Bill Text: IL SB1726 | 2019-2020 | 101st General Assembly | Engrossed


Bill Title: Amends the Alzheimer's Disease Research Act. Changes the short title of the Act to the Alzheimer's Disease Research, Care, and Support Fund Act. Creates the full-time position of Dementia Coordinator within the Department of Public Health, who is responsible only for activities associated with and relevant to the successful implementation of the State of Illinois Alzheimer's Disease State Plan. Changes the name of the Alzheimer's Disease Research Fund to the Alzheimer's Disease Research, Care, and Support Fund and makes corresponding changes in the State Finance Act. Provides that moneys from the Fund shall be used to cover costs, including the Dementia Coordinator's salary and expenses. Provides that the Department shall be responsible for providing the Dementia Coordinator with administrative support through its existing resources and not from the Fund. Repeals provisions concerning a grant program administered by the Department. Amends the Alzheimer's Disease Assistance Act. Makes changes concerning the membership of the Alzheimer's Disease Advisory Committee. Requires the Department of Public Health to make reasonable efforts to promote the Alzheimer's Disease Research, Care, and Support Fund during relevant times, including, but not limited to, periods of time when tax returns are typically received, such as issuing press releases and posting on social media.

Spectrum: Moderate Partisan Bill (Democrat 46-8)

Status: (Engrossed) 2019-05-21 - Added Alternate Co-Sponsor Rep. Mary Edly-Allen [SB1726 Detail]

Download: Illinois-2019-SB1726-Engrossed.html



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1 AN ACT concerning health.
2 Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
4 Section 5. The State Finance Act is amended by changing
5Section 5.180 as follows:
6 (30 ILCS 105/5.180) (from Ch. 127, par. 141.180)
7 Sec. 5.180. The Alzheimer's Disease Research, Care, and
8Support Fund.
9(Source: P.A. 84-1308.)
10 Section 10. The Alzheimer's Disease Assistance Act is
11amended by changing Section 6 and by adding Section 8 as
12follows:
13 (410 ILCS 405/6) (from Ch. 111 1/2, par. 6956)
14 Sec. 6. Alzheimer's Disease ADA Advisory Committee.
15 (a) There is created the Alzheimer's Disease Advisory
16Committee consisting of 17 23 voting members appointed by the
17Director of the Department, as well as 5 nonvoting members as
18hereinafter provided in this Section. The Director or his
19designee shall serve as one of the 17 23 voting members and as
20the Chairman of the Committee. Those appointed as voting
21members shall include persons who are experienced in research

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1and the delivery of services to individuals with Alzheimer's
2disease or a related disorder and their families. Such members
3shall include:
4 (1) one individual from a statewide association
5 dedicated to Alzheimer's care, support, and research;
6 (2) one individual from a non-governmental statewide
7 organization that advocates for seniors;
8 (3) the Dementia Coordinator of the Illinois
9 Department of Public Health, or the Dementia Coordinator's
10 designee;
11 (4) one individual representing the Community Care
12 Program's Home and Community Services Division;
13 (5) one individual representing the Adult Protective
14 Services Unit;
15 (6) 3 individuals from Alzheimer's Disease Assistance
16 Centers;
17 (7) one individual from a statewide association
18 representing an adult day service organization;
19 (8) one individual from a statewide association
20 representing home care providers;
21 (9) one individual from a statewide trade organization
22 representing the interests of physicians licensed to
23 practice medicine in all of its branches in Illinois;
24 (10) one individual representing long-term care
25 facilities licensed under the Nursing Home Care Act, an
26 assisted living establishment licensed under the Assisted

