Bill Text: DE HCR11 | 2017-2018 | 149th General Assembly | Draft

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Bill Title: Proclaiming March 17, 2017 As "phelan-mcdermid Syndrome Awareness Day" In Delaware.

Spectrum: Slight Partisan Bill (Republican 2-1)

Status: (Engrossed - Dead) 2017-03-15 - Passed By Senate. Votes: 20 YES 1 ABSENT [HCR11 Detail]

Download: Delaware-2017-HCR11-Draft.html

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SPONSOR:

Rep. Smyk & Rep. Schwartzkopf & Sen. Lopez

 

HOUSE OF REPRESENTATIVES

149th GENERAL ASSEMBLY

 

HOUSE CONCURRENT RESOLUTION NO. 11

 

PROCLAIMING MARCH 17, 2017 AS "PHELAN-MCDERMID SYNDROME AWARENESS DAY" IN DELAWARE.

 

 

 

WHEREAS, Phelan-McDermid Syndrome (PMS) is a genetic condition caused by the deletion of the terminal end of chromosome 22 or mutation of the SHANK3 gene; and

WHEREAS, PMS can cause intellectual disabilities, delayed or absent speech, symptoms of autism spectrum disorder, low muscle tone, motor delays, and epilepsy; and

WHEREAS, the first case of PMS was described in 1985, and almost 1,400 cases of PMS have been identified worldwide since that time; and

WHEREAS, many cases of PMS go undiagnosed; and

WHEREAS, there is no cure for PMS, and treatment options are limited; and

WHEREAS, individuals with PMS face a lifetime of learning, health and social challenges; and

WHEREAS, the Phelan-McDermid Syndrome Foundation advocates on behalf of families affected by PMS across 40 countries; and

WHEREAS, the Phelan-McDermid Syndrome Foundation supports research to find treatments that improve the lives of individuals with PMS and their families; 

NOW, THEREFORE: 

BE IT RESOLVED by the House of Representatives of the 149th General Assembly of the State of Delaware, the Senate concurring therein, that March 17, 2017 be proclaimed “Phelan-McDermid Syndrome Awareness Day” in Delaware.

BE IT FURTHER RESOLVED that a suitably prepared copy of this resolution be forwarded to the Phelan-McDermid Syndrome Foundation.

 

SYNOPSIS

This resolution proclaims March 17, 2017 as "Phelan-McDermid Syndrome Awareness Day" in Delaware.