US Congress House Bill 2696 (Prior Session Legislation)

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Sponsorship: Slight Partisan Bill (Democrat 22-10)
Status: Introduced on July 29 2011 - 25% progression, died in committee
Action: 2011-08-05 - Referred to the Subcommittee on Health.
Pending: House Subcommittee on Health Committee
Text: Latest bill text (Introduced) [PDF]

Trisomy 21 Research Resource Act of 2011 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development, to expand and intensify NIH programs with respect to research and related activities concerning Down syndrome. Requires the Director of NIH to publish a research plan on Down syndrome and update it every five years or as appropriate. Authorizes the Director of NIH to: (1) conduct basic, clinical, and translational research on Down syndrome; (2) award a grant or contract for a registry of individuals with Down syndrome; (3) establish a database including the names, contact information, and each medical condition of individuals with Down syndrome; and (4) expand one or more tissue banks maintained or supported by NIH to identify any tissue harvested from a tissue donor with Down syndrome. Requires consent before including an individual's information in the registry, the database, or the tissue bank. Authorizes the Director of NIH to provide for the participation of NIH agencies in a consortium to facilitate the exchange of information and to make the research effort on Down syndrome more efficient and effective by ensuring consistent communication, minimizing duplication of effort, and integrating the varied perspectives of partner agencies, organizations, and individuals. Authorizes the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) award grants and cooperative agreements for the collection, analysis, and reporting of data on Down syndrome; and (2) carry out epidemiological activities regarding Down syndrome.

Trisomy 21 Research Resource Act of 2011

Rep. Cathy McMorris Rodgers [R-WA]	Rep. Jason Altmire [D-PA]	Rep. Robert Andrews [D-NJ]	Rep. Spencer Bachus [R-AL]
Rep. Suzanne Bonamici [D-OR]	Rep. Ann Buerkle [R-NY]	Rep. Michael Capuano [D-MA]	Rep. Steve Cohen [D-TN]
Rep. Gerald Connolly [D-VA]	Rep. Lloyd Doggett [D-TX]	Rep. Jeff Fortenberry [R-NE]	Rep. Barney Frank [D-MA]
Rep. Elton Gallegly [R-CA]	Rep. James Himes [D-CT]	Rep. Michael Honda [D-CA]	Rep. Eddie Johnson [D-TX]
Rep. John Lewis [D-GA]	Rep. Zoe Lofgren [D-CA]	Rep. James McGovern [D-MA]	Rep. Michael Michaud [D-ME]
Rep. James Moran [D-VA]	Rep. Bill Posey [R-FL]	Rep. David Rivera [R-FL]	Rep. Steven Rothman [D-NJ]
Sen. Adam Schiff [D-CA]	Rep. Pete Sessions [R-TX]	Rep. Jackie Speier [D-CA]	Rep. Patrick Tiberi [R-OH]
Rep. Paul Tonko [D-NY]	Rep. Niki Tsongas [D-MA]	Sen. Chris Van Hollen [D-MD]	Rep. Robert Wittman [R-VA]

Date	Chamber	Action
2011-08-05	House	Referred to the Subcommittee on Health.
2011-07-29	House	Referred to the House Committee on Energy and Commerce.

SB1841 (Same As) 2011-11-10 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Type	Source
Summary	https://www.congress.gov/bill/112th-congress/house-bill/2696/all-info
Text	https://www.congress.gov/112/bills/hr2696/BILLS-112hr2696ih.pdf