US HB3537 | 2021-2022 | 117th Congress


Completed Legislative Action
Spectrum: Bipartisan Bill
Status: Passed on December 23 2021 - 100% progression
Action: 2021-12-23 - Became Public Law No: 117-79. (TXT | PDF)
Text: Latest bill text (Enrolled) [PDF]


Establishes grant programs to address neurodegenerative diseases, such as amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig's disease), and contains other related provisions. The Department of Health and Human Services (HHS) shall award grants to eligible entities for scientific research utilizing data from expanded access to investigational ALS treatments for individuals who are not otherwise eligible for clinical trials. The Food and Drug Administration (FDA) shall award grants to public and private entities to cover the costs of research and development of drugs that diagnose or treat ALS and other rare neurodegenerative diseases. HHS shall also establish the Public-Private Partnership for Neurodegenerative Diseases between the National Institutes of Health, the FDA, and at least one eligible entity (generally, an institution of higher education or a nonprofit organization). The partnership shall support the development and regulatory review of drugs that address ALS and other rare neurodegenerative diseases. The FDA shall publish on its website a five-year action plan for fostering the development of drugs that improve or extend the lives of people living with rare neurodegenerative diseases. The Government Accountability Office must report to Congress about the grants provided under this bill, including an analysis of the impact of such grants on research and development of treatments for ALS.

Tracking Information

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Accelerating Access to Critical Therapies for ALS Act Accelerating Access to Critical Therapies for ALS Act


