US HB534 | 2019-2020 | 116th Congress
Status
Spectrum: Moderate Partisan Bill (Democrat 5-1)
Status: Introduced on January 14 2019 - 25% progression, died in committee
Action: 2019-01-25 - Referred to the Subcommittee on Health.
Pending: House Subcommittee on Health Committee
Text: Latest bill text (Introduced) [PDF]
Status: Introduced on January 14 2019 - 25% progression, died in committee
Action: 2019-01-25 - Referred to the Subcommittee on Health.
Pending: House Subcommittee on Health Committee
Text: Latest bill text (Introduced) [PDF]
Summary
Authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.
Title
Aidan’s Law
Sponsors
Rep. Yvette Clarke [D-NY] | Rep. Lee Zeldin [R-NY] | Rep. Bobby Rush [D-IL] | Rep. Zoe Lofgren [D-CA] |
Rep. Dwight Evans [D-PA] | Rep. Nita Lowey [D-NY] |
History
Date | Chamber | Action |
---|---|---|
2019-01-25 | House | Referred to the Subcommittee on Health. |
2019-01-14 | House | Referred to the House Committee on Energy and Commerce. |
2019-01-14 | House | Introduced in House |
Subjects
Advisory bodies
Child health
Health
Health promotion and preventive care
Hereditary and development disorders
Medical tests and diagnostic methods
Neurological disorders
Child health
Health
Health promotion and preventive care
Hereditary and development disorders
Medical tests and diagnostic methods
Neurological disorders
US Congress State Sources
Type | Source |
---|---|
Summary | https://www.congress.gov/bill/116th-congress/house-bill/534/all-info |
Text | https://www.congress.gov/116/bills/hr534/BILLS-116hr534ih.pdf |