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1 Living and Shared Housing Act, or supportive living
2 facilities;
3 (11) one individual from a statewide association
4 representing the interests of social workers;
5 (12) one individual representing Area Agencies on
6 Aging;
7 (13) the Medicaid Director of the Department of
8 Healthcare and Family Services, or the Medicaid Director's
9 designee;
10 (14) one individual from a statewide association
11 representing health education and promotion and public
12 health advocacy; and
13 (15) one individual with medical or academic
14 experience with early onset Alzheimer's disease or related
15 disorders. 3 physicians licensed to practice medicine in
16 all of its branches, one representative of a licensed
17 hospital, one registered nurse with a specialty in
18 geriatric or dementia care, one representative of a long
19 term care facility under the Nursing Home Care Act, one
20 representative of a long term care facility under the
21 Assisted Living and Shared Housing Act, one representative
22 from a supportive living facility specially serving
23 individuals with dementia, one representative of a home
24 care agency serving individuals with dementia, one
25 representative of a hospice with a specialty in palliative
26 care for dementia, one representative of an area agency on

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1 aging as defined by Section 3.07 of the Illinois Act on the
2 Aging, one representative from a leading advocacy
3 organization serving individuals with Alzheimer's disease,
4 one licensed social worker, one representative of law
5 enforcement, 2 individuals with early-stage Alzheimer's
6 disease, 3 family members or representatives of
7 individuals with Alzheimer's disease and related
8 disorders, and 3 members of the general public. Among the
9 physician appointments shall be persons with specialties
10 in the fields of neurology, family medicine, psychiatry and
11 pharmacology. Among the general public members, at least 2
12 appointments shall include persons 65 years of age or
13 older.
14 (b) In addition to the 17 23 voting members, the Directors
15of the following State agencies or their designees who are
16qualified to represent each Department's programs and services
17for those with Alzheimer's disease or related disorders shall
18serve as nonvoting members: Department on Aging, Department of
19Healthcare and Family Services, Department of Public Health,
20Department of Human Services, and Guardianship and Advocacy
21Commission.
22 Each voting member appointed by the Director of Public
23Health shall serve for a term of 2 years, and until his
24successor is appointed and qualified. Members of the Committee
25shall not be compensated but shall be reimbursed for expenses
26actually incurred in the performance of their duties. No more

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1than 12 voting members may be of the same political party.
2Vacancies shall be filled in the same manner as original
3appointments.
4 The Committee shall review all State programs and services
5provided by State agencies that are directed toward persons
6with Alzheimer's disease and related dementias, and by
7consensus recommend changes to improve the State's response to
8this serious health problem. Such recommendations shall be
9included in the State plan described in this Act.
10(Source: P.A. 97-768, eff. 1-1-13.)
11 (410 ILCS 405/8 new)
12 Sec. 8. Alzheimer's Disease Research, Care, and Support
13Fund; support. The Department, in coordination with the members
14of the Alzheimer's Disease Advisory Committee, shall make
15reasonable efforts to promote the Alzheimer's Disease
16Research, Care, and Support Fund during relevant times,
17including, but not limited to, periods of time when tax returns
18are typically received. Ways to promote the Fund include, but
19are not limited to, issuing press releases and posting on
20social media.
21 Section 15. The Alzheimer's Disease Research Act is amended
22by changing Sections 1, 2, 3, and by adding Sections 3.1, 3.2
23and 3.3 as follows:

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1 (410 ILCS 410/1) (from Ch. 111 1/2, par. 6901)
2 Sec. 1. Short title. This Act shall be known and may be
3cited as the Alzheimer's Disease Research, Care, and Support
4Fund Act.
5(Source: P.A. 84-324.)
6 (410 ILCS 410/2) (from Ch. 111 1/2, par. 6902)
7 Sec. 2. Contributions on tax returns. Each individual
8taxpayer required to file a return pursuant to the Illinois
9Income Tax Act desiring to contribute to the Alzheimer's
10Disease Research, Care, and Support Fund may do so by stating
11the amount of such contribution (not less than $1) on such
12return. This Section shall not apply to an amended return.
13(Source: P.A. 86-678.)
14 (410 ILCS 410/3) (from Ch. 111 1/2, par. 6903)
15 Sec. 3. Alzheimer's Disease Research, Care, and Support
16Fund.
17 (a) There is created the Alzheimer's Disease Research,
18Care, and Support Fund, a special fund in the State Treasury.
19 (b) The Department of Public Health shall deposit any
20donations received for the grant program created pursuant to
21this Act in the Alzheimer's Disease Research, Care, and Support
22Fund.
23 (c) The General Assembly may appropriate moneys monies in
24the Alzheimer's Disease Research, Care, and Support Fund to the

