Bill Text: TX HB1876 | 2023-2024 | 88th Legislature | Engrossed
Bill Title: Relating to the Rita Littlefield Chronic Kidney Disease Centralized Resource Center established within the Health and Human Services Commission.
Spectrum: Partisan Bill (Republican 1-0)
Status: (Engrossed - Dead) 2023-05-04 - Referred to Health & Human Services [HB1876 Detail]
Download: Texas-2023-HB1876-Engrossed.html
88R20398 MPF-D | ||
By: Guillen | H.B. No. 1876 |
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relating to the Rita Littlefield Chronic Kidney Disease Centralized | ||
Resource Center established within the Health and Human Services | ||
Commission. | ||
BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: | ||
SECTION 1. Subtitle D, Title 2, Health and Safety Code, is | ||
amended by adding Chapter 83A to read as follows: | ||
CHAPTER 83A. RITA LITTLEFIELD CHRONIC KIDNEY DISEASE CENTRALIZED | ||
RESOURCE CENTER | ||
Sec. 83A.001. DEFINITION. In this chapter, "resource | ||
center" means the Rita Littlefield Chronic Kidney Disease | ||
Centralized Resource Center established under this chapter. | ||
Sec. 83A.002. ESTABLISHMENT OF RESOURCE CENTER. The Rita | ||
Littlefield Chronic Kidney Disease Centralized Resource Center is | ||
established within the commission to serve as a centralized system | ||
through which persons may: | ||
(1) request and obtain information on: | ||
(A) chronic kidney disease and related | ||
illnesses, including each clinical stage of kidney disease and end | ||
stage renal disease; and | ||
(B) genetic testing and genetic counseling for | ||
genetic kidney diseases, including APOL1-mediated kidney disease; | ||
and | ||
(2) register for inclusion in a kidney health clinical | ||
trials registry to receive information on clinical trials and | ||
clinical trial opportunities for chronic kidney disease and related | ||
illnesses. | ||
Sec. 83A.003. ADMINISTRATION OF RESOURCE CENTER. (a) The | ||
commission shall administer the resource center in accordance with | ||
this chapter. | ||
(b) The commission shall: | ||
(1) structure and operate the resource center in a | ||
manner that provides a comprehensive approach for readily accessing | ||
information on and resources for chronic kidney disease and related | ||
illnesses, including for each clinical stage of kidney disease and | ||
end stage renal disease; and | ||
(2) establish, and the resource center shall maintain, | ||
a kidney health clinical trials registry through which patients and | ||
family members of those patients may register to receive | ||
educational information on clinical trials and clinical trial | ||
opportunities based on the clinical stage of a patient's chronic | ||
kidney disease or end stage renal disease. | ||
(c) The comprehensive approach described by Subsection | ||
(b)(1) must allow individuals to request and obtain or to directly | ||
access aggregated information on: | ||
(1) chronic kidney disease awareness, prevention, and | ||
professional education opportunities, including: | ||
(A) awareness campaigns for chronic kidney | ||
disease and related illnesses; | ||
(B) information on accessing free screenings for | ||
chronic kidney disease and related illnesses; | ||
(C) professional resources and continuing | ||
education opportunities for health care providers who treat | ||
patients with chronic kidney disease or related illnesses; | ||
(D) for individuals who register for inclusion in | ||
the clinical trials registry established under Subsection (b)(2), | ||
information on clinical trials and clinical trial opportunities for | ||
chronic kidney disease and related illnesses; and | ||
(E) information on chronic kidney disease | ||
partners, including chronic kidney disease patient advocates, | ||
dialysis professionals, health care providers, researchers, | ||
manufacturers, and other appropriate persons; | ||
(2) patient and family resources, including: | ||
(A) educational resources containing general and | ||
specific chronic kidney disease information; | ||
(B) resources containing information on chronic | ||
kidney disease prevention and early detection of chronic kidney | ||
disease and related illnesses; | ||
(C) nutritional and metabolism information for | ||
individuals with chronic kidney disease and related illnesses; | ||
(D) resources appropriately tailored to provide | ||
information on chronic kidney disease and related illnesses to | ||
individuals within groups that experience health disparities, | ||
including racial minorities; | ||
(E) directories for physicians who specialize in | ||
kidney health; and | ||
(F) programs through which an individual may | ||
obtain a kidney donation or be placed on a kidney donation list; | ||
(3) resources on chronic kidney disease treatment | ||
options and modalities, including: | ||
(A) kidney donations and kidney transplantation | ||
initiatives; | ||
(B) deceased and living organ donation programs | ||
and initiatives; | ||
(C) organ recipient registries; | ||
(D) treatment options for chronic kidney disease | ||
and end stage renal disease; | ||
(E) financial assistance for obtaining treatment | ||
for chronic kidney disease or related illnesses; and | ||
(F) options for receiving treatment for chronic | ||
kidney disease or related illnesses through the use of telehealth | ||
service or telemedicine medical service, as those terms are defined | ||
by Section 111.001, Occupations Code; and | ||
(4) genetic testing and genetic counseling for genetic | ||
kidney diseases, including APOL1-mediated kidney disease. | ||
(d) The commission shall ensure information provided by the | ||
resource center is available in both English and Spanish. | ||
Sec. 83A.004. INTERNET WEBSITE. In collaboration with the | ||
Chronic Kidney Disease Task Force established under Chapter 83, the | ||
commission shall establish and the resource center shall maintain | ||
an Internet website through which: | ||
(1) resource center employees and members of the | ||
public may directly communicate and exchange information on chronic | ||
kidney disease and related illnesses; and | ||
(2) individuals may register in the clinical trials | ||
registry established under Section 83A.003(b)(2). | ||
Sec. 83A.005. GIFTS, GRANTS, AND DONATIONS. The commission | ||
may solicit and accept gifts, grants, and donations from any source | ||
to implement this chapter. | ||
SECTION 2. This Act takes effect September 1, 2025. |