Bill Text: TX HB136 | 2021-2022 | 87th Legislature | Comm Sub
Bill Title: Relating to the confidentiality and reporting of certain information on maternal mortality to the Department of State Health Services and to a work group establishing a maternal mortality and morbidity data registry.
Spectrum: Bipartisan Bill
Status: (Introduced - Dead) 2021-05-13 - Placed on General State Calendar [HB136 Detail]
Download: Texas-2021-HB136-Comm_Sub.html
87R1647 EAS-F | ||
By: Thierry, Oliverson | H.B. No. 136 |
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relating to the confidentiality and reporting of certain | ||
information on maternal mortality to the Department of State Health | ||
Services and to a work group establishing a maternal mortality and | ||
morbidity data registry. | ||
BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: | ||
SECTION 1. Section 34.001, Health and Safety Code, is | ||
amended by adding Subdivision (11-a) and amending Subdivision (12) | ||
to read as follows: | ||
(11-a) "Pregnancy-associated death" means the death | ||
of a woman from any cause that occurs during or within one year of | ||
delivery or end of pregnancy, regardless of the outcome or location | ||
of the pregnancy. | ||
(12) "Pregnancy-related death" means the death of a | ||
woman while pregnant or within one year of delivery or end of | ||
pregnancy, regardless of the outcome, duration, or location [ |
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the pregnancy or its management, but not from accidental or | ||
incidental causes. | ||
SECTION 2. The heading to Section 34.002, Health and Safety | ||
Code, is amended to read as follows: | ||
Sec. 34.002. TEXAS MATERNAL MORTALITY AND MORBIDITY REVIEW | ||
COMMITTEE; REFERENCE IN LAW. | ||
SECTION 3. Section 34.002, Health and Safety Code, is | ||
amended by adding Subsection (a-1) and amending Subsection (e) to | ||
read as follows: | ||
(a-1) Notwithstanding any other law, a reference in this | ||
chapter or other law to the Maternal Mortality and Morbidity Task | ||
Force means the Texas Maternal Mortality and Morbidity Review | ||
Committee. | ||
(e) A member of the review committee appointed under | ||
Subsection (b)(1) is not entitled to compensation for service on | ||
the review committee but, subject to Section 34.014(b), may be | ||
reimbursed [ |
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by the member while conducting the business of the review | ||
committee. | ||
SECTION 4. Section 34.008, Health and Safety Code, is | ||
amended by adding Subsection (e) to read as follows: | ||
(e) For purposes of this chapter, a licensed health care | ||
provider, including a nurse, who is involved in obtaining | ||
information relevant to a case of pregnancy-associated death, | ||
pregnancy-related death, or severe maternal morbidity under this | ||
chapter and who is required under other law to report a violation | ||
related to the provider's profession is exempt from the requirement | ||
to report the violation for information obtained under this | ||
chapter. | ||
SECTION 5. Section 34.009(a), Health and Safety Code, is | ||
amended to read as follows: | ||
(a) Any information pertaining to a pregnancy-associated | ||
death, a pregnancy-related death, or severe maternal morbidity is | ||
confidential for purposes of this chapter. | ||
SECTION 6. Section 34.014, Health and Safety Code, is | ||
amended to read as follows: | ||
Sec. 34.014. FUNDING. (a) The department may accept gifts | ||
and grants from any source to fund the duties of the department and | ||
the review committee under this chapter. | ||
(b) The department may use only gifts, grants, or federal | ||
funds to reimburse travel or other expenses incurred by a member of | ||
the review committee in accordance with Section 34.002(e). | ||
SECTION 7. Section 34.017, Health and Safety Code, is | ||
amended by adding Subsections (c), (d), and (e) to read as follows: | ||
(c) The department may allow voluntary and confidential | ||
reporting to the department of pregnancy-associated deaths and | ||
pregnancy-related deaths by health care professionals, health care | ||
facilities, and persons who complete the medical certification for | ||
a death certificate for deaths reviewed or analyzed by the review | ||
committee. | ||
(d) The department shall allow voluntary and confidential | ||
reporting to the department of pregnancy-associated deaths and | ||
pregnancy-related deaths by family members of or other appropriate | ||
individuals associated with a deceased patient. The department | ||
shall: | ||
(1) post on the department's Internet website the | ||
contact information of the person to whom a report may be submitted | ||
under this subsection; and | ||
(2) conduct outreach to local health organizations on | ||
the availability of the review committee to review and analyze the | ||
deaths described by this subsection. | ||
(e) Information reported to the department under this | ||
section is confidential in accordance with Section 34.009. | ||
SECTION 8. Chapter 34, Health and Safety Code, is amended by | ||
adding Section 34.022 to read as follows: | ||
Sec. 34.022. DEVELOPMENT OF WORK GROUP ON ESTABLISHMENT OF | ||
MATERNAL MORTALITY AND MORBIDITY DATA REGISTRY. (a) In this | ||
section, "maternal mortality and morbidity data registry" means an | ||
Internet website or database established to collect individualized | ||
patient information and aggregate statistical reports on the health | ||
status, health behaviors, and service delivery needs of maternal | ||
patients. | ||
(b) The department shall establish a work group to provide | ||
advice and consultation services to the department on the report | ||
and recommendations required by Subsection (e). The work group | ||
consists of the following members appointed by the commissioner | ||
unless otherwise provided: | ||
(1) one member with appropriate expertise appointed by | ||
the governor; | ||
(2) two members with appropriate expertise appointed | ||
by the lieutenant governor; | ||
(3) two members with appropriate expertise appointed | ||
by the speaker of the house of representatives; | ||
(4) the chair of the Texas Hospital Association or the | ||
chair's designee; | ||
(5) the president of the Texas Medical Association or | ||
the president's designee; | ||
(6) the president of the Texas Nurses Association or | ||