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1Department of Public Health for the purpose of complying with
2the requirements under Section 4 of awarding grants pursuant to
3this Act.
4(Source: P.A. 84-1265.)
5 (410 ILCS 410/3.1 new)
6 Sec. 3.1. Dementia Coordinator.
7 (a) The full-time position of Dementia Coordinator is
8created within the Department of Public Health. The Dementia
9Coordinator shall be funded out of the Alzheimer's Disease
10Research, Care, and Support Fund. The Dementia Coordinator is
11responsible only for activities associated with and relevant to
12the successful implementation of the State of Illinois
13Alzheimer's Disease State Plan, including, but not limited to:
14 (1) coordinating quality dementia services in the
15 State to ensure dementia capability;
16 (2) using dementia-related data to coordinate with the
17 Department to improve public health outcomes;
18 (3) increasing awareness and creating
19 dementia-specific training;
20 (4) providing access to quality coordinated care for
21 individuals with dementia in the most integrated setting
22 available;
23 (5) establishing and maintaining relationships with
24 other agencies and organizations within the State in order
25 to meet the needs of the affected population and prevent

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1 duplication of services;
2 (6) identifying and managing grants to assist in the
3 funding of the position of Dementia Coordinator and other
4 programs and services to assist Illinois in becoming
5 dementia-capable;
6 (7) working with the Department's Behavioral Risk
7 Factor Surveillance System Coordinator and the Alzheimer's
8 Disease Advisory Committee in identifying available funds
9 to execute appropriate modules for critical data
10 collection and research, if and when necessary; moneys
11 appropriated to the Alzheimer's Disease Research, Care,
12 and Support Fund may be considered;
13 (8) building and maintaining effective working
14 relationships with other departments and organizations to
15 ensure coordination between and the support of dementia
16 services;
17 (9) maintaining and applying knowledge of current
18 developments and trends in the assigned area of expertise
19 by reading appropriate journals, books, and other
20 professional literature, and attending related
21 conferences, seminars, and trainings;
22 (10) providing support for the Alzheimer's Disease
23 Advisory Committee's activities, including co-drafting the
24 State plan; and
25 (11) compiling and publishing an annual report on the
26 state of dementia care in Illinois, including, but not

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1 limited to, the status of Illinois in becoming a
2 dementia-capable state.
3 (410 ILCS 410/3.2 new)
4 Sec. 3.2. Use of moneys in the Fund. Moneys in the
5Alzheimer's Disease Research, Care, and Support Fund shall be
6used by the Department of Public Health to cover costs
7associated with this Act, including, but not limited to, the
8following:
9 (1) salary and benefits for the full-time position of
10 Dementia Coordinator within the Department; and
11 (2) other expenses contingent with the
12 responsibilities of the Dementia Coordinator, including,
13 but not limited to, travel and professional development
14 opportunities.
15 (410 ILCS 410/3.3 new)
16 Sec. 3.3. Administrative support. The Department of Public
17Health shall be responsible for providing the Dementia
18Coordinator with work space, supplies, and other
19administrative office materials, as needed, through existing
20resources and not with moneys from the Alzheimer's Disease
21Research, Care, and Support Fund.
22 (410 ILCS 410/4 rep.)
23 Section 20. The Alzheimer's Disease Research Act is amended

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1by repealing Section 4.
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