US Congress Senate Bill 1391 (Prior Session Legislation)

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Spectrum: Partisan Bill (Democrat 2-0)
Status: Introduced on May 20 2015 - 25% progression, died in committee
Action: 2015-05-20 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Pending: Senate Health, Education, Labor, And Pensions Committee
Text: Latest bill text (Introduced) [PDF]

CCM-CARE Act Cerebral Cavernous Malformations Clinical Awareness, Research, and Education Act of 2015 This bill amends the Public Health Service Act to require the National Institutes of Health (NIH) to strengthen and coordinate its efforts concerning cerebral cavernous malformation (CCM). (CCM is a condition in which blood vessels in the brain and spinal cord become enlarged, which can lead to seizures, paralysis, hearing or vision loss, or bleeding in the brain.) The NIH may award grants and enter into cooperative agreements for CCM research. The NIH must: (1) award grants and contracts to plan and provide support for a network of CCM Clinical Research Centers; (2) identify and support additional centers to facilitate medical research to develop a cure for CCM and enhance medical care for CCM; and (3) convene a Cerebral Cavernous Malformations Research Consortium to develop programs for clinicians, scientists, and patients. The Centers for Disease Control and Prevention may award grants and enter into cooperative agreements for the collection, analysis, and reporting of data on CCM. The Department of Health and Human Services must award grants and enter into cooperative agreements for epidemiological activities related to CCM and must provide for a national CCM surveillance program. The Food and Drug Administration must: (1) coordinate with clinical centers, investigators, and advocates to support investigational new drug applications in order to hasten clinical trials for CCM, and (2) support appropriate requests for designation of drugs for use in rare subpopulations of CCM patients as orphan drugs. (Orphan drugs are drugs developed to treat rare medical conditions and are eligible for certain incentives.)

CCM-CARE Act Cerebral Cavernous Malformations Clinical Awareness, Research, and Education Act of 2015

Sen. Tom Udall [D-NM]

Sen. Martin Heinrich [D-NM]

Date	Chamber	Action
2015-05-20	Senate	Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

HB2480 (Same As) 2015-05-22 - Referred to the Subcommittee on Health.

Type	Source
Summary	https://www.congress.gov/bill/114th-congress/senate-bill/1391/all-info
Text	https://www.congress.gov/114/bills/s1391/BILLS-114s1391is.pdf