Bill Text: TX HB3673 | 2021-2022 | 87th Legislature | Engrossed
Bill Title: Relating to the establishment of a sickle cell disease registry.
Spectrum: Moderate Partisan Bill (Democrat 14-2)
Status: (Engrossed - Dead) 2021-05-14 - Referred to Health & Human Services [HB3673 Detail]
Download: Texas-2021-HB3673-Engrossed.html
| 87R11576 SRA-D | ||
| By: J. Johnson of Harris, Thompson of Harris, | H.B. No. 3673 | |
| Klick, Oliverson, Rose, et al. | ||
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| relating to the establishment of a sickle cell disease registry. | ||
| BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: | ||
| SECTION 1. Subtitle B, Title 2, Health and Safety Code, is | ||
| amended by adding Chapter 52A to read as follows: | ||
| CHAPTER 52A. SICKLE CELL DISEASE REGISTRY | ||
| Sec. 52A.001. DEFINITION. In this chapter, "health care | ||
| facility" means: | ||
| (1) a hospital licensed under Chapter 241; or | ||
| (2) any other facility that provides diagnostic or | ||
| treatment services to patients with sickle cell disease. | ||
| Sec. 52A.002. REGISTRY; CONTENTS. (a) The department shall | ||
| establish and maintain a registry of individuals diagnosed with | ||
| sickle cell disease in accordance with this chapter for use as a | ||
| single repository of accurate, complete records to aid in the cure | ||
| and treatment of sickle cell disease in this state. | ||
| (b) The sickle cell disease registry must include: | ||
| (1) a record of individuals in this state who have been | ||
| diagnosed with sickle cell disease; and | ||
| (2) any other information regarding individuals who | ||
| have been diagnosed with sickle cell disease that the executive | ||
| commissioner considers necessary and appropriate for inclusion on | ||
| the registry. | ||
| Sec. 52A.003. DATA FROM HEALTH CARE FACILITIES. A health | ||
| care facility shall provide to the department, in the form and | ||
| manner prescribed by the department, data regarding individuals who | ||
| have been diagnosed with sickle cell disease. | ||
| Sec. 52A.004. RULES. The executive commissioner by rule | ||
| shall develop guidelines to: | ||
| (1) obtain information regarding individuals | ||
| diagnosed with sickle cell disease from health care facilities; | ||
| (2) protect the confidentiality of the individuals in | ||
| accordance with Section 159.002, Occupations Code; and | ||
| (3) ensure that the registry is developed in a manner | ||
| consistent with the Health Insurance Portability and | ||
| Accountability Act of 1996 (Pub. L. No. 104-191), regulations | ||
| adopted under that Act, and other applicable laws and regulations | ||
| governing disclosure of health information. | ||
| Sec. 52A.005. REPORTS. (a) The department shall publish an | ||
| annual report to the legislature of the information obtained under | ||
| this chapter. | ||
| (b) The department, in cooperation with other sickle cell | ||
| disease reporting organizations and research institutions, may | ||
| publish reports the department determines are necessary to carry | ||
| out the purposes of this chapter. | ||
| SECTION 2. As soon as practicable after the effective date | ||
| of this act, the executive commissioner of the Health and Human | ||
| Services Commission shall adopt rules necessary to implement | ||
| Chapter 52A, Health and Safety Code, as added by this Act. | ||
| SECTION 3. This Act takes effect September 1, 2021. | ||
