Bill Text: NY S01839 | 2023-2024 | General Assembly | Amended

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Bill Title: Directs the health equity council to advise the commissioner regarding sickle cell disease.

Spectrum: Strong Partisan Bill (Democrat 15-1)

Status: (Engrossed) 2023-05-30 - SUBSTITUTED BY A2609A [S01839 Detail]

Download: New_York-2023-S01839-Amended.html

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                STATE OF NEW YORK
        ________________________________________________________________________

                                         1839--A
            Cal. No. 520

                               2023-2024 Regular Sessions

                    IN SENATE

                                    January 17, 2023
                                       ___________

        Introduced   by   Sens.   SANDERS,   BROUK,  CLEARE,  COMRIE,  GIANARIS,
          HOYLMAN-SIGAL, JACKSON, KENNEDY, KRUEGER, MAY, MAYER, MYRIE,  ROLISON,
          SEPULVEDA,  SKOUFIS,  WEBB -- read twice and ordered printed, and when
          printed to be committed to the Committee on Health -- reported favora-
          bly from said committee, ordered to first and second  report,  ordered
          to  a  third  reading, passed by Senate and delivered to the Assembly,
          recalled, vote reconsidered, restored to third  reading,  amended  and
          ordered reprinted, retaining its place in the order of third reading

        AN  ACT  to  amend  the  public  health  law, in relation to sickle cell
          disease detection and education

          The People of the State of New York, represented in Senate and  Assem-
        bly, do enact as follows:

     1    Section  1.  Section 243 of the public health law, as amended by chap-
     2  ter 523 of the laws of 2022, is amended by adding a new subdivision 6 to
     3  read as follows:
     4    6. Sickle cell disease. a. The health equity council  shall  consider,
     5  and advise the commissioner regarding sickle cell disease.
     6    b.  The  council  shall  issue  recommendations to the commissioner to
     7  promote screening and detection of sickle cell disease, especially among
     8  unserved or underserved populations; to  educate  the  public  regarding
     9  sickle  cell disease and the benefits of early detection; and to provide
    10  counseling and referral services.  For  purposes  of  this  subdivision,
    11  "unserved  or  underserved  populations"  means people having inadequate
    12  access and financial resources to obtain sickle cell  disease  screening
    13  and  detection  services,  including  people who lack health coverage or
    14  whose health coverage is inadequate or who  cannot  meet  the  financial
    15  requirements of their coverage for accessing detection services.
    16    c. The council shall consider the feasibility of the following:
    17    (i)  the  establishment  of  a statewide public education and outreach
    18  campaign to publicize evidence  based  sickle  cell  disease  screening,
    19  detection  and education services.  The campaign shall include:  general

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD05973-03-3
        S. 1839--A                          2

     1  community  education,  outreach  to  specific  underserved  populations,
     2  evidence  based  clinical sickle cell disease screening services, and an
     3  informational summary that shall include an explanation  of  the  impor-
     4  tance  of clinical examinations and what to expect during clinical exam-
     5  inations and sickle cell disease screening services;
     6    (ii) the provision of grants to approved organizations;
     7    (iii) the compilation of  data  concerning  sickle  cell  disease  and
     8  dissemination of such data to the public; and
     9    (iv)  the  development  of health care professional education programs
    10  including the benefits of early detection of  sickle  cell  disease  and
    11  clinical  examinations,  the  recommended frequency of clinical examina-
    12  tions and sickle cell disease  screening  services,  and  professionally
    13  recognized best practices guidelines.
    14    §  2. Subdivision 1 of section 207 of the public health law is amended
    15  by adding a new paragraph (r) to read as follows:
    16    (r) Sickle cell  disease  including  but  not  limited  to  screening,
    17  prevention,   and   treatment  information.  The department, through the
    18  health equity council pursuant to section  two  hundred  forty-three  of
    19  this  article, or a successor council, shall consult with patients  with
    20  sickle  cell  disease  and  their  families  and  health  care providers
    21  specializing in treating sickle  cell  disease,  among  others,  in  the
    22  production of any such information.
    23    § 3. This act shall take effect immediately.