IL SB1105 | 2019-2020 | 101st General Assembly
Status
Completed Legislative Action
Spectrum: Slight Partisan Bill (Republican 6-3)
Status: Failed on January 13 2021 - 100% progression
Action: 2021-01-13 - Session Sine Die
Text: Latest bill text (Engrossed) [HTML]
Spectrum: Slight Partisan Bill (Republican 6-3)
Status: Failed on January 13 2021 - 100% progression
Action: 2021-01-13 - Session Sine Die
Text: Latest bill text (Engrossed) [HTML]
Summary
Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Makes changes to the legislative findings. Provides that the General Assembly finds that each year, approximately 1,500 (rather than 1,185) Illinois children are diagnosed with a serious illness (rather than with a potentially life-limiting illness); and that community-based pediatric palliative services have been shown to keep children out of the hospital by managing many symptoms in the home setting, thereby improving childhood quality of life while maintaining budget neutrality. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under Article V of the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program under the Illinois Public Aid Code and who suffers from a serious illness (rather than a potentially life-limiting medical condition). Requires the Department to apply to the federal Centers for Medicare and Medicaid Services for a State Plan amendment to implement the program. Requires the Department to implement the State plan amendment within 12 months of the date of federal approval. Prohibits the Department from drafting any rules in contravention of this timetable for program development and implementation. Removes all provisions concerning application for a federal Medicaid waiver program authorized under the Social Security Act. Expands the list of serious illnesses (rather than medical conditions) that render a person eligible for pediatric palliative care to include any other serious illness that the Department determines to be appropriate. In a provision concerning authorized providers, provides that at a minimum, a participating provider must house a pediatric interdisciplinary team that includes: (i) a physician, acting as the program medical director, who is board certified or board eligible in pediatrics or hospice and palliative medicine; (ii) a registered nurse; and (iii) a licensed social worker with a background in pediatric care. Requires all members of the pediatric interdisciplinary team to meet criteria the Department may establish by rule, including demonstrated expertise in pediatric palliative care (rather than requiring all members of the pediatric interdisciplinary team to submit to the Department proof of pediatric End-of-Life Nursing Education Curriculum (Pediatric ELNEC Training) or an equivalent). Expands the list of reimbursable services offered under the program to include any other services that the Department determines to be appropriate. Requires the Department, in consultation with interested stakeholders, to establish standards for and provide technical assistance to managed care organizations, as defined in the Illinois Public Aid Code, to ensure the delivery of pediatric palliative care services. Contains provisions concerning reporting requirements and criteria a case manager must meet for demonstrated expertise in pediatric palliative care.
Title
DHFS-PEDIATRIC PALLIATIVE CARE
Sponsors
Sen. Dale Righter [R] | Sen. John Curran [R] | Sen. Donald DeWitte [R] | Sen. Julie Morrison [D] |
Sen. Laura Fine [D] | Rep. James Durkin [R] | Rep. Tom Demmer [R] | Rep. Charles Meier [R] |
Rep. Robyn Gabel [D] |
Roll Calls
2019-04-10 - Senate - Third Reading in Senate (Y: 53 N: 0 NV: 6 Abs: 0) [PASS]
History
Date | Chamber | Action |
---|---|---|
2021-01-13 | Senate | Session Sine Die |
2019-06-28 | House | House Floor Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee |
2019-06-28 | House | Rule 19(a) / Re-referred to Rules Committee |
2019-05-31 | House | Final Action Deadline Extended-9(b) June 30, 2019 |
2019-05-24 | House | Final Action Deadline Extended-9(b) May 31, 2019 |
2019-05-20 | House | House Floor Amendment No. 1 Rules Refers to Appropriations-Human Services Committee |
2019-05-17 | House | House Floor Amendment No. 1 Referred to Rules Committee |
2019-05-17 | House | House Floor Amendment No. 1 Filed with Clerk by Rep. Jim Durkin |
2019-05-16 | House | Held on Calendar Order of Second Reading - Short Debate |
2019-05-16 | House | Recalled to Second Reading - Short Debate |
2019-05-14 | House | Placed on Calendar Order of 3rd Reading - Short Debate |
2019-05-14 | House | Second Reading - Short Debate |
2019-05-09 | House | Added Alternate Co-Sponsor Rep. Robyn Gabel |
2019-05-09 | House | Placed on Calendar 2nd Reading - Short Debate |
2019-05-09 | House | Do Pass / Short Debate Appropriations-Human Services Committee; 015-000-000 |
2019-05-09 | House | Added Alternate Chief Co-Sponsor Rep. Charles Meier |
2019-04-29 | House | Added Alternate Chief Co-Sponsor Rep. Tom Demmer |
2019-04-24 | House | Assigned to Appropriations-Human Services Committee |
2019-04-10 | House | Referred to Rules Committee |
2019-04-10 | House | First Reading |
2019-04-10 | House | Chief House Sponsor Rep. Jim Durkin |
2019-04-10 | House | Arrived in House |
2019-04-10 | Senate | Third Reading - Passed; 053-000-000 |
2019-04-10 | Senate | Placed on Calendar Order of 3rd Reading |
2019-04-10 | Senate | Senate Floor Amendment No. 1 Adopted; Righter |
2019-04-10 | Senate | Recalled to Second Reading |
2019-04-09 | Senate | Added as Co-Sponsor Sen. Laura Fine |
2019-04-09 | Senate | Senate Floor Amendment No. 1 Recommend Do Adopt Human Services; 008-000-000 |
2019-04-09 | Senate | Added as Chief Co-Sponsor Sen. Julie A. Morrison |
2019-04-09 | Senate | Added as Chief Co-Sponsor Sen. Donald P. DeWitte |
2019-04-09 | Senate | Added as Chief Co-Sponsor Sen. John F. Curran |
2019-04-09 | Senate | Senate Floor Amendment No. 1 Assignments Refers to Human Services |
2019-04-05 | Senate | Senate Floor Amendment No. 1 Referred to Assignments |
2019-04-05 | Senate | Senate Floor Amendment No. 1 Filed with Secretary by Sen. Dale A. Righter |
2019-04-03 | Senate | Chief Sponsor Changed to Sen. Dale A. Righter |
2019-03-07 | Senate | Placed on Calendar Order of 3rd Reading March 12, 2019 |
2019-03-07 | Senate | Second Reading |
2019-03-06 | Senate | Placed on Calendar Order of 2nd Reading March 7, 2019 |
2019-03-06 | Senate | Do Pass Executive; 016-000-000 |
2019-02-20 | Senate | Assigned to Executive |
2019-01-31 | Senate | Referred to Assignments |
2019-01-31 | Senate | First Reading |
2019-01-31 | Senate | Filed with Secretary by Sen. William E. Brady |
Code Citations
Chapter | Article | Section | Citation Type | Statute Text |
---|---|---|---|---|
5 | 810 | 1 | Amended Code | Citation Text |