Bill Text: IL SB1546 | 2013-2014 | 98th General Assembly | Introduced

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Bill Title: Amends the Illinois Public Aid Code. Provides that the Department of Healthcare and Family Services may purchase services and materials associated with the costs of developing, implementing, and maintaining (rather than developing and implementing) a data warehouse comprised of management and decision making information in regard to the liability associated with, and utilization of, medical and related services, out of moneys available for that purpose. Removes a provision requiring the Department to perform all necessary administrative functions to expand its linearly-scalable data warehouse to encompass other healthcare data sources at both the Department of Human Services and the Department of Public Health, and to supply quarterly reports to the Commission on Government Forecasting and Accountability detailing progress toward this mandate. Removes language that (i) required the departments of Healthcare and Family Services, Public Health, and Human Services and the Division of Specialized Care for Children to jointly prepare a work plan for fully integrating specified data sets into the medical data warehouse by September 1, 2009 and (ii) required the Department of Healthcare and Family Services to submit status reports on the progress of these and other specified efforts to the Governor and the General Assembly no later than October 1, 2009 and April 1, 2010, with a final report due no later than November 1, 2010. Effective immediately.

Spectrum: Partisan Bill (Democrat 1-0)

Status: (Failed) 2015-01-13 - Session Sine Die [SB1546 Detail]

Download: Illinois-2013-SB1546-Introduced.html

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98TH GENERAL ASSEMBLY State of Illinois 2013 and 2014 SB1546 Introduced 2/13/2013, by Sen. Patricia Van Pelt SYNOPSIS AS INTRODUCED:
305 ILCS 5/12-4.201
Amends the Illinois Public Aid Code. Provides that the Department of Healthcare and Family Services may purchase services and materials associated with the costs of developing, implementing, and maintaining (rather than developing and implementing) a data warehouse comprised of management and decision making information in regard to the liability associated with, and utilization of, medical and related services, out of moneys available for that purpose. Removes a provision requiring the Department to perform all necessary administrative functions to expand its linearly-scalable data warehouse to encompass other healthcare data sources at both the Department of Human Services and the Department of Public Health, and to supply quarterly reports to the Commission on Government Forecasting and Accountability detailing progress toward this mandate. Removes language that (i) required the departments of Healthcare and Family Services, Public Health, and Human Services and the Division of Specialized Care for Children to jointly prepare a work plan for fully integrating specified data sets into the medical data warehouse by September 1, 2009 and (ii) required the Department of Healthcare and Family Services to submit status reports on the progress of these and other specified efforts to the Governor and the General Assembly no later than October 1, 2009 and April 1, 2010, with a final report due no later than November 1, 2010. Effective immediately.
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FISCAL NOTE ACT MAY APPLY
A BILL FOR
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AN ACT concerning public aid.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
Section 5. The Illinois Public Aid Code is amended by
changing Section 12-4.201 as follows:
(305 ILCS 5/12-4.201)
Sec. 12-4.201.Data warehouse concerning medical and
related services.
(a) The Department of Healthcare and Family Services may
purchase services and materials associated with the costs of
developing, and implementing, and maintaining a data warehouse
comprised of management and decision making information in
regard to the liability associated with, and utilization of,
medical and related services, out of moneys available for that
purpose.
(b) (Blank). The Department of Healthcare and Family
Services shall perform all necessary administrative functions
to expand its linearly-scalable data warehouse to encompass
other healthcare data sources at both the Department of Human
Services and the Department of Public Health. The Department of
Healthcare and Family Services shall leverage the inherent
capabilities of the data warehouse to accomplish this expansion
with marginal additional technical administration. The purpose

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of this expansion is to allow for programmatic review and
analysis including the interrelatedness among the various
healthcare programs in order to ascertain effectiveness
toward, and ultimate impact on, clients. Beginning July 1,
2005, the Department of Healthcare and Family Services
(formerly Department of Public Aid) shall supply quarterly
reports to the Commission on Government Forecasting and
Accountability detailing progress toward this mandate.
(c) The Department of Healthcare and Family Services (HFS),
the Illinois Department of Public Health, the Illinois
Department of Human Services, and the Division of Specialized
Care for Children, University of Illinois at Chicago, with
necessary support from the Department of Central Management
Services, shall integrate into the medical data warehouse
individual record level data owned by one of these agencies
that pertains to maternal and child health, including the
following data sets:
(1) Vital Records as they relate to births, birth
outcomes, and deaths.
(2) Adverse Pregnancy Outcomes Reporting System
(APORS).
(3) Genetics/Newborn Screenings/SIDS.
(4) Cornerstone (WIC, FCM, Teen Parents,
Immunization).
(5) HFS medical claims data.
(6) I-CARE.

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(7) Children with Special Healthcare Needs Data.
By September 1, 2009, the departments of Healthcare and
Family Services, Public Health, and Human Services and the
Division of Specialized Care for Children shall jointly prepare
a work plan for fully integrating these data sets into the
medical data warehouse. The work plan shall provide an overall
project design, including defining a mutually acceptable
transfer format for each discrete data set, the data update
frequency, and a single method of data transfer for each data
set. By October 1, 2009, the Department of Public Health shall
grant to the Department of Healthcare and Family Services
complete access to all vital records data. The Department of
Public Health shall prepare a report detailing that this task
has been accomplished and submit this report to the Commission
on Government Forecasting and Accountability by October 15,
2009. By March 1, 2010, the data sets shall be completely
loaded into the medical data warehouse. By July 1, 2010, data
from the various sources shall be processed so as to be
compatible with other data in the medical data warehouse and
available for analysis in an integrated manner.
With the cooperation of the other agencies, HFS shall
submit status reports on the progress of these efforts to the
Governor and the General Assembly no later than October 1, 2009
and April 1, 2010, with a final report due no later than
November 1, 2010.
(c-5) On an ongoing basis, the 4 agencies shall review the

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feasibility of adding data from additional sources to the
warehouse. Such review may take into account the cost
effectiveness of adding the data, the utility of adding data
that is not available as identifiable individual record level
data, the requirements related to adding data owned by another
entity or not available in electronic form, whether sharing of
the data is otherwise prohibited by law and the resources
required and available for effecting the addition.
(d) The departments shall use analysis of the data in the
medical data warehouse to improve maternal and child health
outcomes, and in particular improve birth outcomes, and to
reduce racial health disparities in this area.
(e) All access and use of the data shall be in compliance
with all applicable federal and State laws, regulations, and
mandates.
(f) Notwithstanding anything in this Section, data
incorporated into the data warehouse shall remain subject to
the same provisions of law regarding confidentiality and use
restrictions as they are subject to in the control of the
contributing agency. The Department of Healthcare and Family
Services shall develop measures to ensure that the interplay of
the several data sets contributed to the data warehouse does
not lead to the use or release of data from the data warehouse
that would not otherwise be subject to use or release under
State or federal law.
(Source: P.A. 95-331, eff. 8-21-07; 96-799, eff. 10-28-09;

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96-1000, eff. 7-2-10.)
Section 99. Effective date. This Act takes effect upon
becoming law.