US HB660 | 2013-2014 | 113th Congress

Status

Sponsorship: Partisan Bill (Democrat 1)
Status: Introduced on February 13 2013 - 25% progression, died in committee
Action: 2013-02-15 - Referred to the Subcommittee on Health.
Pending: House Subcommittee on Health Committee
Text: Latest bill text (Introduced) [PDF]

Summary

Neuromyelitis Optica Consortium Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish, administer, and coordinate a National Neuromyelitis Optica (NMO) Consortium to: (1) award grants of not fewer than five years duration to conduct research with respect to the causes of, and the risk factors and biomarkers associated with, NMO (a neurological disease leading to blindness and paralysis); (2) assemble a panel of experts to provide ongoing guidance and the recommendations on research design and protocols, and (3) designate a central laboratory to collect, analyze, and aggregate data with respect to such research and to make such data and analysis available to researchers. Establishes eligibility requirements for a consortium (a partnership of two or more universities, health care organizations, or government agencies, or any combination of such entities), including that: (1) it has the capability to enroll a minimum of 25 individuals with a diagnosis of NMO as research participants from the designated catchment area (geographical area), and (2) that the catchment area does not overlap with any other consortium receiving a grant under this Act.

Tracking Information

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Title

Neuromyelitis Optica Consortium Act

Sponsors


History

DateChamberAction
2013-02-15HouseReferred to the Subcommittee on Health.
2013-02-13HouseReferred to the House Committee on Energy and Commerce.

Subjects


US Congress State Sources


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