Bill Text: TX SR528 | 2019-2020 | 86th Legislature | Enrolled
Bill Title: Designating May 2019 as Cystic Fibrosis Awareness Month in Texas.
Sponsorship: Partisan Bill (Republican 1)
Status: (Passed) 2019-04-01 - Reported enrolled [SR528 Detail]
Download: Texas-2019-SR528-Enrolled.html
|
|
||
| WHEREAS, Cystic fibrosis, commonly referred to as CF, is a | ||
| genetic disease that affects approximately 30,000 children and | ||
| adults in the United States and nearly 70,000 children and adults | ||
| worldwide, more than 2,000 of whom live in this state; and | ||
| WHEREAS, In persons with cystic fibrosis, a defective gene | ||
| causes the body to produce an abnormally thick, sticky mucus that | ||
| clogs the lungs, and these secretions produce life-threatening | ||
| lung infections; the secretions also obstruct the pancreas and | ||
| prevent its digestive enzymes from reaching the intestines to | ||
| help the body break down and absorb food; and | ||
| WHEREAS, More than 10 million Americans are symptomless | ||
| carriers of the defective CF gene, and this disease occurs in | ||
| approximately one of every 3,500 live births in the United | ||
| States; and | ||
| WHEREAS, The median predicted age of survival for a person | ||
| with cystic fibrosis born in 2017 was 46.2 years; and | ||
| WHEREAS, With advances in the treatment of CF, the number | ||
| of adults living with this disease has steadily grown, and | ||
| approximately 900 new cases of cystic fibrosis are diagnosed each | ||
| year; and | ||
| WHEREAS, More than 50 percent of the affected population is | ||
| 18 years of age or older, and people with the disease have a | ||
| variety of symptoms attributed to the more than 1,800 mutations | ||
| of the CF gene; and | ||
| WHEREAS, Infant blood screening to detect genetic defects | ||
| is the most reliable and least costly method to identify persons | ||
| likely to have cystic fibrosis; and | ||
| WHEREAS, Early diagnosis of the disease permits early | ||
| treatment, which enhances the quality of life and longevity of | ||
| patients; the treatment of CF depends on the stage of the disease | ||
| and the organs involved; and | ||
| WHEREAS, Clearing mucus from the lungs is an important part | ||
| of the daily CF treatment regimen; other types of treatments | ||
| include taking pancreatic enzymes and inhaled antibiotics; and | ||
| WHEREAS, A critical component of treating patients with | ||
| cystic fibrosis is access to innovative treatments, which can | ||
| play a crucial role in the lives of patients with CF; and | ||
| WHEREAS, There are 11 world-class treatment centers in | ||
| this state which specialize in the diagnosis of cystic fibrosis | ||
| and the care of persons with CF; and | ||
| WHEREAS, Improving the length and quality of life for | ||
| people with CF starts with awareness; now, therefore, be it | ||
| RESOLVED, That the Senate of the State of Texas, 86th | ||
| Legislature, hereby designate the month of May 2019 as Cystic | ||
| Fibrosis Awareness Month in Texas. | ||
| Kolkhorst | ||
| ________________________________ | ||
| President of the Senate | ||
| I hereby certify that the | ||
| above Resolution was adopted by | ||
| the Senate on April 1, 2019. | ||
| ________________________________ | ||
| Secretary of the Senate | ||
| ________________________________ | ||
| Member, Texas Senate | ||
