Bill Text: IL SR1452 | 2013-2014 | 98th General Assembly | Introduced

Bill Title: Designates the 3rd week of September 2014 as Mitochondrial Disease Awareness Week.

Spectrum: Partisan Bill (Democrat 1-0)

Status: (Failed) 2015-01-13 - Session Sine Die [SR1452 Detail]

Download: Illinois-2013-SR1452-Introduced.html

SR1452LRB098 22137 MST 61012 r
2 WHEREAS, Few people know of mitochondrial disease, yet
3every 30 minutes a child is born who will develop this disease
4by the age of 10; and
5 WHEREAS, There is no cure for mitochondrial disease; and
6 WHEREAS, Mitochondrial disease is often misdiagnosed; and
7 WHEREAS, Mitochondrial disease occurs when mitochondria
8inside of cells, which are responsible for creating more than
990% of the energy needed by the body to sustain life and
10support growth, fail to carry out their primary functions; and
11 WHEREAS, When mitochondria fail, less energy is generated
12within the cell; and
13 WHEREAS, If this process is repeated throughout the body,
14whole systems begin to fail, and the person's life is severely
15compromised; and
16 WHEREAS, The disease primarily affects children; and
17 WHEREAS, Diseases of the mitochondria appear to cause the
18most damage to cells of the brain, heart, liver, skeletal

SR1452- 2 -LRB098 22137 MST 61012 r
1muscles, kidneys, and the endocrine and respiratory systems;
3 WHEREAS, Common symptoms include muscle weakness and pain,
4gastrointestinal disorders, poor growth, cardiac disease,
5liver disease, diabetes, respiratory problems, seizures,
6visual and hearing problems, and susceptibility to infection;
8 WHEREAS, Because so little is known about the disease,
9there are only a few hospitals in the world that offer
10treatment, causing affected families to travel regularly or
11even relocate to receive treatment; and
12 WHEREAS, Mitochondrial disease is progressive, likely
13terminal, and requires a high level of care and extremely
14expensive medical treatment that often exceeds covered
15insurance benefits, creating great financial burdens on
16affected families; and
17 WHEREAS, The 3rd week of September is observed globally as
18Mitochondrial Disease Awareness Week; therefore, be it
20ASSEMBLY OF THE STATE OF ILLINOIS, that we designate the 3rd
21week of September 2014 as Mitochondrial Disease Awareness Week

SR1452- 3 -LRB098 22137 MST 61012 r
1in the State of Illinois; and be it further
2 RESOLVED, That suitable copies of this resolution be
3presented to the United Mitochondrial Disease Foundation
4(UMDF) and the Chicago Area Chapter of the UMDF.