Bill Text: NJ AR68 | 2012-2013 | Regular Session | Introduced
Bill Title: Declares August 28, 2012 as "Turner Syndrome Awareness Day."
Spectrum: Partisan Bill (Republican 1-0)
Status: (Failed) 2012-05-10 - Withdrawn from Consideration [AR68 Detail]
Download: New_Jersey-2012-AR68-Introduced.html
Sponsored by:
Assemblyman SEAN T. KEAN
District 30 (Monmouth and Ocean)
SYNOPSIS
Declares August 28, 2012 as "Turner Syndrome Awareness Day."
CURRENT VERSION OF TEXT
As introduced.
An Assembly Resolution declaring August 28, 2012 as "Turner Syndrome Awareness Day" in New Jersey.
Whereas, Turner Syndrome is a genetic condition affecting girls and women with a missing or incomplete sex chromosome which can cause a variety of developmental and medical issues; some of the most common characteristics of this condition include short stature, infertility, heart defects, and certain learning disabilities; and
Whereas, Turner Syndrome occurs in approximately one out of every 2,500 female live births worldwide, with no known difference in rate of occurrence based upon race, nationality, location, socio-economic factors, or exposure to environmental hazards, and, although genetic, this condition is not usually inherited; and
Whereas, The cause of Turner Syndrome is not presently known, but appears to be the result of random error during the formation of either the sperm or the egg; and
Whereas, Turner Syndrome can be diagnosed at various stages including as early as during pregnancy through prenatal testing by either amniocentesis or chorionic villous sampling; and
Whereas, There is presently no cure for Turner Syndrome, but there are treatment options and support groups available that can help to improve the well-being of those with this condition; and
Whereas, Early diagnosis and treatment with growth hormone and estrogen therapies are especially important to optimizing the growth and pubertal development of girls with Turner Syndrome; and
Whereas, Turner Syndrome is named for Henry H. Turner, the American endocrinologist who published the first description of this condition, and who was born on August 28, 1892; and
Whereas, Increased public awareness of Turner Syndrome will help to promote early diagnosis, encourage girls and women with this condition to seek treatment and utilize support groups, and raise support for the Turner Syndrome Foundation, which sponsors important research initiatives and educational programs to improve the lives of those with this condition; now, therefore,
Be It Resolved by the General Assembly of the State of New Jersey:
1. This House hereby declares August 28, 2012 as "Turner Syndrome Awareness Day" in New Jersey.
2. The Governor is requested to issue a proclamation calling upon public officials and the people of this State to observe "Turner Syndrome Awareness Day" with appropriate activities and programs to raise public awareness of Turner Syndrome.
3. Duly authenticated copies of this resolution, signed by the Speaker of the General Assembly and attested by the Clerk thereof, shall be transmitted to the Governor of the State of New Jersey.
STATEMENT
This resolution declares August 28, 2012 as "Turner Syndrome Awareness Day" to raise public awareness of Turner Syndrome, a genetic condition affecting girls and women with a missing or incomplete sex chromosome which can cause a variety of developmental and medical issues, including short stature, infertility, heart defects, and certain learning disabilities.
This resolution also urges the Governor to issue a proclamation recognizing August 28, 2012 as "Turner Syndrome Awareness Day" in New Jersey and calling upon public officials and the people of this State to observe this day with appropriate activities and programs.
The purpose of this resolution is to help promote early diagnosis, increased treatment, and support groups for girls and women with this condition, and to encourage support for the Turner Syndrome Foundation, which is dedicated to improving the lives of those with this condition.
