Bill Text: MS HB1109 | 2016 | Regular Session | Introduced

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Bill Title: Newborn screening program; expand condition included in.

Spectrum: Partisan Bill (Republican 1-0)

Status: (Failed) 2016-02-23 - Died In Committee [HB1109 Detail]

Download: Mississippi-2016-HB1109-Introduced.html

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MISSISSIPPI LEGISLATURE

2016 Regular Session

To: Public Health and Human Services

By: Representative Snowden

House Bill 1109

AN ACT TO AMEND SECTION 41-21-201, MISSISSIPPI CODE OF 1972, TO EXPAND THE CONDITIONS INCLUDED IN THE COMPREHENSIVE NEWBORN SCREENING PROGRAM; TO BRING FORWARD SECTION 41-21-203, MISSISSIPPI CODE OF 1972, FOR THE PURPOSES OF AMENDMENT; AND FOR RELATED PURPOSES.

     BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MISSISSIPPI:

     SECTION 1.  Section 41-21-201, Mississippi Code of 1972, is amended as follows:

     41-21-201.  (1)  The State Department of Health shall establish, maintain and carry out a comprehensive newborn screening program designed to detect the following conditions:

          (a)  Hypothyroidism,;

          (b)  Phenylketonuria (PKU),;

          (c)  Hemoglobinopathy,;

          (d)  Congenital adrenal hyperplasia (CAH),;

          (e)  Galactosemia * * *, and;

(f)  Maple syrup urine disease (MSUD);

          (g)  Sickle-cell disease (hemoglobinopathies);          (f)  Certain Lysosomal storage disorders (LSDs), including:

              (i)  Globoid Cell Leukodystrophy (Krabbe);

              (ii)  Fabry;

              (iii)  Pompe;

              (iv)  Niemann-Pick;

              (v)  Gaucher; and

              (vi)  Hurler Syndrome (MPS I); and

          (g)  Such other conditions as specified by the State Board of Health and as recommended by the American Academy of Pediatrics. 

     The State Board of Health shall adopt any rules and regulations necessary to accomplish the program.

     (2)  The State Board of Health shall determine and specify the conditions that will be included in the comprehensive newborn screening program in addition to those conditions named in subsection (1) of this section, upon the advice and recommendations of a genetics advisory committee and in accordance with the recommendations of the American Academy of Pediatrics.  The advisory committee shall be appointed by the Executive Director of the State Department of Health, and shall include at least two (2) pediatricians and one (1) consumer representative from a family that has experience with a newborn infant with an abnormal screening test.  The State Department of Health shall maintain a list of each of the conditions included in the comprehensive newborn screening program, which shall be made available to physicians and other health care providers who are required to provide for newborn screening testing under Section 41-21-203.

     (3)  The State Department of Health shall develop information materials about newborn screening tests that are available, which may be used by physicians and other health care providers to inform pregnant women and parents.

     SECTION 2.  Section 41-21-203, Mississippi Code of 1972, is brought forward as follows:

     41-21-203.  (1)  All newborn infants shall be screened by the physician or other health care provider attending the infant, using tests that have been approved by the State Board of Health, to detect those conditions listed in Section 41-21-201 and the other conditions specified by the State Board of Health for the comprehensive newborn screening program.  However, no such tests shall be given to any child whose parents object thereto on the grounds that the test conflicts with his religious practices or tenets.  The tests provided under the comprehensive newborn screening program shall be evaluated in laboratories located in the United States.  The State Department of Health shall follow up all positive tests with the attending physician or other health care provider who notified the department thereof, and with the parents of the newborn child.  The services and facilities of the State Department of Health and those of other state boards, departments and agencies cooperating with the State Department of Health in carrying out the comprehensive newborn screening program shall be made available to all newborn infants with abnormal screening tests.

     (2)  The State Department of Health shall provide ongoing epidemiologic surveillance of the comprehensive newborn screening program to determine the efficacy and cost effectiveness of screening newborn infants.

     SECTION 3.  This act shall take effect and be in force from and after July 1, 2016.

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