Bill Text: NY S02386 | 2013-2014 | General Assembly | Introduced

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Bill Title: Enacts Aidan's law to require adrenoleukodystrophy screening of newborns.

Spectrum: Bipartisan Bill

Status: (Introduced - Dead) 2013-02-28 - REPORTED AND COMMITTED TO FINANCE [S02386 Detail]

Download: New_York-2013-S02386-Introduced.html

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                           S T A T E   O F   N E W   Y O R K
       ________________________________________________________________________
                                         2386
                              2013-2014 Regular Sessions
                                   I N  S E N A T E
                                   January 17, 2013
                                      ___________
       Introduced  by  Sen.  ADAMS  -- read twice and ordered printed, and when
         printed to be committed to the Committee on Health
       AN ACT to amend the public health law, in relation to requiring  adreno-
         leukodystrophy screening of newborns
         THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
       BLY, DO ENACT AS FOLLOWS:
    1    Section 1. This act shall be known and may be cited as "Aidan's Law".
    2    S 2. Subdivision (a) of section 2500-a of the public  health  law,  as
    3  amended  by  chapter  863  of  the  laws  of 1986, is amended to read as
    4  follows:
    5    (a) It shall be the duty of the administrative officer or other person
    6  in charge of each institution caring for infants  twenty-eight  days  or
    7  less  of  age  and the person required in pursuance of the provisions of
    8  section forty-one hundred thirty of this chapter to register  the  birth
    9  of  a child, to cause to have administered to every such infant or child
   10  in its or his care a test for phenylketonuria,  homozygous  sickle  cell
   11  disease,  hypothyroidism,  branched-chain ketonuria, galactosemia, homo-
   12  cystinuria, ADRENOLEUKODYSTROPHY and such other diseases and  conditions
   13  as may from time to time be designated by the commissioner in accordance
   14  with  rules  or regulations prescribed by the commissioner. Testing, the
   15  recording of the results of such tests, tracking, follow-up reviews  and
   16  educational  activities  shall  be  performed  at such times and in such
   17  manner as may be prescribed by the commissioner. The commissioner  shall
   18  promulgate  regulations  setting  forth  the manner in which information
   19  describing the purposes of the requirements of  this  section  shall  be
   20  disseminated to parents or a guardian of the infant tested.
   21    S 3. This act shall take effect on the one hundred eightieth day after
   22  it shall have become a law; provided, however, that effective immediate-
   23  ly,  the  addition,  amendment  and/or  repeal of any rule or regulation
   24  necessary for the implementation of this act on its effective  date  are
   25  authorized  and  directed  to  be  made  and completed on or before such
   26  effective date.
        EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                             [ ] is old law to be omitted.
                                                                  LBD03768-01-3