Bill Text: NY K00887 | 2019-2020 | General Assembly | Introduced

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Bill Title: Memorializing Governor Andrew M. Cuomo to proclaim March 26, 2020, as Nephrotic Syndrome Awareness Day in the State of New York

Spectrum: Slight Partisan Bill (Democrat 2-1)

Status: (Passed) 2020-06-10 - adopted [K00887 Detail]

Download: New_York-2019-K00887-Introduced.html

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Assembly Resolution No. 887

BY: M. of A. Ra

        MEMORIALIZING Governor Andrew M. Cuomo to proclaim
        March  26, 2020, as Nephrotic Syndrome Awareness Day
        in the State of New York

  WHEREAS, New York State has long been committed to shining  a  light
on those who are affected by rare diseases and afflictions; and

  WHEREAS,  It  is increasingly being recognized that those who suffer
from rare diseases and syndromes are often  left  without  a  voice  and
without  proper  access  to  treatments  due  to  the  lack of knowledge
regarding such diseases; and

  WHEREAS, It is the sense of this  Legislative  Body  to  memorialize
Governor  Andrew  M.  Cuomo  to  proclaim  Thursday,  March 26, 2020, as
Nephrotic Syndrome Awareness Day in the State of New York; and

  WHEREAS,   Nephrotic   Syndrome    FSGS,    or    Focal    Segmental
Glomerulosclerosis,  is  a  collection  of symptoms stemming from kidney
damage which afflicts roughly five in every 100,000 individuals; and

  WHEREAS, This syndrome can be caused by a variety of forms of kidney
damage and can have lifelong consequences for the person with  Nephrotic
Syndrome,   including  multiple  hospitalizations,  a  rigorous  medical
routine, the need for kidney transplants and, unfortunately, even death;
and

  WHEREAS, Each year 8,000  Americans  are  diagnosed  with  Nephrotic
Syndrome,  contributing  to the millions currently living with some form
of chronic kidney disease; and

  WHEREAS, It is estimated that within the next 10 years, one  in  two
people in the United States will be touched by kidney disease; and

  WHEREAS,  NephCure  Kidney  International  has made great strides in
accelerating treatments for Nephrotic Syndrome and FSGS patients; and

  WHEREAS,  Recognizing  the  importance  of  and  the  impact   which
increases  awareness can directly affect the lives of individuals living
with Nephrotic Syndrome; in recognizing this day, the State of New  York
strives to increase the general knowledge of this illness, allowing more
resources to be directed to finding treatments and a cure; and

  WHEREAS,  It is imperative that there be greater public awareness of
this devastating medical condition and more must  be  done  to  increase
activity  at the local, state and national levels to support much needed
Nephrotic Syndrome research; now, therefore, be it

  RESOLVED, That this Legislative Body pause in its  deliberations  to
memorialize  Governor  Andrew  M.  Cuomo  to proclaim March 26, 2020, as
Nephrotic Syndrome Awareness Day in the State of New  York;  and  be  it
further

  RESOLVED,  That  copies  of  this Resolution, suitably engrossed, be
transmitted to The Honorable Andrew M. Cuomo, Governor of the  State  of
New York; and NephCure Kidney International.