the president's designee; | ||
(7) one member who is a physician specializing in | ||
obstetrics and gynecology; | ||
(8) one member who is a physician specializing in | ||
maternal and fetal medicine; | ||
(9) one member who is a registered nurse specializing | ||
in labor and delivery; | ||
(10) one member who is a representative of a hospital | ||
located in a rural area of this state; | ||
(11) one member who is a representative of a hospital | ||
located in a county with a population of four million or more; | ||
(12) one member who is a representative of a hospital | ||
located in an urban area of this state in a county with a population | ||
of less than four million; | ||
(13) one member who is a representative of a public | ||
hospital; | ||
(14) one member who is a representative of a private | ||
hospital; | ||
(15) one member who is an epidemiologist; | ||
(16) one member who is a statistician; | ||
(17) one member who is a public health expert; and | ||
(18) any other member with appropriate expertise as | ||
the commissioner determines necessary. | ||
(c) The work group shall elect from among the membership a | ||
presiding officer. | ||
(d) The work group shall meet periodically and at the call | ||
of the presiding officer. | ||
(e) With the goals of improving the quality of maternal care | ||
and combating maternal mortality and morbidity and with the advice | ||
of the work group established under this section, the department | ||
shall assess and prepare a report and recommendations on the | ||
establishment of a secure maternal mortality and morbidity data | ||
registry to record information submitted by participating health | ||
care providers on the health status of maternal patients over | ||
varying periods, including the frequency and characteristics of | ||
maternal mortality and morbidity during pregnancy and the | ||
postpartum period. | ||
(f) In developing the report and recommendations required | ||
by Subsection (e), the department shall: | ||
(1) consider individual maternal patient information | ||
related to health status and health care received over varying | ||
periods that should be submitted to the registry; | ||
(2) review existing and developing registries used in | ||
and outside this state that serve the same or a similar purpose as a | ||
maternal mortality and morbidity data registry; | ||
(3) review ongoing health data collection efforts and | ||
initiatives in this state to avoid duplication and ensure | ||
efficiency; | ||
(4) review and consider existing laws that govern data | ||
submission and sharing, including laws governing the | ||
confidentiality and security of individually identifiable health | ||
information; and | ||
(5) evaluate the clinical period during which known | ||
and available information should be submitted to a maternal | ||
mortality and morbidity data registry by a health care provider, | ||
including information: | ||
(A) from a maternal patient's first appointment | ||
with an obstetrician and each subsequent appointment until the date | ||
of delivery; | ||
(B) for the 42 days following a patient's | ||
delivery; and | ||
(C) until the 364th day following a patient's | ||
delivery. | ||
(g) If the department recommends the establishment of a | ||
maternal mortality and morbidity data registry, the report under | ||
Subsection (e) must include specific recommendations on the | ||
relevant individual patient information and categories of | ||
information to be submitted to the registry, including | ||
recommendations on the intervals for submission of information. | ||
The categories of individual patient information described by this | ||
subsection must include: | ||
(1) notifiable maternal deaths, including | ||
individualized patient data on: | ||
(A) patients who die during pregnancy; and | ||
(B) patients who were pregnant at any point in | ||
the 12 months preceding their death; | ||
(2) individualized patient information on each | ||
pregnancy and birth; | ||
(3) individualized patient data on the most common | ||
high-risk conditions for maternal patients and severe cases of | ||
maternal morbidity; | ||
(4) nonidentifying demographic data from the | ||
provider's patient admissions records, including age, race, and | ||
patient health benefit coverage status; and | ||
(5) a statistical summary based on an aggregate of | ||
individualized patient data that includes the following: | ||
(A) total live births; | ||
(B) maternal age distributions; | ||
(C) maternal race and ethnicity distributions; | ||
(D) health benefit plan issuer distributions; | ||
(E) incidence of diabetes, hypertension, and | ||
hemorrhage among patients; | ||
(F) gestational age distributions; | ||
(G) birth weight distributions; | ||
(H) total preterm birth rate; | ||
(I) rate of vaginal deliveries; and | ||
(J) rate of cesarean sections. | ||
(h) If the department establishes a maternal mortality and | ||
morbidity data registry, a health care provider submitting | ||
information to the registry shall comply with all applicable | ||
federal and state laws relating to patient confidentiality and | ||
quality of health care information. | ||
(i) The report and recommendations required under | ||
Subsection (e) must outline potential uses of a maternal mortality | ||
and morbidity data registry, including: | ||
(1) periodic analysis by the department of information | ||
submitted to the registry; and | ||
(2) the feasibility of preparing and issuing reports, | ||
using aggregated information, to each health care provider | ||
participating in the registry to improve the quality of maternal | ||
care. | ||
(j) Not later than September 1, 2022, the department shall | ||
prepare and submit to the governor, the lieutenant governor, the | ||
speaker of the house of representatives, the Legislative Budget | ||
Board, and each standing committee of the legislature having | ||
primary jurisdiction over the department and post on the | ||
department's Internet website the report and recommendations | ||
required under Subsection (e). | ||
(k) This section expires September 1, 2023. | ||
SECTION 9. The executive commissioner of the Health and | ||
Human Services Commission shall adopt rules as necessary to | ||
implement Section 34.022, Health and Safety Code, as added by this | ||
Act, not later than December 1, 2021. | ||
SECTION 10. This Act takes effect September 1, 2021. |