US SB1273 | 2009-2010 | 111th Congress
Status
Spectrum: Slight Partisan Bill (Democrat 23-7-1)
Status: Introduced on June 16 2009 - 25% progression, died in chamber
Action: 2009-06-16 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Status: Introduced on June 16 2009 - 25% progression, died in chamber
Action: 2009-06-16 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Summary
National MS and Parkinson's Disease Registries Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) , acting through the Director of the Agency for Toxic Substances and Disease Registry, to: (1) develop a system to collect data on multiple sclerosis (MS) and a system to collect data on Parkinson's disease; (2) establish a national surveillance system for the collection and storage of data for each such disease, including population-based registries of U.S. cases of MS and Parkinson's disease; (3) provide analysis regarding expansion of national disease surveillance systems for other neurological diseases and disorders; and (4) establish the Advisory Committee on Neurological Disease Registries. Allows the Secretary, acting through the Director, to provide for the collection, analysis, and reporting of data on MS and Parkinson's disease. Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to Parkinson's disease and MS data. Requires the Secretary to ensure that epidemiological and other types of information collected are made available to agencies such as the National Institutes of Health (NIH), the Food and Drug Administration (FDA), the Department of Veterans Affairs (VA), and the Department of Defense (DOD).
Title
National MS and Parkinson's Disease Registries Act
Sponsors
Sen. Daniel Akaka [D-HI] | Sen. Mark Begich [D-AK] | Sen. Jeff Bingaman [D-NM] | Sen. Barbara Boxer [D-CA] |
Sen. Sherrod Brown [D-OH] | Sen. Benjamin Cardin [D-MD] | Sen. Robert Casey [D-PA] | Sen. Saxby Chambliss [R-GA] |
Sen. Kent Conrad [D-ND] | Sen. Mike Crapo [R-ID] | Sen. Christopher Dodd [D-CT] | Sen. Byron Dorgan [D-ND] |
Sen. Richard Durbin [D-IL] | Sen. Al Franken [D-MN] | Sen. Kirsten Gillibrand [D-NY] | Sen. Chuck Grassley [R-IA] |
Sen. Kay Hagan [D-NC] | Sen. Daniel Inouye [D-HI] | Sen. Johnny Isakson [R-GA] | Sen. Mike Johanns [R-NE] |
Sen. Frank Lautenberg [D-NJ] | Sen. Robert Menendez [D-NJ] | Sen. Lisa Murkowski [R-AK] | Sen. Benjamin Nelson [D-NE] |
Sen. Bernard Sanders [I-VT] | Sen. Charles Schumer [D-NY] | Sen. Debbie Stabenow [D-MI] | Sen. Mark Udall [D-CO] |
Sen. Tom Udall [D-NM] | Sen. Sheldon Whitehouse [D-RI] | Sen. Roger Wicker [R-MS] |
History
Date | Chamber | Action |
---|---|---|
2009-06-16 | Read twice and referred to the Committee on Health, Education, Labor, and Pensions. |
Same As/Similar To
HB1362 (Same As) 2010-09-29 - Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Subjects
Advisory bodies
Government information and archives
Health information and medical records
Health programs administration and funding
Medical research
Neurological disorders
US Congress State Sources
Type | Source |
---|---|
Summary | https://www.congress.gov/bill/111th-congress/senate-bill/1273/all-info |