Rep. Mike Quigley [D-IL]Rep. Jeff Fortenberry [R-NE]Rep. Brendan Boyle [D-PA]Rep. Seth Moulton [D-MA]
Rep. Mike Garcia [R-CA]Rep. Salud Carbajal [D-CA]Rep. John Larson [D-CT]Rep. Sheila Jackson-Lee [D-TX]
Rep. Madeleine Dean [D-PA]Rep. Thomas Suozzi [D-NY]Rep. Nydia Velazquez [D-NY]Rep. Mike Levin [D-CA]
Rep. Theodore Deutch [D-FL]Rep. Eleanor Norton [D-DC]Rep. William Timmons [R-SC]Rep. Kevin Brady [R-TX]
Rep. David McKinley [R-WV]Rep. Jeff Van Drew [R-NJ]Rep. Ken Calvert [R-CA]Rep. William Keating [D-MA]
Rep. Mario Diaz-Balart [R-FL]Rep. Earl Carter [R-GA]Rep. Lucy McBath [D-GA]Rep. Jason Smith [R-MO]
Rep. Michael Turner [R-OH]Rep. Jeff Duncan [R-SC]Rep. Jody Hice [R-GA]Rep. Don Young [R-AK]
Rep. Adrian Smith [R-NE]Rep. Glenn Grothman [R-WI]Rep. C.A. Ruppersberger [D-MD]Rep. John Rutherford [R-FL]
Rep. David Schweikert [R-AZ]Rep. Tim Ryan [D-OH]Rep. Jason Crow [D-CO]Rep. Brett Guthrie [R-KY]
Rep. Brian Fitzpatrick [R-PA]Rep. Betty McCollum [D-MN]Rep. Austin Scott [R-GA]Rep. James Baird [R-IN]
Rep. Rodney Davis [R-IL]Rep. David Valadao [R-CA]Rep. John Moolenaar [R-MI]Rep. Tom Malinowski [D-NJ]
Rep. Lucille Roybal-Allard [D-CA]Rep. Donald Payne [D-NJ]Rep. Stephen Lynch [D-MA]Rep. Jaime Herrera Beutler [R-WA]
Rep. Ken Buck [R-CO]Rep. Markwayne Mullin [R-OK]Rep. Raul Grijalva [D-AZ]Rep. Jim Cooper [D-TN]
Rep. Jimmy Panetta [D-CA]Rep. Andy Kim [D-NJ]Rep. Albio Sires [D-NJ]Rep. Barbara Lee [D-CA]
Rep. Gwen Moore [D-WI]Rep. Janice Schakowsky [D-IL]Rep. Mike Thompson [D-CA]Rep. Ruben Gallego [D-AZ]
Rep. Cindy Axne [D-IA]Rep. Grace Napolitano [D-CA]Rep. Adriano Espaillat [D-NY]Rep. Ayanna Pressley [D-MA]
Rep. Charles Fleischmann [R-TN]Rep. Guy Reschenthaler [R-PA]Rep. David Cicilline [D-RI]Rep. Diana DeGette [D-CO]
Rep. Tim Burchett [R-TN]Rep. Doug LaMalfa [R-CA]Rep. Grace Meng [D-NY]Rep. Julia Brownley [D-CA]
Rep. David Trone [D-MD]Rep. Ann Kuster [D-NH]Rep. Gerald Connolly [D-VA]Rep. Gregory Meeks [D-NY]
Rep. Ann Kirkpatrick [D-AZ]Rep. Val Demings [D-FL]Rep. Tom O'Halleran [D-AZ]Rep. Ted Lieu [D-CA]
Rep. Mark DeSaulnier [D-CA]Rep. John Garamendi [D-CA]Rep. Derek Kilmer [D-WA]Rep. Bobby Rush [D-IL]
Rep. Michael McCaul [R-TX]Rep. Tom McClintock [R-CA]Rep. Kweisi Mfume [D-MD]Rep. Conor Lamb [D-PA]
Rep. Al Green [D-TX]Rep. Eric Swalwell [D-CA]Rep. Josh Gottheimer [D-NJ]Rep. Chellie Pingree [D-ME]
Rep. Marcy Kaptur [D-OH]Rep. Drew Ferguson [R-GA]Rep. Mary Gay Scanlon [D-PA]Rep. Don Bacon [R-NE]
Rep. Robert Wittman [R-VA]Rep. Joseph Morelle [D-NY]Rep. Mark Amodei [R-NV]Rep. Michael Waltz [R-FL]
Rep. Terri Sewell [D-AL]Rep. Rebecca Sherrill [D-NJ]Rep. Bill Posey [R-FL]Rep. Tom Cole [R-OK]
Rep. John Curtis [R-UT]Rep. Andre Carson [D-IN]Rep. Anthony Gonzalez [R-OH]Rep. Katherine Clark [D-MA]
Rep. Chrissy Houlahan [D-PA]Rep. Marie Newman [D-IL]Rep. Christopher Smith [R-NJ]Rep. Darin LaHood [R-IL]
Rep. Jim Costa [D-CA]Rep. Brad Sherman [D-CA]Rep. Steve Chabot [R-OH]Rep. Pete Aguilar [D-CA]
Rep. Joyce Beatty [D-OH]Rep. Debbie Wasserman Schultz [D-FL]Rep. Sharice Davids [D-KS]Rep. French Hill [R-AR]
Rep. Carolyn Maloney [D-NY]Rep. Vicente Gonzalez [D-TX]Rep. Jennifer Wexton [D-VA]Rep. Jared Huffman [D-CA]
Rep. Paul Tonko [D-NY]Rep. Elaine Luria [D-VA]Rep. Sanford Bishop [D-GA]Rep. Luis Correa [D-CA]
Rep. John Katko [R-NY]Rep. Bill Foster [D-IL]Rep. Susan Wild [D-PA]Rep. Steve Womack [R-AR]
Rep. Deborah Ross [D-NC]Rep. Lois Frankel [D-FL]Rep. Fred Keller [R-PA]Rep. Chris Stewart [R-UT]
Rep. Mo Brooks [R-AL]Rep. Jake Auchincloss [D-MA]Rep. Peter Welch [D-VT]Rep. Joe Wilson [R-SC]
Rep. Maria Salazar [R-FL]Rep. Lori Trahan [D-MA]Rep. Elise Stefanik [R-NY]Rep. Doris Matsui [D-CA]
Rep. Matthew Cartwright [D-PA]Rep. John Yarmuth [D-KY]Rep. Bradley Schneider [D-IL]Rep. Antonio Delgado [D-NY]
Rep. Bruce Westerman [R-AR]Rep. Jesus Garcia [D-IL]Rep. Kathy Manning [D-NC]Rep. Katie Porter [D-CA]
Rep. Eric Crawford [R-AR]Rep. Peter DeFazio [D-OR]Rep. James Langevin [D-RI]Rep. Kathleen Rice [D-NY]
Rep. Jared Golden [D-ME]Rep. Pete Sessions [R-TX]Rep. Josh Harder [D-CA]Rep. Alan Lowenthal [D-CA]
Rep. Darren Soto [D-FL]Rep. Jamie Raskin [D-MD]Rep. David Joyce [R-OH]Rep. Doug Lamborn [R-CO]
