Bill Text: TX HR586 | 2013-2014 | 83rd Legislature | Enrolled

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Bill Title: Recognizing February 28, 2013, as Rare Disease Day.

Sponsorship: Partisan Bill (Democrat 1)

Status: (Passed) 2013-02-28 - Reported enrolled [HR586 Detail]

Download: Texas-2013-HR586-Enrolled.html

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H.R. No. 586

R E S O L U T I O N
WHEREAS, There are nearly 7,000 diseases and conditions that
are considered rare by medical authorities in the United States,
and each year, thousands of Texans are among those whose lives are
changed by these diseases; and
WHEREAS, A rare disease is defined as one that affects fewer
than 200,000 people, but even though a specific disease may afflict
only a small number of sufferers, as a group such conditions affect
almost 30 million Americans, or nearly one in 10 people in our
nation; and
WHEREAS, Many rare diseases are serious and debilitating,
with a significant impact on the lives of those affected and their
families, and more than 15 million Americans have a disease for
which there is no specific treatment; and
WHEREAS, Individuals and families who face a rare disease
often experience a sense of isolation, difficulty in getting an
accurate and timely diagnosis, few treatment options, and problems
in receiving reimbursement for treatment; moreover, those who are
diagnosed with a lesser known disorder often find that they must
bear the lion's share of the responsibility for raising awareness
as well as for raising funds for research toward a possible
treatment or cure; and
WHEREAS, The National Organization for Rare Disorders (NORD)
is sponsoring a nationwide observance of Rare Disease Day, when
patients, medical professionals, researchers, government
officials, and companies developing treatments can join together to
focus attention on rare diseases as a public health issue; now,
therefore, be it
RESOLVED, That the House of Representatives of the 83rd Texas
Legislature hereby recognize February 28, 2013, as Rare Disease Day
and call on all Texans to learn more about this matter of serious
concern.
Naishtat
Straus M. Gonzalez of El Paso Oliveira
Allen N. Gonzalez of El Paso Orr
Alonzo Gooden Otto
Alvarado Guerra Paddie
Anchia Guillen Parker
Anderson Gutierrez Patrick
Ashby Harless Perez
Aycock Harper-Brown Perry
Bell Hernandez Luna Phillips
Bohac Herrero Pickett
Bonnen of Brazoria Hilderbran Pitts
Bonnen of Galveston Howard Price
Branch Huberty Raney
Burkett Hughes Ratliff
Burnam Hunter Raymond
Button Isaac Reynolds
Callegari Johnson Riddle
Canales Kacal Ritter
Capriglione Keffer Rodriguez of Bexar
Carter King of Hemphill Rodriguez of Travis
Clardy King of Parker Rose
Coleman King of Taylor Sanford
Collier King of Zavala Schaefer
Cook Kleinschmidt Sheets
Cortez Klick Sheffield of Bell
Craddick Kolkhorst Sheffield of Coryell
Creighton Krause Simmons
Crownover Kuempel Simpson
Dale Larson Smith
Darby Laubenberg Smithee
Davis of Dallas Lavender Springer
J. Davis of Harris Leach Stephenson
S. Davis of Harris Lewis Stickland
Deshotel Longoria Strama
Dukes Lozano Taylor
Dutton Lucio III Thompson of Brazoria
Eiland Marquez Thompson of Harris
Elkins Martinez Toth
Fallon Martinez Fischer Turner of Collin
Farias McClendon Turner of Harris
Farney Menendez Turner of Tarrant
Farrar Miles Villalba
Fletcher Miller of Comal Villarreal
Flynn Miller of Fort Bend Vo
Frank Moody Walle
Frullo Morrison White
Geren Munoz, Jr. Workman
Giddings Murphy Wu
Goldman Naishtat Zedler
Gonzales Nevarez Zerwas
______________________________
Speaker of the House
I certify that H.R. No. 586 was adopted by the House on February
27, 2013, by a non-record vote.
______________________________
Chief Clerk of the House