Bill Text: IL HR0156 | 2017-2018 | 100th General Assembly | Introduced
Bill Title: Designates May of 2017 as "Fibromuscular Dysplasia Awareness Month" in the State of Illinois.
Spectrum: Bipartisan Bill
Status: (Passed) 2017-05-11 - Resolution Adopted [HR0156 Detail]
Download: Illinois-2017-HR0156-Introduced.html
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1 | HOUSE RESOLUTION
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2 | WHEREAS, Fibromuscular dysplasia (FMD) is a disease that | ||||||
3 | causes abnormal cell
growth of the arterial wall; it can lead | ||||||
4 | to areas of narrowing, beading, aneurysms, and
dissections of | ||||||
5 | the arterial wall; and
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6 | WHEREAS, Until recently, there has been very little | ||||||
7 | progress in understanding the
disease since it was first | ||||||
8 | diagnosed in 1938; there is no known cause or cure for the | ||||||
9 | disease and
there are no set protocols to treat the disease; | ||||||
10 | and
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11 | WHEREAS, FMD has always been considered and is still | ||||||
12 | classified as a rare disease; many
researchers now believe FMD | ||||||
13 | is an under-diagnosed disease; some of the data suggest that | ||||||
14 | 4-5% of the population may be affected by the disease; and
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15 | WHEREAS, Ninety percent of the patients affected by FMD are | ||||||
16 | women, but men and
children are also afflicted; there are | ||||||
17 | different classifications of FMD; the two most common
types are | ||||||
18 | medial fibroplasia and intimal fibroplasia; unlike the adult | ||||||
19 | population, children tend to
be diagnosed with intimal | ||||||
20 | fibroplasia, which can be more aggressive; some patients | ||||||
21 | present with
both types of the disease; there is no | ||||||
22 | understanding of why there are differences; and
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1 | WHEREAS, Individuals and families affected by | ||||||
2 | fibromuscular dysplasia often
experience problems such as a | ||||||
3 | sense of isolation, difficulty in obtaining accurate and timely
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4 | diagnosis, and optimal treatment options; and
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5 | WHEREAS, The Fibromuscular Dysplasia Society of America | ||||||
6 | (FMDSA) was founded in
March of 2003; over the past 14 years, | ||||||
7 | this association has been active and successful with many
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8 | programs, including public and physician awareness, patient | ||||||
9 | support, and engaging with researchers from around the world; | ||||||
10 | and
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11 | WHEREAS, The FMDSA is funding the United States Registry | ||||||
12 | for Fibromuscular Dysplasia; previously it was thought that 75% | ||||||
13 | of FMD cases affected the renal
arteries, but recent data has | ||||||
14 | proven that to be inaccurate; it is also very common to have a | ||||||
15 | 5-year delay
from onset of symptoms to diagnosis; and
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16 | WHEREAS, There is still much needed awareness and research | ||||||
17 | of the disease; FMD
patients present with many of the same | ||||||
18 | complaints as other patients with more common conditions,
such | ||||||
19 | as hypertension, headaches, and dizziness; others present with | ||||||
20 | TIA or stroke, dissection of
an artery, aneurysm, swooshing | ||||||
21 | noise in the ear, and renal infarction; children can present | ||||||
22 | with
basic symptoms such as high blood pressure, headaches, |
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1 | insomnia, fatigue, and abdominal pain; misdiagnoses of FMD can | ||||||
2 | lead to severe consequences and disability; and
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3 | WHEREAS, During the month of May each year, the FMDSA | ||||||
4 | organizes a global observance of the issues associated with | ||||||
5 | fibromuscular dysplasia; patients, medical professionals, and | ||||||
6 | researchers
join together to focus attention on fibromuscular | ||||||
7 | dysplasia as a public health issue; therefore, be it
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8 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | ||||||
9 | HUNDREDTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we | ||||||
10 | designate May of 2017 as "Fibromuscular Dysplasia Awareness | ||||||
11 | Month" in the State of Illinois; and be it further
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12 | RESOLVED, That a suitable copy of this resolution be | ||||||
13 | presented to the Fibromuscular Dysplasia Society of America as | ||||||
14 | an expression of our esteem and respect.
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