Bill Text: NY A04138 | 2023-2024 | General Assembly | Amended

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Bill Title: Creates a Down syndrome awareness program to provide up-to-date and evidence-based information on Down syndrome to health care providers who order tests for a pregnant woman or infants to screen for Down syndrome.

Spectrum: Slight Partisan Bill (Democrat 21-9)

Status: (Passed) 2024-12-13 - approval memo.27 [A04138 Detail]

Download: New_York-2023-A04138-Amended.html

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                STATE OF NEW YORK
        ________________________________________________________________________

                                         4138--A

                               2023-2024 Regular Sessions

                   IN ASSEMBLY

                                    February 10, 2023
                                       ___________

        Introduced by M. of A. McMAHON, WALLACE, CONRAD, SIMON, STIRPE, GUNTHER,
          THIELE,  BRONSON,  HEVESI,  SEAWRIGHT, DICKENS, GONZALEZ-ROJAS, GLICK,
          ZEBROWSKI, CRUZ,  McDONALD,  KELLES,  BENDETT,  McDONOUGH,  DeSTEFANO,
          MORINELLO,  HAWLEY,  J. M. GIGLIO, J. A. GIGLIO, STERN, RAGA, GANDOLFO
          -- read once and referred to the Committee on Mental Health -- commit-
          tee discharged, bill amended, ordered reprinted as amended and  recom-
          mitted to said committee

        AN  ACT  to  amend  the  public health law, in relation to Down syndrome
          diagnosis awareness

          The People of the State of New York, represented in Senate and  Assem-
        bly, do enact as follows:

     1    Section  1.   Subdivision 1 of section 207 of the public health law is
     2  amended by adding a new paragraph (h) to read as follows:
     3    (h)(i) A Down syndrome awareness program shall be created  to  provide
     4  up-to-date  and  evidence-based  information  about  Down syndrome, in a
     5  written or alternative format to health care providers who  order  tests
     6  for a pregnant woman or an infant to screen for Down syndrome that shall
     7  include, but not be limited to, the following:
     8    (1)  expected  physical,  developmental, educational, and psychosocial
     9  outcomes;
    10    (2) life expectancy;
    11    (3) the clinical course description;
    12    (4) expected intellectual and functional development;
    13    (5) available intervention or treatment options;
    14    (6) information hotlines specific to Down syndrome;
    15    (7) relevant resource centers or clearinghouses;
    16    (8) national and local Down syndrome organizations; and
    17    (9) any other information the department deems necessary.
    18    (ii) The commissioner shall (1) examine and utilize existing practices
    19  to ensure that the information provided under subparagraph (i)  of  this
    20  paragraph  is  culturally and linguistically appropriate for all recipi-

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD06931-02-3
        A. 4138--A                          2

     1  ents; and (2) meet annually with representatives from the Down  syndrome
     2  community to ensure such information is current.
     3    § 2 This act shall take effect immediately.