Bill Text: TX HB136 | 2021-2022 | 87th Legislature | Comm Sub
Bill Title: Relating to the confidentiality and reporting of certain information on maternal mortality to the Department of State Health Services and to a work group establishing a maternal mortality and morbidity data registry.
Sponsorship: Bipartisan Bill
Status: (Introduced - Dead) 2021-05-13 - Placed on General State Calendar [HB136 Detail]
Download: Texas-2021-HB136-Comm_Sub.html
| 87R1647 EAS-F | ||
| By: Thierry, Oliverson | H.B. No. 136 | |
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| relating to the confidentiality and reporting of certain | ||
| information on maternal mortality to the Department of State Health | ||
| Services and to a work group establishing a maternal mortality and | ||
| morbidity data registry. | ||
| BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: | ||
| SECTION 1. Section 34.001, Health and Safety Code, is | ||
| amended by adding Subdivision (11-a) and amending Subdivision (12) | ||
| to read as follows: | ||
| (11-a) "Pregnancy-associated death" means the death | ||
| of a woman from any cause that occurs during or within one year of | ||
| delivery or end of pregnancy, regardless of the outcome or location | ||
| of the pregnancy. | ||
| (12) "Pregnancy-related death" means the death of a | ||
| woman while pregnant or within one year of delivery or end of | ||
| pregnancy, regardless of the outcome, duration, or location [ |
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| the pregnancy or its management, but not from accidental or | ||
| incidental causes. | ||
| SECTION 2. The heading to Section 34.002, Health and Safety | ||
| Code, is amended to read as follows: | ||
| Sec. 34.002. TEXAS MATERNAL MORTALITY AND MORBIDITY REVIEW | ||
| COMMITTEE; REFERENCE IN LAW. | ||
| SECTION 3. Section 34.002, Health and Safety Code, is | ||
| amended by adding Subsection (a-1) and amending Subsection (e) to | ||
| read as follows: | ||
| (a-1) Notwithstanding any other law, a reference in this | ||
| chapter or other law to the Maternal Mortality and Morbidity Task | ||
| Force means the Texas Maternal Mortality and Morbidity Review | ||
| Committee. | ||
| (e) A member of the review committee appointed under | ||
| Subsection (b)(1) is not entitled to compensation for service on | ||
| the review committee but, subject to Section 34.014(b), may be | ||
| reimbursed [ |
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| by the member while conducting the business of the review | ||
| committee. | ||
| SECTION 4. Section 34.008, Health and Safety Code, is | ||
| amended by adding Subsection (e) to read as follows: | ||
| (e) For purposes of this chapter, a licensed health care | ||
| provider, including a nurse, who is involved in obtaining | ||
| information relevant to a case of pregnancy-associated death, | ||
| pregnancy-related death, or severe maternal morbidity under this | ||
| chapter and who is required under other law to report a violation | ||
| related to the provider's profession is exempt from the requirement | ||
| to report the violation for information obtained under this | ||
| chapter. | ||
| SECTION 5. Section 34.009(a), Health and Safety Code, is | ||
| amended to read as follows: | ||
| (a) Any information pertaining to a pregnancy-associated | ||
| death, a pregnancy-related death, or severe maternal morbidity is | ||
| confidential for purposes of this chapter. | ||
| SECTION 6. Section 34.014, Health and Safety Code, is | ||
| amended to read as follows: | ||
| Sec. 34.014. FUNDING. (a) The department may accept gifts | ||
| and grants from any source to fund the duties of the department and | ||
| the review committee under this chapter. | ||
| (b) The department may use only gifts, grants, or federal | ||
| funds to reimburse travel or other expenses incurred by a member of | ||
| the review committee in accordance with Section 34.002(e). | ||
| SECTION 7. Section 34.017, Health and Safety Code, is | ||
| amended by adding Subsections (c), (d), and (e) to read as follows: | ||
| (c) The department may allow voluntary and confidential | ||
| reporting to the department of pregnancy-associated deaths and | ||
| pregnancy-related deaths by health care professionals, health care | ||
| facilities, and persons who complete the medical certification for | ||
| a death certificate for deaths reviewed or analyzed by the review | ||