Rep. Henry Johnson [D-GA]Rep. Nanette Barragan [D-CA]Rep. Neal Dunn [R-FL]Rep. Joe Courtney [D-CT]
Rep. Troy Carter [D-LA]Rep. Frank Lucas [R-OK]Rep. Tom Emmer [R-MN]Rep. Sam Graves [R-MO]
Rep. Ilhan Omar [D-MN]Rep. Scott Peters [D-CA]Rep. Angela Craig [D-MN]Rep. Danny Davis [D-IL]
Rep. Ami Bera [D-CA]Rep. Gus Bilirakis [R-FL]Rep. Marilyn Strickland [D-WA]Rep. Bob Gibbs [R-OH]
Rep. Dan Meuser [R-PA]Rep. Brian Higgins [D-NY]Rep. Mike Gallagher [R-WI]Rep. Al Lawson [D-FL]
Rep. Burgess Owens [R-UT]Rep. Mariannette Miller-Meeks [R-IA]Rep. Tony Cardenas [D-CA]Rep. Brad Wenstrup [R-OH]
Rep. Sara Jacobs [D-CA]Rep. Ed Perlmutter [D-CO]Rep. Vicky Hartzler [R-MO]Rep. Pete Stauber [R-MN]
Rep. Raja Krishnamoorthi [D-IL]Rep. Daniel Kildee [D-MI]Rep. Elissa Slotkin [D-MI]Rep. John Sarbanes [D-MD]
Rep. Morgan Griffith [R-VA]Rep. Abigail Spanberger [D-VA]Rep. James McGovern [D-MA]Rep. Ro Khanna [D-CA]
Rep. Tracey Mann [R-KS]Rep. Andy Biggs [R-AZ]Rep. Sean Maloney [D-NY]Rep. Glenn Thompson [R-PA]
Rep. Suzan DelBene [D-WA]Rep. Jerrold Nadler [D-NY]Rep. Linda Sanchez [D-CA]Rep. Jerry McNerney [D-CA]
Rep. Bonnie Coleman [D-NJ]Rep. Elizabeth Fletcher [D-TX]Rep. Brian Mast [R-FL]Rep. Greg Stanton [D-AZ]
Rep. Adam Smith [D-WA]Rep. Randy Weber [R-TX]Rep. Robin Kelly [D-IL]Rep. Mondaire Jones [D-NY]
Rep. Joseph Neguse [D-CO]Rep. Kaialii Kahele [D-HI]Rep. James Himes [D-CT]Rep. Bill Huizenga [R-MI]
Rep. Clay Higgins [R-LA]Rep. Jack Bergman [R-MI]Rep. Troy Balderson [R-OH]Rep. David Scott [D-GA]
Rep. Robert Aderholt [R-AL]Rep. Kelly Armstrong [R-ND]Rep. Scott DesJarlais [R-TN]Rep. Barry Moore [R-AL]
Rep. Adam Schiff [D-CA]Rep. Bennie Thompson [D-MS]Rep. Young Kim [R-CA]Rep. Randy Feenstra [R-IA]
Rep. Alma Adams [D-NC]Rep. Trent Kelly [R-MS]Rep. Colin Allred [D-TX]Rep. Steve Cohen [D-TN]
Rep. Anthony Brown [D-MD]Rep. Bill Johnson [R-OH]Rep. Stephanie Murphy [D-FL]Rep. Blaine Luetkemeyer [R-MO]
Rep. Nikema Williams [D-GA]Rep. Paul Gosar [R-AZ]Rep. Tom Tiffany [R-WI]Rep. Sean Casten [D-IL]
Rep. Liz Cheney [R-WY]Rep. Jahana Hayes [D-CT]Rep. Hakeem Jeffries [D-NY]Rep. Lloyd Smucker [R-PA]
Rep. Zoe Lofgren [D-CA]Rep. Kevin Hern [R-OK]Rep. Claudia Tenney [R-NY]Rep. Suzanne Bonamici [D-OR]
Rep. Michelle Steel [R-CA]Rep. Andrew Garbarino [R-NY]Rep. Donald Norcross [D-NJ]Rep. Veronica Escobar [D-TX]
Rep. Kat Cammack [R-FL]Rep. Jimmy Gomez [D-CA]Rep. Ritchie Torres [D-NY]Rep. Jamaal Bowman [D-NY]
Rep. Rashida Tlaib [D-MI]Rep. Karen Bass [D-CA]Rep. Frederica Wilson [D-FL]Rep. Yvette Clarke [D-NY]
Rep. Andy Levin [D-MI]Rep. Haley Stevens [D-MI]Rep. Teresa Fernandez [D-NM]Rep. Maxine Waters [D-CA]
Rep. Ron Kind [D-WI]Rep. Henry Cuellar [D-TX]Rep. Dean Phillips [D-MN]Rep. James Hagedorn [R-MN]
Rep. Steven Palazzo [R-MS]Rep. Lisa Rochester [D-DE]Rep. Blake Moore [R-UT]Rep. Earl Blumenauer [D-OR]
Rep. Kay Granger [R-TX]Rep. Pramila Jayapal [D-WA]Rep. Steven Horsford [D-NV]Rep. Ben Cline [R-VA]
Rep. Jackie Speier [D-CA]Rep. Jerry Carl [R-AL]Rep. David Cawthorn [R-NC]Rep. Greg Murphy [R-NC]
Rep. Jay Obernolte [R-CA]Rep. Mike Kelly [R-PA]Rep. Steve Scalise [R-LA]Rep. Nicole Malliotakis [R-NY]
Rep. Dwight Evans [D-PA]Rep. Lee Zeldin [R-NY]Rep. Michael Simpson [R-ID]Rep. Greg Steube [R-FL]
Rep. Mike Johnson [R-LA]Rep. Barry Loudermilk [R-GA]Rep. Ashley Hinson [R-IA]Rep. Jacob Laturner [R-KS]
Rep. Carolyn Bourdeaux [D-GA]Rep. Eddie Johnson [D-TX]Rep. Ed Case [D-HI]Rep. Christopher Jacobs [R-NY]
Rep. Stephanie Bice [R-OK]Rep. Ann Wagner [R-MO]Rep. Lance Gooden [R-TX]Rep. Andy Harris [R-MD]
Rep. Ronny Jackson [R-TX]Rep. Alexander Mooney [R-WV]Rep. Michael Burgess [R-TX]Rep. Julia Letlow [R-LA]
Rep. Fred Upton [R-MI]Rep. Kim Schrier [D-WA]Rep. G. Butterfield [D-NC]Rep. Cliff Bentz [R-OR]
Rep. Michelle Fischbach [R-MN]Rep. Garret Graves [R-LA]Rep. Tim Walberg [R-MI]Rep. Robert Good [R-VA]
Rep. Norma Torres [D-CA]Rep. Christopher Pappas [D-NH]Rep. Lisa McClain [R-MI]Rep. Michael Guest [R-MS]
Rep. Scott Franklin [R-FL]Rep. Louie Gohmert [R-TX]Rep. David Rouzer [R-NC]Rep. Mike Bost [R-IL]
Rep. Roger Williams [R-TX]Rep. Jim Banks [R-IN]Rep. Brenda Lawrence [D-MI]Rep. Charlie Crist [D-FL]
Rep. Kathy Castor [D-FL]Rep. Anna Eshoo [D-CA]Rep. Dan Crenshaw [R-TX]Rep. Dan Newhouse [R-WA]

