Bill Text: CA AB2034 | 2011-2012 | Regular Session | Amended

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Medical care: genetically handicapping conditions.

Spectrum: Partisan Bill (Democrat 2-0)

Status: (Vetoed) 2012-09-29 - Consideration of Governor's veto pending. [AB2034 Detail]

Download: California-2011-AB2034-Amended.html

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BILL NUMBER: AB 2034	AMENDED
	BILL TEXT

	AMENDED IN ASSEMBLY  MARCH 14, 2012

INTRODUCED BY   Assembly Member Fuentes
   (Principal coauthor: Assembly Member Bonilla)

                        FEBRUARY 23, 2012

   An act to amend Section 125130 of the Health and Safety Code,
relating to health services  , and making an appropriation
therefor  .



	LEGISLATIVE COUNSEL'S DIGEST


   AB 2034, as amended, Fuentes. Medical care: genetically 
hanidcapping   handicapping  conditions.
   Existing law, the Holden-Moscone-Garamendi Genetically Handicapped
Person's Program, requires the Director of Health Care Services to
establish and administer a program for the medical care of persons
with specified genetically handicapping conditions and for persons
with specified hereditary metabolic disorders. That law also requires
the program to provide access to social support services that may
help ameliorate problems that are attendant to genetically
handicapping conditions. Existing law authorizes the director to
expand the list of genetically handicapping conditions.
   This bill would add  familial   genetic 
amyotrophic lateral sclerosis to the list of genetically
handicapping conditions covered under the  act  
program  . 
   Existing law establishes the Children's Medical Services Rebate
Fund, which is continuously appropriated to the State Department of
Health Care Services to cover costs related to services, and the
administration of services, provided through the program. Moneys from
rebates for the delivery of health care and specified products for
clients enrolled into the program are required to be deposited into
the fund.  
   To the extent that expanding the clients served by the program
would increase the moneys deposited into the fund, this bill would
make an appropriation. 
   Vote: majority. Appropriation:  no   yes
 . Fiscal committee: yes. State-mandated local program: no.


THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS:

  SECTION 1.  Section 125130 of the Health and Safety Code is amended
to read:
   125130.  The Director of Health Care Services shall establish and
administer a program for the medical care of persons with genetically
handicapping conditions, including cystic fibrosis, hemophilia,
sickle cell disease, Huntington's disease, Friedreich's Ataxia,
Joseph's disease, Von Hippel-Landau syndrome,  familial
  genetic  amyotrophic lateral sclerosis, and the
following hereditary metabolic disorders: phenylketonuria,
homocystinuria, branched chain amino acidurias, disorders of
propionate and methylmalonate metabolism, urea cycle disorders,
hereditary orotic aciduria, Wilson's Disease, galactosemia, disorders
of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia,
and other genetic organic acidemias that require specialized
treatment or service available from only a limited number of
program-approved sources.
   The program shall also provide access to social support services,
that may help ameliorate the physical, psychological, and economic
problems attendant to genetically handicapping conditions, in order
that the genetically handicapped person may function at an optimal
level commensurate with the degree of impairment.
   The medical and social support services may be obtained through
physicians and surgeons, genetically handicapped person's program
specialized centers, and other providers that qualify pursuant to the
regulations of the department to provide the services. "Medical
care," as used in this section, is limited to noncustodial medical
and support services.
   The director, with the guidance of the Advisory Committee on
Genetically Handicapped Person's Program, may, by regulation, expand
the list of genetically handicapping conditions covered under this
article. The director shall adopt regulations that are necessary for
the implementation of this article. The director, with the approval
of the advisory committee, shall establish priorities for the use of
funds and provision of services under this article.