 2015-07-29 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (Sponsor introductory remarks on measure: CR S6138)
Subjects
Advisory bodies
Cancer
Child health
Congressional oversight
Department of Health and Human Services
Drug safety, medical device, and laboratory regulation
Drug therapy
Government information and archives
Government studies and investigations
Health
Health care costs and insurance
Health care coverage and access
Health care quality
Health information and medical records
Health personnel
Health programs administration and funding
Home and outpatient care
Long-term, rehabilitative, and terminal care
Medical education
Medical research
Medical tests and diagnostic methods
Mental health
National Institutes of Health (NIH)
Research administration and funding
Social work, volunteer service, charitable organizations
Cancer
Child health
Congressional oversight
Department of Health and Human Services
Drug safety, medical device, and laboratory regulation
Drug therapy
Government information and archives
Government studies and investigations
Health
Health care costs and insurance
Health care coverage and access
Health care quality
Health information and medical records
Health personnel
Health programs administration and funding
Home and outpatient care
Long-term, rehabilitative, and terminal care
Medical education
Medical research
Medical tests and diagnostic methods
Mental health
National Institutes of Health (NIH)
Research administration and funding
Social work, volunteer service, charitable organizations