Delaware Senate Bill 55 (Prior Session Legislation)

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Completed Legislative Action
Spectrum: Slight Partisan Bill (Democrat 11-4)
Status: Passed on July 26 2023 - 100% progression
Action: 2023-07-26 - Signed by Governor
Text: Latest bill text (Engrossed) [HTML]

This bill establishes the Delaware Rare Disease Advisory Council which, among other things, is intended to educate medical professionals, government agencies, legislators, and the public about rare diseases. There are about 7,000 known rare diseases, and they create major public health challenges. The Advisory Council is charged with engaging in activities intended to benefit rare disease patients in Delaware, including encouraging and securing funding for the development of new treatments for rare diseases.

An Act To Amend Title 29 Of The Delaware Code Establishing The Delaware Rare Disease Advisory Council.

Sen. Nicole Poore [D]	Rep. Krista Griffith [D]	Sen. Stephanie Hansen [D]	Sen. Gerald Hocker [R]
Sen. Kyra Hoffner [D]	Sen. Sarah McBride [D]	Sen. Brian Pettyjohn [R]	Sen. Marie Pinkney [D]
Sen. David Sokola [D]	Sen. David Wilson [R]	Rep. Paul Baumbach [D]	Rep. Stephanie Bolden [D]
Rep. William Carson [D]	Rep. Kendra Johnson [D]	Rep. Michael Ramone [R]

2023-06-20 - House - House Third Reading (Y: 39 N: 0 NV: 0 Abs: 2) [PASS]
2023-06-08 - Senate - Senate Third Reading (Y: 21 N: 0 NV: 0 Abs: 0) [PASS]

Date	Chamber	Action
2023-07-26		Signed by Governor
2023-06-20		Passed By House. Votes: 39 YES 2 ABSENT
2023-06-14		Reported Out of Committee (Health & Human Development) in House with 3 Favorable, 6 On Its Merits
2023-06-08		Assigned to Health & Human Development Committee in House
2023-06-08		Passed By Senate. Votes: 21 YES
2023-06-08		Amendment SA 1 to SB 55 - Passed By Senate. Votes: 20 YES 1 ABSENT
2023-06-01		Amendment SA 1 to SB 55 - Introduced and Placed With Bill
2023-03-08		Reported Out of Committee (Health & Social Services) in Senate with 7 Favorable
2023-03-01		Introduced and Assigned to Health & Social Services Committee in Senate

Type	Source
Summary	https://legis.delaware.gov/BillDetail?LegislationId=130030
Text	https://legis.delaware.gov/json/BillDetail/GenerateHtmlDocument?legislationId=130030&legislationTypeId=1&docTypeId=2&legislationName=SB55
Text	https://legis.delaware.gov/json/BillDetail/GenerateHtmlDocumentEngrossment?engrossmentId=25588&docTypeId=6
Roll Call	https://legis.delaware.gov/json/RollCall/GetRollCallVoteByRollCallId#54540
Roll Call	https://legis.delaware.gov/json/RollCall/GetRollCallVoteByRollCallId#54730