VA HB1995 | 2021 | Regular Session
Note: Carry Foward to future HB1995
Status
Spectrum: Partisan Bill (Democrat 12-0)
Status: Engrossed on January 27 2021 - 50% progression, died in chamber
Action: 2021-02-05 - Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)
Text: Latest bill text (Comm Sub) [HTML]
Status: Engrossed on January 27 2021 - 50% progression, died in chamber
Action: 2021-02-05 - Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)
Text: Latest bill text (Comm Sub) [HTML]
Summary
Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council. Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council.
Title
Rare Disease Council and Rare Disease Council Fund; created, report.
Sponsors
Roll Calls
2021-02-05 - Senate - Senate: Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N) (Y: 15 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-28 - House - House: VOTE: Block Vote Passage (100-Y 0-N) (Y: 100 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Reported from Appropriations with substitute (22-Y 0-N) (Y: 22 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Subcommittee recommends reporting with substitute (7-Y 0-N) (Y: 7 N: 0 NV: 0 Abs: 1) [PASS]
2021-01-19 - House - House: Reported from Health, Welfare and Institutions (20-Y 0-N) (Y: 20 N: 0 NV: 0 Abs: 2) [PASS]
2021-01-19 - House - House: Reported from Health, Welfare and Institutions (20-Y 0-N) (Y: 20 N: 0 NV: 0 Abs: 2) [PASS]
2021-01-28 - House - House: VOTE: Block Vote Passage (100-Y 0-N) (Y: 100 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Reported from Appropriations with substitute (22-Y 0-N) (Y: 22 N: 0 NV: 0 Abs: 0) [PASS]
2021-01-25 - House - House: Subcommittee recommends reporting with substitute (7-Y 0-N) (Y: 7 N: 0 NV: 0 Abs: 1) [PASS]
2021-01-19 - House - House: Reported from Health, Welfare and Institutions (20-Y 0-N) (Y: 20 N: 0 NV: 0 Abs: 2) [PASS]
2021-01-19 - House - House: Reported from Health, Welfare and Institutions (20-Y 0-N) (Y: 20 N: 0 NV: 0 Abs: 2) [PASS]
History
Date | Chamber | Action |
---|---|---|
2021-02-05 | Senate | Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N) |
2021-01-29 | Senate | Referred to Committee on Education and Health |
2021-01-29 | Senate | Constitutional reading dispensed |
2021-01-28 | House | VOTE: Block Vote Passage (100-Y 0-N) |
2021-01-28 | House | Read third time and passed House BLOCK VOTE (100-Y 0-N) |
2021-01-27 | House | Engrossed by House - committee substitute HB1995H1 |
2021-01-27 | House | Committee substitute agreed to 21103655D-H1 |
2021-01-27 | House | Read second time |
2021-01-26 | House | Read first time |
2021-01-25 | House | Committee substitute printed 21103655D-H1 |
2021-01-25 | House | Reported from Appropriations with substitute (22-Y 0-N) |
2021-01-25 | House | Subcommittee recommends reporting with substitute (7-Y 0-N) |
2021-01-19 | House | Assigned App. sub: Health & Human Resources |
2021-01-19 | House | Referred to Committee on Appropriations |
2021-01-19 | House | Reported from Health, Welfare and Institutions (20-Y 0-N) |
2021-01-11 | House | Referred to Committee on Health, Welfare and Institutions |
2021-01-11 | House | Prefiled and ordered printed; offered 01/13/21 21101216D |
Same As/Similar To
HB1995 (Carry Over) 2021-02-05 - Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)
Code Citations
Chapter | Article | Section | Citation Type | Statute Text |
---|---|---|---|---|
32 | 1 | 73.14 | (n/a) | See Bill Text |
32 | 1 | 73.15 | (n/a) | See Bill Text |
32 | 1 | 73.16 | (n/a) | See Bill Text |