Virginia House Bill 1995 (Prior Session Legislation)

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Completed Legislative Action
Spectrum: Partisan Bill (Democrat 12-0)
Status: Passed on March 24 2021 - 100% progression
Action: 2021-03-24 - Governor: Acts of Assembly Chapter text (CHAP0303)
Text: Latest bill text (Chaptered) [HTML]

Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council. Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council.

Rare Disease Council and Rare Disease Council Fund; created, report.

Del. Kathleen Murphy [D]	Del. Dawn Adams [D]	Del. Lee Carter [D]	Del. Patrick Hope [D]
Del. Mark Keam [D]	Del. Mark Levine [D]	Del. Kenneth Plum [D]	Del. David Reid [D]
Sen. Danica Roem [D]	Del. Marcus Simon [D]	Del. Shelly Simonds [D]	Sen. Suhas Subramanyam [D]

2021-02-18 - Senate - Senate: Passed Senate (39-Y 0-N) (Y: 39 N: 0 NV: 0 Abs: 0) [PASS]
2021-02-18 - Senate - Senate: Reconsideration of passage agreed to by Senate (39-Y 0-N) (Y: 39 N: 0 NV: 0 Abs: 0) [PASS]
2021-02-18 - Senate - Senate: Passed Senate (38-Y 0-N) (Y: 38 N: 0 NV: 0 Abs: 1) [PASS]
2021-02-17 - Senate - Senate: Constitutional reading dispensed (39-Y 0-N) (Y: 39 N: 0 NV: 0 Abs: 0) [PASS]
2021-02-17 - Senate - Senate: Reported from Finance and Appropriations (16-Y 0-N) (Y: 16 N: 0 NV: 0 Abs: 0) [PASS]
2021-02-11 - Senate - Senate: Reported from Education and Health (14-Y 0-N) (Y: 14 N: 0 NV: 0 Abs: 0) [PASS]
2021-02-05 - Senate - Senate: Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N) (Y: 15 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-28 - House - House: VOTE: Block Vote Passage (100-Y 0-N) (Y: 100 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Reported from Appropriations with substitute (22-Y 0-N) (Y: 22 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Subcommittee recommends reporting with substitute (7-Y 0-N) (Y: 7 N: 0 NV: 0 Abs: 1) [PASS]
2021-01-19 - House - House: Reported from Health, Welfare and Institutions (20-Y 0-N) (Y: 20 N: 0 NV: 0 Abs: 2) [PASS]

Date	Chamber	Action
2021-03-24		Governor: Acts of Assembly Chapter text (CHAP0303)
2021-03-24		Governor: Approved by Governor-Chapter 303 (effective 7/1/21)
2021-02-25		Governor: Governor's Action Deadline 11:59 p.m., March 31, 2021
2021-02-25	House	Enrolled Bill communicated to Governor on February 25, 2021
2021-02-24	House	Signed by Speaker
2021-02-22	Senate	Signed by President
2021-02-22	House	Bill text as passed House and Senate (HB1995ER)
2021-02-22	House	Enrolled
2021-02-18	Senate	Passed Senate (39-Y 0-N)
2021-02-18	Senate	Reconsideration of Senate passage agreed to by Senate (39-Y 0-N)
2021-02-18	Senate	Passed Senate (38-Y 0-N)
2021-02-18	Senate	Read third time
2021-02-17	Senate	Reported from Finance and Appropriations (16-Y 0-N)
2021-02-17	Senate	Constitutional reading dispensed (39-Y 0-N)
2021-02-11	Senate	Rereferred to Finance and Appropriations
2021-02-11	Senate	Reported from Education and Health (14-Y 0-N)
2021-02-05	Senate	Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)
2021-01-29	Senate	Referred to Committee on Education and Health
2021-01-29	Senate	Constitutional reading dispensed
2021-01-28	House	VOTE: Block Vote Passage (100-Y 0-N)
2021-01-28	House	Read third time and passed House BLOCK VOTE (100-Y 0-N)
2021-01-27	House	Engrossed by House - committee substitute HB1995H1
2021-01-27	House	Committee substitute agreed to 21103655D-H1
2021-01-27	House	Read second time
2021-01-26	House	Read first time
2021-01-25	House	Committee substitute printed 21103655D-H1
2021-01-25	House	Reported from Appropriations with substitute (22-Y 0-N)
2021-01-25	House	Subcommittee recommends reporting with substitute (7-Y 0-N)
2021-01-19	House	Assigned App. sub: Health & Human Resources
2021-01-19	House	Referred to Committee on Appropriations
2021-01-19	House	Reported from Health, Welfare and Institutions (20-Y 0-N)
2021-01-11	House	Referred to Committee on Health, Welfare and Institutions
2021-01-11	House	Prefiled and ordered printed; offered 01/13/21 21101216D

HB1995 (Carry Over) 2021-02-05 - Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)

Chapter	Article	Section	Citation Type	Statute Text
32	1	73.14	(n/a)	See Bill Text
32	1	73.15	(n/a)	See Bill Text
32	1	73.16	(n/a)	See Bill Text

Type	Source
Summary	https://lis.virginia.gov/cgi-bin/legp604.exe?212+sum+HB1995
Text	https://lis.virginia.gov/cgi-bin/legp604.exe?212+ful+HB1995+hil
Text	https://lis.virginia.gov/cgi-bin/legp604.exe?212+ful+HB1995H1+hil
Text	https://lis.virginia.gov/cgi-bin/legp604.exe?212+ful+HB1995ER+hil
Text	https://lis.virginia.gov/cgi-bin/legp604.exe?212+ful+CHAP0303+hil
Supplement	https://lis.virginia.gov/cgi-bin/legp604.exe?212+oth+HB1995F122+PDF
Supplement	https://lis.virginia.gov/cgi-bin/legp604.exe?212+oth+HB1995FH1122+PDF
Supplement	https://lis.virginia.gov/cgi-bin/legp604.exe?212+oth+HB1995FER122+PDF
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+H12C0042+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+H0205C0002+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+H02C0029+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+HC1214+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+S04C0093+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+S04V0033+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+S05V0068+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+SV0114HB1995+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+SV0136HB1995+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+SV0137HB1995+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?212+vot+SV0138HB1995+HB1995