Bill Text: IL HR0772 | 2023-2024 | 103rd General Assembly | Introduced

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Bill Title: Declares the month of May 2024 as ALS Awareness Month in the State of Illinois. Urges all Americans to join in supporting ALS research, advocating for increased funding, and standing in solidarity with those affected by this relentless disease.

Spectrum: Bipartisan Bill

Status: (Introduced) 2024-06-29 - Rule 19(b) / Re-referred to Rules Committee [HR0772 Detail]

Download: Illinois-2023-HR0772-Introduced.html

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HR0772 LRB103 40587 ECR 73188 r
HOUSE RESOLUTION
WHEREAS, Amyotrophic lateral sclerosis (ALS), known by
many as Lou Gehrig's disease, is a progressive, fatal
neurodegenerative disease that causes a person's brain to lose
connection with their muscles, slowly taking away their
ability to walk, talk, eat, and eventually breathe; and
WHEREAS, Every 90 minutes, someone is diagnosed with ALS
and someone passes away from ALS; and
WHEREAS, On average, patients diagnosed with ALS only
survive two to five years from the time of their diagnosis; and
WHEREAS, Currently, there is no known cure for ALS; and
WHEREAS, People who have served in the military are more
likely to develop and die from ALS than those with no history
of military service; and
WHEREAS, Securing access to new therapies, durable medical
equipment, and communication technologies is of vital
importance to people living with ALS; and
WHEREAS, Clinical trials play a pivotal role in evaluating
new treatments, enhancing quality of life, and fostering

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assistive technologies for those living with ALS; and
WHEREAS, This year marks the 10th anniversary of the Ice
Bucket Challenge, and it is fitting to make a renewed
commitment to galvanize public awareness and support funding
leading to significant investments in ALS research; and
WHEREAS, As the largest philanthropic funder of ALS
research globally, the ALS Association has committed over $154
million to support more than 550 projects across the United
States and 18 other countries; and
WHEREAS, The ALS community and researchers remain
unwaveringly committed to accelerating the pace of discovery,
fueled by the hope that one day ALS will be a livable disease
for everyone, everywhere; and
WHEREAS, Observing ALS Awareness Month increases the
public's awareness of the dire circumstances people with ALS
face, acknowledges the terrible impact this disease has not
only on the person but also on his or her family and community,
and recognizes the research being done to eradicate this
disease; therefore, be it
RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that

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we declare the month of May 2024 as ALS Awareness Month in the
State of Illinois; and be it further