Bill Text: NJ A1878 | 2024-2025 | Regular Session | Introduced
Bill Title: Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.
Spectrum: Bipartisan Bill
Status: (Introduced) 2024-01-09 - Introduced, Referred to Assembly Health Committee [A1878 Detail]
Download: New_Jersey-2024-A1878-Introduced.html
STATE OF NEW JERSEY
221st LEGISLATURE
PRE-FILED FOR INTRODUCTION IN THE 2024 SESSION
Sponsored by:
Assemblyman HERB CONAWAY, JR.
District 7 (Burlington)
Assemblyman STERLEY S. STANLEY
District 18 (Middlesex)
Assemblyman SEAN T. KEAN
District 30 (Monmouth and Ocean)
Co-Sponsored by:
Assemblyman Danielsen and Assemblywoman N.Munoz
SYNOPSIS
Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.
CURRENT VERSION OF TEXT
Introduced Pending Technical Review by Legislative Counsel.
A Supplement to the annual appropriations act for the fiscal year ending June 30, 2023, P.L.2022, c.49.
Be It Enacted by the Senate and the General Assembly of the State of New Jersey:
1. In addition to the amounts appropriated under P.L.2022, c.49, the annual appropriations act for the fiscal year ending June 30, 2023, there is appropriated from the General Fund the following amount for the purpose specified:
46 DEPARTMENT OF HEALTH
20 Physical and Mental Health
21 Health Services
4285 Division of Community Health
GRANTS-IN-AID
05-4285 Community Health Services .................................. $500,000
Total Grants-in-Aid appropriation,
Health Services .................................................... $500,000
Grants-in-Aid:
05 Huntington's Disease Grant Program..... ($500,000)
The amount hereinabove appropriated for the Huntington Disease Grant Program, in addition to any other State or federal funds allocated for the following purposes, shall be allocated to support grants to institutions of higher education, non-profit organizations, or New Jersey based and operated research organizations for the provision of pre-symptomatic testing, neurology and psychiatry services, neurophysiological evaluations, treatment, disease management, and counseling for people living with or at risk for Huntington's Disease.
2. This act shall take effect immediately.
STATEMENT
This bill makes a supplemental appropriation of $500,000 to Division of Community Health in the Department of Health (DOH) for the Huntington's Disease Grant Program. The amount appropriated under the bill, in addition to any other State or federal funds allocated for the same purposes, is to be allocated to support grants to institutions of higher education, non-profit organizations, or New Jersey based and operated research organizations for the provision of pre-symptomatic testing, neurology and psychiatry services, neurophysiological evaluations, treatment, disease management, and counseling for people living with or at risk for Huntington's disease. According to the department's Notice of Fund Availability, the Huntington's Disease Grant Program is currently estimated to distribute $200,437 in FY 2023. This supplemental appropriation would increase that amount to $700,437.
Huntington's disease is a fatal rare, inherited disease that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person's physical and mental abilities during their prime working years and has no cure. Huntington's disease has a wide impact on a person's functional abilities and usually results in movement, cognitive, and psychiatric disorders. Many describe the symptoms as having amyotrophic lateral sclerosis (Lou Gehrig's disease), Parkinson's disease, and Alzheimer's disease simultaneously. According to the DOH, there are approximately 900 to 1,200 New Jersey residents who are living with Huntington's disease. The incidence of the disease is estimated between 1 in 8,000 and 1 in 10,000 State residents. There are also about 7,000 at-risk individuals in New Jersey. But since this is a fatal disease, this number may be low since the majority of people who go through genetic counseling decide to not get tested.
