Bill Text: IL SB3277 | 2023-2024 | 103rd General Assembly | Engrossed

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Bill Title: Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Directs the Department of Public Health, in conjunction with others, to develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy. Provides that the protocols and best practices developed by the Department shall: (i) be published on a designated and publicly accessible Internet website; (ii) include up-to-date information about Duchenne muscular dystrophy; (iii) reference peer-reviewed scientific research articles; (iv) incorporate guidance and recommendations from the National Institutes of Health and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and (v) be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy. Provides that the Department shall prepare a report of all efforts undertaken by the Department under the Act. Provides that the report under this Act shall be posted on the Department's Internet website and distributed to local health departments and to any other facilities as determined by the Department.

Spectrum: Bipartisan Bill

Status: (Engrossed) 2024-05-07 - Placed on Calendar Order of 3rd Reading - Short Debate [SB3277 Detail]

Download: Illinois-2023-SB3277-Engrossed.html

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SB3277 Engrossed LRB103 36743 CES 66853 b
AN ACT concerning health.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
Section 1. References to Act. This Act may be referred to
as the Duchenne Muscular Dystrophy Act.
Section 5. The Department of Public Health Powers and
Duties Law of the Civil Administrative Code of Illinois is
amended by adding Section 2310-730 as follows:
(20 ILCS 2310/2310-730 new)
Sec. 2310-730. Duchenne Muscular Dystrophy Awareness
Program.
(a) Subject to appropriation, the Department of Public
Health, in conjunction with experts in the field of Duchenne
muscular dystrophy, shall develop mandatory protocols and best
practices for providing the necessary medical guidance for
Duchenne muscular dystrophy in Illinois.
(b) To raise awareness about Duchenne muscular dystrophy,
the protocols and best practices developed by the Department
under subsection (a):
(1) shall be published on a designated and publicly
accessible webpage;
(2) shall include up-to-date information about

SB3277 Engrossed - 2 - LRB103 36743 CES 66853 b