Bill Text: CA SCR68 | 2023-2024 | Regular Session | Enrolled

California Senate Concurrent Resolution 68 (Prior Session Legislation)

NOTE: There are more recent revisions of this legislation. Read Latest Draft

Bill Title: GM1 Gangliosidosis Awareness Day.

Spectrum: Moderate Partisan Bill (Democrat 61-17)

Status: (Passed) 2023-06-23 - Chaptered by Secretary of State. Res. Chapter 112, Statutes of 2023. [SCR68 Detail]

Download: California-2023-SCR68-Enrolled.html

Enrolled June 20, 2023

Passed IN Senate May 18, 2023

Passed IN Assembly June 15, 2023

CALIFORNIA LEGISLATURE— 2023–2024 REGULAR SESSION

Senate Concurrent Resolution

No. 68

Introduced by Senator Padilla
(Coauthors: Senators Dodd, Hurtado, Ochoa Bogh, and Portantino)
(Coauthors: Assembly Members Chen, Flora, Lackey, Aguiar-Curry, Alanis, Alvarez, Arambula, Bains, Bauer-Kahan, Bennett, Berman, Bonta, Bryan, Calderon, Juan Carrillo, Wendy Carrillo, Cervantes, Connolly, Megan Dahle, Davies, Dixon, Mike Fong, Vince Fong, Friedman, Gabriel, Gallagher, Garcia, Gipson, Grayson, Haney, Hart, Holden, Hoover, Irwin, Jackson, Jones-Sawyer, Kalra, Lee, Low, Lowenthal, Maienschein, Mathis, Stephanie Nguyen, Ortega, Pacheco, Papan, Jim Patterson, Pellerin, Petrie-Norris, Quirk-Silva, Ramos, Rendon, Reyes, Luz Rivas, Robert Rivas, Rodriguez, Blanca Rubio, Sanchez, Santiago, Schiavo, Soria, Ta, Ting, Valencia, Villapudua, Waldron, Wallis, Ward, Weber, Wicks, Wilson, Wood, and Zbur)

May 10, 2023

Relative to GM1 Gangliosidosis Awareness Day.

LEGISLATIVE COUNSEL'S DIGEST

SCR 68, Padilla. GM1 Gangliosidosis Awareness Day.

This measure would declare May 23, 2023, as GM1 Gangliosidosis Awareness Day in California.

Fiscal Committee: NO

WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and

WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only 1 in every 100,000 to 200,000 live births; and

WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and

WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and

WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2023, as GM1 Gangliosidosis Awareness Day in California; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.