Bill Text: HI SB2885 | 2016 | Regular Session | Amended
Bill Title: Birth Defects Program; Use of Data
Spectrum: Partisan Bill (Democrat 1-0)
Status: (Passed) 2016-04-26 - Act 020, on 04/26/2016 (Gov. Msg. No. 1120). [SB2885 Detail]
Download: Hawaii-2016-SB2885-Amended.html
THE SENATE |
S.B. NO. |
2885 |
TWENTY-EIGHTH LEGISLATURE, 2016 |
S.D. 1 |
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STATE OF HAWAII |
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A BILL FOR AN ACT
RELATING TO BIRTH DEFECTS.
BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF HAWAII:
SECTION 1. Section 324-43, Hawaii Revised Statutes, is amended to read as follows:
"[[]§324-43[]] Use
of collected information. (a) The information collected under this part
shall be used by the department of health or researchers only for the purpose
of advancing medical and public health research, medical education, or
education of the public and healthcare providers in the interest of
reducing morbidity or mortality[,] or increasing physicians' knowledge
of resources available for families of persons with birth defects, and only
as approved or exempted by an institutional review board.
(b) The identity of, or any information which alone or in combination with other reasonably available information that may be used to identify, any person whose condition or treatment has been studied under this part shall be confidential.
(c) If the [[]birth defects program[]]
or researchers intend to collect additional information directly from a patient
or patient's relative for research studies approved by an institutional review
board, the researcher shall first obtain approval for the request from the
patient's [attending physician.] primary care provider. If the
patient's current physician is not known, the patient may be contacted
directly using a method approved by an institutional review board. The use
of the additional information obtained by researchers shall be governed by
subsection (a)."
SECTION 2. Statutory material to be repealed is bracketed and stricken. New statutory material is underscored.
SECTION 3. This Act shall take effect on July 1, 2016.
Report Title:
Birth Defects Program; Use of Data
Description:
Authorizes the use of birth defects data for education of health care providers to reduce morbidity or mortality and to increase physicians' knowledge of resources available for families of persons with birth defects. (SD1)
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