Roll Calls

2021-12-08 - House - On motion to suspend the rules and pass the bill, as amended (Y: 423 N: 3 NV: 0 Abs: 7) [PASS]


2021-12-23HouseBecame Public Law No: 117-79. (TXT | PDF)
2021-12-23HouseSigned by President.
2021-12-23HousePresented to President.
2021-12-17SenateMessage on Senate action sent to the House.
2021-12-16SenatePassed Senate without amendment by Voice Vote. (consideration: CR S9242)
2021-12-09SenateReceived in the Senate, read twice.
2021-12-08HouseMotion to reconsider laid on the table Agreed to without objection.
2021-12-08HouseOn motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 423 - 3 (Roll no. 415). (text: CR H7509-7511)
2021-12-08HouseConsidered as unfinished business. (consideration: CR H7535-7536)
2021-12-08HouseAt the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
2021-12-08HouseDEBATE - The House proceeded with forty minutes of debate on H.R. 3537.
2021-12-08HouseConsidered under suspension of the rules. (consideration: CR H7509-7514)
2021-12-08HouseMr. Pallone moved to suspend the rules and pass the bill, as amended.
2021-12-08HousePlaced on the Union Calendar, Calendar No. 148.
2021-12-08HouseReported (Amended) by the Committee on Energy and Commerce. H. Rept. 117-207.
2021-11-17HouseOrdered to be Reported (Amended) by Voice Vote.
2021-11-17HouseCommittee Consideration and Mark-up Session Held.
2021-11-04HouseForwarded by Subcommittee to Full Committee (Amended) by Voice Vote .
2021-11-04HouseSubcommittee Consideration and Mark-up Session Held.
2021-05-26HouseReferred to the Subcommittee on Health.
2021-05-25HouseReferred to the House Committee on Energy and Commerce.
2021-05-25HouseIntroduced in House

Same As/Similar To

SB1813 (Same As) 2021-05-25 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.


US Congress State Sources

Bill Comments