US SR152 | 2013-2014 | 113th Congress

Status

Sponsorship: Partisan Bill (Democrat 1)
Status: Introduced on May 22 2013 - 25% progression, died in committee
Action: 2013-05-22 - Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767)
Pending: Senate Health, Education, Labor, And Pensions Committee
Text: Latest bill text (Introduced) [PDF]

Summary

Expresses support for the designation of November 28, 2013, as National Holoprosencephaly Awareness Day. Urges federal agencies to: (1) continue supporting research to better understand the causes of holoprosencephaly (HPE); (2) provide better counseling to families with the genetic forms of HPE; and (3) develop new ways to treat, and potentially prevent, HPE. Calls on the people of the United States, interested groups, and affected persons to promote awareness of HPE and to take an active role in the fight to end its devastating effects.

Tracking Information

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Title

A resolution designating November 28, 2013, as "National Holoprosencephaly Awareness Day" to increase awareness and education of the disorder.

Sponsors


History

DateChamberAction
2013-05-22SenateReferred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767)
2013-05-22SenateSponsor introductory remarks on measure. (CR S3767)

Subjects


US Congress State Sources


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