Bill Text: OR HB2236 | 2011 | Regular Session | Introduced
Bill Title: Relating to birth anomalies.
Spectrum: Unknown
Status: (Failed) 2011-06-30 - In committee upon adjournment. [HB2236 Detail]
Download: Oregon-2011-HB2236-Introduced.html
76th OREGON LEGISLATIVE ASSEMBLY--2011 Regular Session
NOTE: Matter within { + braces and plus signs + } in an
amended section is new. Matter within { - braces and minus
signs - } is existing law to be omitted. New sections are within
{ + braces and plus signs + } .
LC 2069
House Bill 2236
Ordered printed by the Speaker pursuant to House Rule 12.00A (5).
Presession filed (at the request of House Interim Committee on
Human Services for March of Dimes, Oregon Chapter)
SUMMARY
The following summary is not prepared by the sponsors of the
measure and is not a part of the body thereof subject to
consideration by the Legislative Assembly. It is an editor's
brief statement of the essential features of the measure as
introduced.
Directs Oregon Health Authority to establish registry and
advisory committee related to birth anomalies and adverse
pregnancy outcomes.
A BILL FOR AN ACT
Relating to birth anomalies.
Be It Enacted by the People of the State of Oregon:
SECTION 1. { + (1) As used in this section:
(a) 'Adverse pregnancy outcome' means stillbirth, miscarriage,
prematurity or fetal growth restriction.
(b) 'Birth anomaly' means any abnormality of structure,
function or body metabolism present at birth.
(c) 'Facility' means a:
(A) Hospital;
(B) Birthing center;
(C) Clinic that regularly provides genetic counseling, prenatal
diagnostic services or services for the diagnosis or treatment of
birth anomalies; or
(D) Any other facility designated by rule of the Oregon Health
Authority.
(2) The Oregon Health Authority shall:
(a) Establish a uniform and statewide registry and tracking
system for birth anomalies and adverse pregnancy outcomes;
(b) Adopt rules:
(A) Requiring all facilities to identify to the authority
persons who are six years of age or younger and are newly
diagnosed with a birth anomaly, and persons discharged with an
adverse pregnancy outcome;
(B) Requiring all facilities to make available to the authority
certain medical information concerning persons who have been
newly diagnosed with a birth anomaly and concerning persons
discharged with an adverse pregnancy outcome; and
(C) Ensuring that personally identifiable information contained
in the registry is not released to the public and that disclosure
of personally identifiable information contained in the registry
is in compliance with state and federal laws regarding
confidentiality of health records;
(c) Analyze the information collected under this subsection to:
(A) Investigate the incidence, trends and causes of birth
anomalies and adverse pregnancy outcomes; and
(B) Develop, assess and evaluate measures to prevent birth
anomalies and adverse pregnancy outcomes; and
(d) Appoint an advisory committee, in collaboration with the
March of Dimes, to advise the authority in establishing and
operating the registry and tracking system. The authority shall
include health professionals and community members as members of
the advisory committee. Members of the advisory committee are not
entitled to compensation or reimbursement for expenses and serve
as volunteers.
(3) The authority shall maintain a record of all persons who
are permitted to access the information in the registry. Nothing
in this section prohibits the publication of statistical
information compiled from the registry. + }
SECTION 2. { + (1) When the Oregon Health Authority determines
that the authority has received a sufficient legislative
appropriation or other funding to carry out the provisions of
section 1 of this 2011 Act, the authority shall adopt a rule so
indicating. The authority shall notify Legislative Counsel upon
adoption of the rule.
(2) Section 1 of this 2011 Act becomes operative on the date
the rule described in subsection (1) of this section is
adopted. + }
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