Illinois Senate Bill 1105 (Prior Session Legislation)

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Completed Legislative Action
Spectrum: Slight Partisan Bill (Republican 6-3)
Status: Failed on January 13 2021 - 100% progression
Action: 2021-01-13 - Session Sine Die
Text: Latest bill text (Engrossed) [HTML]

Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Makes changes to the legislative findings. Provides that the General Assembly finds that each year, approximately 1,500 (rather than 1,185) Illinois children are diagnosed with a serious illness (rather than with a potentially life-limiting illness); and that community-based pediatric palliative services have been shown to keep children out of the hospital by managing many symptoms in the home setting, thereby improving childhood quality of life while maintaining budget neutrality. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under Article V of the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program under the Illinois Public Aid Code and who suffers from a serious illness (rather than a potentially life-limiting medical condition). Requires the Department to apply to the federal Centers for Medicare and Medicaid Services for a State Plan amendment to implement the program. Requires the Department to implement the State plan amendment within 12 months of the date of federal approval. Prohibits the Department from drafting any rules in contravention of this timetable for program development and implementation. Removes all provisions concerning application for a federal Medicaid waiver program authorized under the Social Security Act. Expands the list of serious illnesses (rather than medical conditions) that render a person eligible for pediatric palliative care to include any other serious illness that the Department determines to be appropriate. In a provision concerning authorized providers, provides that at a minimum, a participating provider must house a pediatric interdisciplinary team that includes: (i) a physician, acting as the program medical director, who is board certified or board eligible in pediatrics or hospice and palliative medicine; (ii) a registered nurse; and (iii) a licensed social worker with a background in pediatric care. Requires all members of the pediatric interdisciplinary team to meet criteria the Department may establish by rule, including demonstrated expertise in pediatric palliative care (rather than requiring all members of the pediatric interdisciplinary team to submit to the Department proof of pediatric End-of-Life Nursing Education Curriculum (Pediatric ELNEC Training) or an equivalent). Expands the list of reimbursable services offered under the program to include any other services that the Department determines to be appropriate. Requires the Department, in consultation with interested stakeholders, to establish standards for and provide technical assistance to managed care organizations, as defined in the Illinois Public Aid Code, to ensure the delivery of pediatric palliative care services. Contains provisions concerning reporting requirements and criteria a case manager must meet for demonstrated expertise in pediatric palliative care.

DHFS-PEDIATRIC PALLIATIVE CARE

Sen. Dale Righter [R]	Sen. John Curran [R]	Sen. Donald DeWitte [R]	Sen. Julie Morrison [D]
Sen. Laura Fine [D]	Rep. James Durkin [R]	Rep. Tom Demmer [R]	Rep. Charles Meier [R]
Rep. Robyn Gabel [D]

2019-04-10 - Senate - Third Reading in Senate (Y: 53 N: 0 NV: 6 Abs: 0) [PASS]

Date	Chamber	Action
2021-01-13	Senate	Session Sine Die
2019-06-28	House	House Floor Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee
2019-06-28	House	Rule 19(a) / Re-referred to Rules Committee
2019-05-31	House	Final Action Deadline Extended-9(b) June 30, 2019
2019-05-24	House	Final Action Deadline Extended-9(b) May 31, 2019
2019-05-20	House	House Floor Amendment No. 1 Rules Refers to Appropriations-Human Services Committee
2019-05-17	House	House Floor Amendment No. 1 Referred to Rules Committee
2019-05-17	House	House Floor Amendment No. 1 Filed with Clerk by Rep. Jim Durkin
2019-05-16	House	Held on Calendar Order of Second Reading - Short Debate
2019-05-16	House	Recalled to Second Reading - Short Debate
2019-05-14	House	Placed on Calendar Order of 3rd Reading - Short Debate
2019-05-14	House	Second Reading - Short Debate
2019-05-09	House	Added Alternate Co-Sponsor Rep. Robyn Gabel
2019-05-09	House	Placed on Calendar 2nd Reading - Short Debate
2019-05-09	House	Do Pass / Short Debate Appropriations-Human Services Committee; 015-000-000
2019-05-09	House	Added Alternate Chief Co-Sponsor Rep. Charles Meier
2019-04-29	House	Added Alternate Chief Co-Sponsor Rep. Tom Demmer
2019-04-24	House	Assigned to Appropriations-Human Services Committee
2019-04-10	House	Referred to Rules Committee
2019-04-10	House	First Reading
2019-04-10	House	Chief House Sponsor Rep. Jim Durkin
2019-04-10	House	Arrived in House
2019-04-10	Senate	Third Reading - Passed; 053-000-000
2019-04-10	Senate	Placed on Calendar Order of 3rd Reading
2019-04-10	Senate	Senate Floor Amendment No. 1 Adopted; Righter
2019-04-10	Senate	Recalled to Second Reading
2019-04-09	Senate	Added as Co-Sponsor Sen. Laura Fine
2019-04-09	Senate	Senate Floor Amendment No. 1 Recommend Do Adopt Human Services; 008-000-000
2019-04-09	Senate	Added as Chief Co-Sponsor Sen. Julie A. Morrison
2019-04-09	Senate	Added as Chief Co-Sponsor Sen. Donald P. DeWitte
2019-04-09	Senate	Added as Chief Co-Sponsor Sen. John F. Curran
2019-04-09	Senate	Senate Floor Amendment No. 1 Assignments Refers to Human Services
2019-04-05	Senate	Senate Floor Amendment No. 1 Referred to Assignments
2019-04-05	Senate	Senate Floor Amendment No. 1 Filed with Secretary by Sen. Dale A. Righter
2019-04-03	Senate	Chief Sponsor Changed to Sen. Dale A. Righter
2019-03-07	Senate	Placed on Calendar Order of 3rd Reading March 12, 2019
2019-03-07	Senate	Second Reading
2019-03-06	Senate	Placed on Calendar Order of 2nd Reading March 7, 2019
2019-03-06	Senate	Do Pass Executive; 016-000-000
2019-02-20	Senate	Assigned to Executive
2019-01-31	Senate	Referred to Assignments
2019-01-31	Senate	First Reading
2019-01-31	Senate	Filed with Secretary by Sen. William E. Brady

Chapter	Article	Section	Citation Type	Statute Text
5	810	1	Amended Code	Citation Text

Type	Source
Summary	https://www.ilga.gov/legislation/BillStatus.asp?DocNum=1105&GAID=15&DocTypeID=SB&SessionID=108&GA=101
Text	https://www.ilga.gov/legislation/101/SB/10100SB1105.htm
Text	https://www.ilga.gov/legislation/101/SB/10100SB1105eng.htm
Amendment	https://www.ilga.gov/legislation/101/SB/10100SB1105sam001.htm
Amendment	https://www.ilga.gov/legislation/101/SB/10100SB1105ham001.htm
Roll Call	https://www.ilga.gov/legislation/votehistory/101/senate/10100SB1105_04102019_001000T.pdf