Bill Text: NY K00817 | 2021-2022 | General Assembly | Introduced

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Bill Title: Memorializing Governor Kathy Hochul to proclaim May 2022, as Cystic Fibrosis Awareness Month in the State of New York

Spectrum: Bipartisan Bill

Status: (Passed) 2022-05-04 - adopted [K00817 Detail]

Download: New_York-2021-K00817-Introduced.html

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Assembly Resolution No. 817

BY: M. of A. Rules (Jones)

        MEMORIALIZING  Governor  Kathy  Hochul to proclaim
        May 2022, as Cystic Fibrosis Awareness Month in  the
        State of New York

  WHEREAS,  It  is  the  custom  of this Legislative Body to recognize
official months that are set aside  to  increase  awareness  of  serious
illnesses that affect the lives of citizens of New York State; and

  WHEREAS,  Attendant  to  such  concern,  and in full accord with its
long-standing traditions, this  Legislative  Body  is  justly  proud  to
memorialize  Governor  Kathy  Hochul  to  proclaim  May  2022, as Cystic
Fibrosis Awareness Month in the State of New York; and

  WHEREAS, The Cystic Fibrosis Foundation, a donor-supported nonprofit
organization, is the world's leader in the search for a cure for  cystic
fibrosis,  having raised and invested hundreds of millions of dollars to
help develop drugs and therapies; and

  WHEREAS, The Cystic Fibrosis Foundation is working  to  cure  cystic
fibrosis  and  to  provide  all  people  struggling with the disease the
opportunity to lead full, productive lives; and

  WHEREAS, Cystic fibrosis, commonly referred to as "CF", is a genetic
disease affecting approximately 31,000 children and adults in the United
States and nearly 70,000 children and adults worldwide,  1,644  of  whom
live in New York; and

  WHEREAS,  A  defective gene causes the body to produce an abnormally
thick, sticky mucus that clogs the lungs, and these  secretions  produce
life-threatening  lung  infections and obstruct the pancreas, preventing
digestive enzymes from reaching the intestines to help  break  down  and
absorb food; and

  WHEREAS,  More than 10 million Americans are symptomless carriers of
the defective CF gene; and

  WHEREAS, The median predicted age of survival for a person with  CF,
born in 2019, is 48.4 years; and

  WHEREAS,  With advances in the treatment of CF, the number of adults
with CF has steadily grown, and approximately 900 new cases  of  CF  are
diagnosed each year; and

  WHEREAS,  56% of the CF population is 18 years of age and older, and
people with CF have a variety of symptoms attributed to  the  more  than
2,000 mutations of the CF gene; and

  WHEREAS,  Infant  blood  screening  to detect genetic defects is the
most reliable and least costly method to identify persons likely to have
CF; and

  WHEREAS, Early diagnosis of CF permits early treatment and  enhances
quality  of  life  and  longevity and the treatment of CF depends on the
stage of the disease and the organs involved; and

  WHEREAS,  Clearing  mucus from the lungs is an important part of the
daily CF treatment  regimen,  and  other  types  of  treatments  include
inhaled antibiotics and pancreatic enzymes, among others; and

  WHEREAS,  There  are  21  world-class  treatment centers in New York
which specialize in the diagnosis of CF and the care of persons with CF;
and

  WHEREAS, A critical component of treating patients with CF  includes
access  to  innovative  treatments, which can play a crucial role in the
lives of patients with CF; and

  WHEREAS, It is imperative that there be greater public awareness  of
this  serious disease, and more must be done to increase activity at the
local, State and national levels; now, therefore, be it

  RESOLVED, That this Legislative Body pause in its  deliberations  to
memorialize  Governor  Kathy  Hochul  to  proclaim  May  2022, as Cystic
Fibrosis Awareness Month in the State of New York; and be it further

  RESOLVED, That a copy of this  Resolution,  suitably  engrossed,  be
transmitted  to The Honorable Kathy Hochul, Governor of the State of New
York.