| committee. | ||
| (d) The department shall allow voluntary and confidential | ||
| reporting to the department of pregnancy-associated deaths and | ||
| pregnancy-related deaths by family members of or other appropriate | ||
| individuals associated with a deceased patient. The department | ||
| shall: | ||
| (1) post on the department's Internet website the | ||
| contact information of the person to whom a report may be submitted | ||
| under this subsection; and | ||
| (2) conduct outreach to local health organizations on | ||
| the availability of the review committee to review and analyze the | ||
| deaths described by this subsection. | ||
| (e) Information reported to the department under this | ||
| section is confidential in accordance with Section 34.009. | ||
| SECTION 8. Chapter 34, Health and Safety Code, is amended by | ||
| adding Section 34.022 to read as follows: | ||
| Sec. 34.022. DEVELOPMENT OF WORK GROUP ON ESTABLISHMENT OF | ||
| MATERNAL MORTALITY AND MORBIDITY DATA REGISTRY. (a) In this | ||
| section, "maternal mortality and morbidity data registry" means an | ||
| Internet website or database established to collect individualized | ||
| patient information and aggregate statistical reports on the health | ||
| status, health behaviors, and service delivery needs of maternal | ||
| patients. | ||
| (b) The department shall establish a work group to provide | ||
| advice and consultation services to the department on the report | ||
| and recommendations required by Subsection (e). The work group | ||
| consists of the following members appointed by the commissioner | ||
| unless otherwise provided: | ||
| (1) one member with appropriate expertise appointed by | ||
| the governor; | ||
| (2) two members with appropriate expertise appointed | ||
| by the lieutenant governor; | ||
| (3) two members with appropriate expertise appointed | ||
| by the speaker of the house of representatives; | ||
| (4) the chair of the Texas Hospital Association or the | ||
| chair's designee; | ||
| (5) the president of the Texas Medical Association or | ||
| the president's designee; | ||
| (6) the president of the Texas Nurses Association or | ||
| the president's designee; | ||
| (7) one member who is a physician specializing in | ||
| obstetrics and gynecology; | ||
| (8) one member who is a physician specializing in | ||
| maternal and fetal medicine; | ||
| (9) one member who is a registered nurse specializing | ||
| in labor and delivery; | ||
| (10) one member who is a representative of a hospital | ||
| located in a rural area of this state; | ||
| (11) one member who is a representative of a hospital | ||
| located in a county with a population of four million or more; | ||
| (12) one member who is a representative of a hospital | ||
| located in an urban area of this state in a county with a population | ||
| of less than four million; | ||
| (13) one member who is a representative of a public | ||
| hospital; | ||
| (14) one member who is a representative of a private | ||
| hospital; | ||
| (15) one member who is an epidemiologist; | ||
| (16) one member who is a statistician; | ||
| (17) one member who is a public health expert; and | ||
| (18) any other member with appropriate expertise as | ||
| the commissioner determines necessary. | ||
| (c) The work group shall elect from among the membership a | ||
| presiding officer. | ||
| (d) The work group shall meet periodically and at the call | ||
| of the presiding officer. | ||
| (e) With the goals of improving the quality of maternal care | ||
| and combating maternal mortality and morbidity and with the advice | ||
| of the work group established under this section, the department | ||
| shall assess and prepare a report and recommendations on the | ||
| establishment of a secure maternal mortality and morbidity data | ||
| registry to record information submitted by participating health | ||
| care providers on the health status of maternal patients over | ||
| varying periods, including the frequency and characteristics of | ||
| maternal mortality and morbidity during pregnancy and the | ||
| postpartum period. | ||
| (f) In developing the report and recommendations required | ||
| by Subsection (e), the department shall: | ||
| (1) consider individual maternal patient information | ||
| related to health status and health care received over varying | ||
| periods that should be submitted to the registry; | ||
