Bill Text: IL SB3045 | 2025-2026 | 104th General Assembly | Introduced

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Bill Title: Amends the Department of Healthcare and Family Services Law. Requires the Department of Healthcare and Family Services to conduct a statewide one-year pilot program that studies the prevalence of cholestatic liver disorders associated with increased risk of end-stage liver disease among women ages 35 through 64 who are recipients of medical assistance. Requires the Department to collect the following information on study participants: (1) key demographics such as age, genetic predispositions, pre-existing conditions, and lifestyle factors that elevate the risk of developing cholestatic liver disorders; (2) the number or percentage of study participants who, despite being identified as high-risk, do not follow through with referrals or treatment recommendations; (3) the number of study participants who avoid referral and follow-up care or engage in treatment avoidance; and (4) any other relevant information or issues identified by the Department. Requires the Department to compile a report on its findings at the end of the one-year study and include (i) recommendations on how to increase awareness of cholestatic liver disorders through screenings, genetic testing, and collaboration with patient advocacy groups to raise public awareness and (ii) an analysis of strategies and funding to increase screening and genetic testing for cholestatic liver disorders. Provides that the Department shall submit the report to the General Assembly no later than December 31, 2028. Effective immediately.

Sponsorship: Partisan Bill (Democrat 1)

Status: (Introduced - Dead) 2026-05-22 - Rule 3-9(a) / Re-referred to Assignments [SB3045 Detail]

Download: Illinois-2025-SB3045-Introduced.html

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104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026SB3045 Introduced 1/28/2026, by Sen. Sara Feigenholtz SYNOPSIS AS INTRODUCED:
20 ILCS 2205/2205-45 new
Amends the Department of Healthcare and Family Services Law. Requires the Department of Healthcare and Family Services to conduct a statewide one-year pilot program that studies the prevalence of cholestatic liver disorders associated with increased risk of end-stage liver disease among women ages 35 through 64 who are recipients of medical assistance. Requires the Department to collect the following information on study participants: (1) key demographics such as age, genetic predispositions, pre-existing conditions, and lifestyle factors that elevate the risk of developing cholestatic liver disorders; (2) the number or percentage of study participants who, despite being identified as high-risk, do not follow through with referrals or treatment recommendations; (3) the number of study participants who avoid referral and follow-up care or engage in treatment avoidance; and (4) any other relevant information or issues identified by the Department. Requires the Department to compile a report on its findings at the end of the one-year study and include (i) recommendations on how to increase awareness of cholestatic liver disorders through screenings, genetic testing, and collaboration with patient advocacy groups to raise public awareness and (ii) an analysis of strategies and funding to increase screening and genetic testing for cholestatic liver disorders. Provides that the Department shall submit the report to the General Assembly no later than December 31, 2028. Effective immediately.
LRB104 17643 KTG 31074 b
A BILL FOR
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AN ACT concerning State government.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
Section 5. The Department of Healthcare and Family
Services Law of the Civil Administrative Code of Illinois is
amended by adding Section 2205-45 as follows:
(20 ILCS 2205/2205-45 new)
Sec. 2205-45. Pilot program; cholestatic liver disorders
in women.
(a) The Department of Healthcare and Family Services shall
conduct a statewide one-year pilot program that studies the
prevalence of cholestatic liver disorders associated with
increased risk of end-stage liver disease among women ages 35
through 64 who are recipients of medical assistance under
Article V of the Illinois Public Aid Code. During the pilot
program, the Department shall collect the following
information on study participants:
(1) Key demographics such as age, genetic
predispositions, pre-existing conditions (such as, but not
limited to, autoimmune diseases and metabolic disorders)
and lifestyle factors that elevate the risk of developing
cholestatic liver disorders.
(2) The number or percentage of study participants

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who, despite being identified as high-risk, do not follow
through with referrals or treatment recommendations.
(3) The number of study participants who avoid
referral and follow-up care or engage in treatment
avoidance.
(4) Other relevant information or issues identified by
the Department.
(b) At the end of the one-year pilot program, the
Department shall review the collected data and information and
compile it into a written report that includes:
(1) Recommendations on how to (i) increase awareness
of cholestatic liver disorders, including screenings and
genetic testing, and (ii) collaborate with patient
advocacy groups to raise public awareness through social
media, seminars, and community outreach initiatives.
(2) An analysis of strategies and funding to increase
screening and genetic testing for cholestatic liver
disorders. The analysis must include recommendations on
how to promote public-private partnerships to ensure
sustainable funding for genetic research and testing
infrastructure.
All information collected and reported shall be handled in
accordance with all applicable State and federal privacy laws
and regulations.
The Department of Healthcare and Family Services shall
submit the report to the General Assembly no later than

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December 31, 2028.
Section 99. Effective date. This Act takes effect upon
becoming law.