Bill Text: NY S01321 | 2023-2024 | General Assembly | Introduced


Bill Title: Clarifies certain provisions of the New York state living donor support act.

Spectrum: Partisan Bill (Democrat 1-0)

Status: (Introduced) 2023-02-06 - SUBSTITUTED BY A2377 [S01321 Detail]

Download: New_York-2023-S01321-Introduced.html



                STATE OF NEW YORK
        ________________________________________________________________________

                                          1321

                               2023-2024 Regular Sessions

                    IN SENATE

                                    January 11, 2023
                                       ___________

        Introduced  by  Sen.  RIVERA -- read twice and ordered printed, and when
          printed to be committed to the Committee on Rules

        AN ACT to amend the public health law and the social  services  law,  in
          relation to support of living organ donation

          The  People of the State of New York, represented in Senate and Assem-
        bly, do enact as follows:

     1    Section 1. Subdivisions 2 and 5 of section 4370 of the  public  health
     2  law,  as  added  by  a  chapter  of the laws of 2022 amending the public
     3  health law, the tax law and the social services law relating to  support
     4  of  living  organ  donation, as proposed in legislative bills numbers S.
     5  1594 and A.  146-A, are amended to read as follows:
     6    2. "Living  donor"  means:  (a)  an  individual  who  makes  a  living
     7  donation; or
     8    (b)  an  individual who incurs expenses as part of the living donation
     9  screening and evaluation process but that, through no decision or  judg-
    10  ment of their own, does not become an actual living donor.
    11    5.  "Paired  donation"  means  a  living  donation in which the living
    12  donor's organ is incompatible with the ultimate intended  recipient  and
    13  the  living donor's organ is transplanted into another recipient, and in
    14  turn another living donor makes a living donation, directly  or  through
    15  one  or more paired donations, to the ultimate intended recipient of the
    16  initial living donor.
    17    § 2. Paragraph (a) of subdivision 2 of  section  4371  of  the  public
    18  health  law,  as  added  by  a  chapter of the laws of 2022 amending the
    19  public health law, the tax law and the social services law  relating  to
    20  support  of  living  organ  donation,  as  proposed in legislative bills
    21  numbers S. 1594 and A. 146-A, is amended to read as follows:
    22    (a) Subject to appropriations therefor,  the  program  shall  pay  the
    23  living  donor  expenses for living donors who are residents of the state
    24  and make a living donation  in  which  the  ultimate  recipient,  either
    25  directly  or  through  paired  donation  is a resident of the state. The

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD04223-01-3

        S. 1321                             2

     1  commissioner through regulations shall establish eligible  living  donor
     2  expenses  that  are  eligible  for reimbursement under the program which
     3  shall include at a minimum:   lost wages  (including  demonstrated  lost
     4  non-employment income)[;] or the economic value of sick or vacation days
     5  expended;  travel  and  lodging, child care and elder care expenses; and
     6  costs of medications  and  care  associated  with  the  living  donation
     7  surgery  that  are  not covered by health insurance. The total period of
     8  time related to lost wages or expended sick or vacation days  shall  not
     9  exceed four weeks unless special circumstances are demonstrated, such as
    10  the nature of physical labor required for the living donor's employment;
    11  provided that the total period shall in no event exceed eight weeks. The
    12  commissioner  may, by regulation, impose [a limitation] reasonable limi-
    13  tations on: (i) the amount of lost wages for a living  donor  making  an
    14  income  in  excess of an annual rate of one hundred twenty-five thousand
    15  dollars; or (ii) the amount of  living  donor  expenses  above  fourteen
    16  thousand dollars for any single living donor; and may include additional
    17  living   donor  expenses  including  reimbursement  for  costs  of  care
    18  performed by relatives or family members of the living donor.
    19    § 3. Section 4372 of the public health law, as added by a  chapter  of
    20  the  laws  of  2022  amending the public health law, the tax law and the
    21  social services law relating to support of  living  organ  donation,  as
    22  proposed  in  legislative bills numbers S. 1594 and A. 146-A, is amended
    23  to read as follows:
    24    § 4372. Transplant education of patients with kidney  disease  or  end
    25  stage  renal failure. [For any patient with chronic kidney disease stage
    26  four or end stage renal disease, a nephrologist managing  the  patient's
    27  treatment  or,  if the patient is not under the treatment of a nephrolo-
    28  gist then the patient's primary care practitioner, shall consider wheth-
    29  er the patient is  a  candidate  for  transplantation  under  applicable
    30  professional  and  legal guidelines, and, if the patient appears to be a
    31  candidate for  transplantation,  provide  the  patient  with  transplant
    32  education  materials  including those prepared under section two hundred
    33  seven of this chapter] Nephrologists and  primary  care  providers  with
    34  primary  responsibility  of  caring  for  patients  with  chronic kidney
    35  disease stage three or four, or end stage renal disease,  shall  provide
    36  patients  with  current and evidence based printed educational materials
    37  about the progression of kidney  disease  and  relevant  prevention  and
    38  treatment options, including transplantation.
    39    §  4.  Paragraph  (d)  of  subdivision  1 of section 207 of the public
    40  health law, as amended by a chapter of the laws  of  2022  amending  the
    41  public  health  law, the tax law and the social services law relating to
    42  support of living organ  donation,  as  proposed  in  legislative  bills
    43  numbers S.  1594 and A. 146-A, is amended to read as follows:
    44    (d)  The need for and importance of organ and tissue donation, includ-
    45  ing living donation, including information about being registered as  an
    46  organ  and  tissue  donor  and executing documents of gift under article
    47  forty-three of this chapter; and information to increase patient  under-
    48  standing  about  the  medical option of transplant and its desirability.
    49  [In implementing this paragraph, the] The department shall consult  with
    50  the transplant council [in the department] on the production of any such
    51  information  and ensure that such information is culturally and linguis-
    52  tically appropriate for all recipients.
    53    § 5. Section 365-o of the social services law, as added by  a  chapter
    54  of  the laws of 2022 amending the public health law, the tax law and the
    55  social services law relating to support of  living  organ  donation,  as

        S. 1321                             3

     1  proposed  in  legislative bills numbers S. 1594 and A. 146-A, is amended
     2  to read as follows:
     3    §  365-o.  Provision and coverage of services for living organ donors.
     4  This section applies in the case of a living donor under section  forty-
     5  three  hundred  seventy-one  of  the public health law who is [otherwise
     6  eligible for]  enrolled  in  medical  assistance  under  this  [article.
     7  Services for that person covered under that section that would otherwise
     8  be  health care services under this article shall be paid for under this
     9  article and not under such section] title.  Living  donor  expenses  for
    10  eligible  individuals  under  section forty-three hundred seventy-one of
    11  the public health law that are covered benefits  under  this  title  are
    12  excluded  from  reimbursement  under  the  living donor support program,
    13  defined in section forty-three hundred seventy of the public health law,
    14  provided federal financial participation is available.
    15    § 6. This act shall take effect on the  same  date  and  in  the  same
    16  manner  as a chapter of the laws of 2022 amending the public health law,
    17  the tax law and the social services law relating to  support  of  living
    18  organ  donation, as proposed in legislative bills numbers S. 1594 and A.
    19  146-A, takes effect.
feedback