Bill Text: MI HR0347 | 2013-2014 | 97th Legislature | Enrolled
Bill Title: A resolution to declare July 12, 2014, as Neurofibromatosis Awareness Day in the state of Michigan.
Spectrum: Moderate Partisan Bill (Republican 10-2)
Status: (Passed) 2014-06-04 - Adopted [HR0347 Detail]
Download: Michigan-2013-HR0347-Enrolled.html
Reps. MacMaster, Somerville, Poleski, Johnson, Outman, Forlini, Kowall, Rendon,
Franz, Genetski, Barnett and Brown offered the following resolution:
House Resolution No. 347.
A resolution to declare July 12, 2014, as Neurofibromatosis Awareness Day in the state
of Michigan.
Whereas, Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States as it occurs in one in every 3,000 to 4,000 births; and
Whereas, NF has two genetically distinct forms in NF-1 and NF-2. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for either form of NF, although the genes for both NF-1 and NF-2 have been identified; and
Whereas, NF is an autosomal dominant genetic condition and is not contagious. Approximately 50% of those affected with neurofibromatosis have a prior family history of NF and the other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, she or he can not pass it on to her/his children; and
Whereas, Ashley’s Ride is an annual motorcycle ride and charity event held in July which honors Ashley Nicole Sexton’s life and her battle with NF. This endeavor has raised over $128,500.00 towards finding a cure for neurofibromatosis; now, therefore, be it
Resolved by the House of Representatives, That the members of this legislative body declare July 12, 2014, as Neurofibromatosis Awareness Day in the state of Michigan. We urge increased awareness of this disease.
