Bill Text: CA SCR68 | 2023-2024 | Regular Session | Chaptered

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Bill Title: GM1 Gangliosidosis Awareness Day.

Spectrum: Moderate Partisan Bill (Democrat 61-17)

Status: (Passed) 2023-06-23 - Chaptered by Secretary of State. Res. Chapter 112, Statutes of 2023. [SCR68 Detail]

Download: California-2023-SCR68-Chaptered.html

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Senate Concurrent Resolution No. 68

CHAPTER 112

Relative to GM1 Gangliosidosis Awareness Day.

[ Filed with Secretary of State  June 23, 2023. ]

LEGISLATIVE COUNSEL'S DIGEST

SCR 68, Padilla. GM1 Gangliosidosis Awareness Day.

This measure would declare May 23, 2023, as GM1 Gangliosidosis Awareness Day in California.

Digest Key

Fiscal Committee: NO  

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Bill Text

WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and

WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only 1 in every 100,000 to 200,000 live births; and

WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and

WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and

WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2023, as GM1 Gangliosidosis Awareness Day in California; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.