| (2) review existing and developing registries used in | ||
| and outside this state that serve the same or a similar purpose as a | ||
| maternal mortality and morbidity data registry; | ||
| (3) review ongoing health data collection efforts and | ||
| initiatives in this state to avoid duplication and ensure | ||
| efficiency; | ||
| (4) review and consider existing laws that govern data | ||
| submission and sharing, including laws governing the | ||
| confidentiality and security of individually identifiable health | ||
| information; and | ||
| (5) evaluate the clinical period during which known | ||
| and available information should be submitted to a maternal | ||
| mortality and morbidity data registry by a health care provider, | ||
| including information: | ||
| (A) from a maternal patient's first appointment | ||
| with an obstetrician and each subsequent appointment until the date | ||
| of delivery; | ||
| (B) for the 42 days following a patient's | ||
| delivery; and | ||
| (C) until the 364th day following a patient's | ||
| delivery. | ||
| (g) If the department recommends the establishment of a | ||
| maternal mortality and morbidity data registry, the report under | ||
| Subsection (e) must include specific recommendations on the | ||
| relevant individual patient information and categories of | ||
| information to be submitted to the registry, including | ||
| recommendations on the intervals for submission of information. | ||
| The categories of individual patient information described by this | ||
| subsection must include: | ||
| (1) notifiable maternal deaths, including | ||
| individualized patient data on: | ||
| (A) patients who die during pregnancy; and | ||
| (B) patients who were pregnant at any point in | ||
| the 12 months preceding their death; | ||
| (2) individualized patient information on each | ||
| pregnancy and birth; | ||
| (3) individualized patient data on the most common | ||
| high-risk conditions for maternal patients and severe cases of | ||
| maternal morbidity; | ||
| (4) nonidentifying demographic data from the | ||
| provider's patient admissions records, including age, race, and | ||
| patient health benefit coverage status; and | ||
| (5) a statistical summary based on an aggregate of | ||
| individualized patient data that includes the following: | ||
| (A) total live births; | ||
| (B) maternal age distributions; | ||
| (C) maternal race and ethnicity distributions; | ||
| (D) health benefit plan issuer distributions; | ||
| (E) incidence of diabetes, hypertension, and | ||
| hemorrhage among patients; | ||
| (F) gestational age distributions; | ||
| (G) birth weight distributions; | ||
| (H) total preterm birth rate; | ||
| (I) rate of vaginal deliveries; and | ||
| (J) rate of cesarean sections. | ||
| (h) If the department establishes a maternal mortality and | ||
| morbidity data registry, a health care provider submitting | ||
| information to the registry shall comply with all applicable | ||
| federal and state laws relating to patient confidentiality and | ||
| quality of health care information. | ||
| (i) The report and recommendations required under | ||
| Subsection (e) must outline potential uses of a maternal mortality | ||
| and morbidity data registry, including: | ||
| (1) periodic analysis by the department of information | ||
| submitted to the registry; and | ||
| (2) the feasibility of preparing and issuing reports, | ||
| using aggregated information, to each health care provider | ||
| participating in the registry to improve the quality of maternal | ||
| care. | ||
| (j) Not later than September 1, 2022, the department shall | ||
| prepare and submit to the governor, the lieutenant governor, the | ||
| speaker of the house of representatives, the Legislative Budget | ||
| Board, and each standing committee of the legislature having | ||
| primary jurisdiction over the department and post on the | ||
| department's Internet website the report and recommendations | ||
| required under Subsection (e). | ||
| (k) This section expires September 1, 2023. | ||
| SECTION 9. The executive commissioner of the Health and | ||
| Human Services Commission shall adopt rules as necessary to | ||
| implement Section 34.022, Health and Safety Code, as added by this | ||
| Act, not later than December 1, 2021. | ||
| SECTION 10. This Act takes effect September 1, 2021. | ||
