Virginia House Bill 1995 (Adjourned Sine Die)

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Spectrum: Partisan Bill (Democrat 12-0)
Status: Engrossed on January 27 2021 - 50% progression, died in chamber
Action: 2021-02-05 - Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)
Text: Latest bill text (Comm Sub) [HTML]

Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council. Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council.

Rare Disease Council and Rare Disease Council Fund; created, report.

Del. Kathleen Murphy [D]	Del. Dawn Adams [D]	Del. Lee Carter [D]	Del. Patrick Hope [D]
Del. Mark Keam [D]	Del. Mark Levine [D]	Del. Kenneth Plum [D]	Del. David Reid [D]
Del. Danica Roem [D]	Del. Marcus Simon [D]	Del. Shelly Simonds [D]	Del. Suhas Subramanyam [D]

2021-02-05 - Senate - Senate: Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N) (Y: 15 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-28 - House - House: VOTE: Block Vote Passage (100-Y 0-N) (Y: 100 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Reported from Appropriations with substitute (22-Y 0-N) (Y: 22 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Subcommittee recommends reporting with substitute (7-Y 0-N) (Y: 7 N: 0 NV: 0 Abs: 1) [PASS]
2021-01-19 - House - House: Reported from Health, Welfare and Institutions (20-Y 0-N) (Y: 20 N: 0 NV: 0 Abs: 2) [PASS]
2021-01-19 - House - House: Reported from Health, Welfare and Institutions (20-Y 0-N) (Y: 20 N: 0 NV: 0 Abs: 2) [PASS]

Date	Chamber	Action
2021-02-05	Senate	Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)
2021-01-29	Senate	Referred to Committee on Education and Health
2021-01-29	Senate	Constitutional reading dispensed
2021-01-28	House	VOTE: Block Vote Passage (100-Y 0-N)
2021-01-28	House	Read third time and passed House BLOCK VOTE (100-Y 0-N)
2021-01-27	House	Engrossed by House - committee substitute HB1995H1
2021-01-27	House	Committee substitute agreed to 21103655D-H1
2021-01-27	House	Read second time
2021-01-26	House	Read first time
2021-01-25	House	Committee substitute printed 21103655D-H1
2021-01-25	House	Reported from Appropriations with substitute (22-Y 0-N)
2021-01-25	House	Subcommittee recommends reporting with substitute (7-Y 0-N)
2021-01-19	House	Assigned App. sub: Health & Human Resources
2021-01-19	House	Referred to Committee on Appropriations
2021-01-19	House	Reported from Health, Welfare and Institutions (20-Y 0-N)
2021-01-11	House	Referred to Committee on Health, Welfare and Institutions
2021-01-11	House	Prefiled and ordered printed; offered 01/13/21 21101216D

Chapter	Article	Section	Citation Type	Statute Text
32	1	73.14	(n/a)	See Bill Text
32	1	73.15	(n/a)	See Bill Text
32	1	73.16	(n/a)	See Bill Text

Type	Source
Summary	https://lis.virginia.gov/cgi-bin/legp604.exe?211+sum+HB1995
Text	https://lis.virginia.gov/cgi-bin/legp604.exe?211+ful+HB1995+hil
Text	https://lis.virginia.gov/cgi-bin/legp604.exe?211+ful+HB1995H1+hil
Amendment	https://committees.lis.virginia.gov/pdfs/21103655.pdf
Supplement	https://lis.virginia.gov/cgi-bin/legp604.exe?211+oth+HB1995F122+PDF
Supplement	https://lis.virginia.gov/cgi-bin/legp604.exe?211+oth+HB1995FH1122+PDF
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?211+vot+H12V0033+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?211+vot+H12V0042+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?211+vot+H0205V0002+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?211+vot+H02V0029+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?211+vot+HV1214+HB1995
Roll Call	https://lis.virginia.gov/cgi-bin/legp604.exe?211+vot+S04V0093+HB1995