Bill Text: IL HR1099 | 2013-2014 | 98th General Assembly | Introduced
Bill Title: Designates June 21, 2014 as Strike Out Rett Syndrome Day in the State of Illinois.
Spectrum: Partisan Bill (Republican 1-0)
Status: (Passed) 2014-05-29 - Resolution Adopted [HR1099 Detail]
Download: Illinois-2013-HR1099-Introduced.html
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1 | HOUSE RESOLUTION
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2 | WHEREAS, Rett syndrome is a unique postnatal neurological | ||||||
3 | disorder that is first recognized in infancy and seen almost | ||||||
4 | always in girls, but can be seen in boys; it strikes all racial | ||||||
5 | and ethnic groups, and occurs worldwide in one of every 10,000 | ||||||
6 | to 23,000 female births; it causes problems in brain functions | ||||||
7 | that are responsible for cognitive, sensory, emotional, motor | ||||||
8 | and autonomic function; these can include learning, speech, | ||||||
9 | sensory sensations, mood, movement, breathing, cardiac | ||||||
10 | function, and even chewing, swallowing, and digestion; and
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11 | WHEREAS, Girl Power 2 Cure, Inc. is a 501c3 nonprofit | ||||||
12 | organization dedicated to raising awareness and funds for | ||||||
13 | treatments and a cure for Rett Syndrome and is committed to | ||||||
14 | making Rett Syndrome the first reversible neurological | ||||||
15 | disorder by harnessing the spirit of girls to support fellow | ||||||
16 | girls who are suffering; the organization supports girls in the | ||||||
17 | planning and implementation of events that raise awareness and | ||||||
18 | funds for Rett Syndrome research, as well as support Rett | ||||||
19 | families with resources, fundraising help, and awareness | ||||||
20 | tools; its inspiration is its flower: "always in bloom with | ||||||
21 | hope and positive energy, ready to grow anywhere there is | ||||||
22 | someone ready to join in our mission"; and
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23 | WHEREAS, Girl Power 2 Cure, Inc. will hold a fundraiser for |
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1 | Rett Syndrome research on June 21, 2014 at Fitz's Spare Keys, | ||||||
2 | "Strike Out Rett Syndrome; therefore, be it
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3 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE | ||||||
4 | NINETY-EIGHTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that | ||||||
5 | we designate June 21, 2014 as "Strike Out Rett Syndrome Day" in | ||||||
6 | the State of Illinois and; and be it further
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7 | RESOLVED, That a suitable copy of this resolution be | ||||||
8 | presented to Girl Power 2 Cure, Inc. as an expression of our | ||||||
9 | esteem and respect.
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