Bill Text: IL HR1336 | 2011-2012 | 97th General Assembly | Introduced

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Bill Title: Urges the passing of Congressional Bill S.3396 for Congenital Diaphragmatic Hernia Research.

Sponsorship: Partisan Bill (Democrat 1)

Status: (Failed) 2013-01-08 - Session Sine Die [HR1336 Detail]

Download: Illinois-2011-HR1336-Introduced.html

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HR1336 LRB097 23649 MST 72719 r
HOUSE RESOLUTION
WHEREAS, The members of the Illinois House of
Representatives urges the United States Congress to pass
Congressional Bill S.3396 for Congenital Diaphragmatic Hernia
Research; and
WHEREAS, Congenital Diaphragmatic Hernia is a birth
defect; and
WHEREAS, Congenital Diaphragmatic Hernia has a rate of
occurrence of 1 in every 2500 babies; and
WHEREAS, Congenital Diaphragmatic Hernia affects
approximately 1800 babies each year in the United States; and
WHEREAS, Congenital Diaphragmatic Hernia occurs when the
diaphragm fails to fully form, allowing abdominal organs to
migrate into the chest cavity and preventing lung growth; and
WHEREAS, The majority of Congenital Diaphragmatic Hernia
patients have underdeveloped lungs and or poor pulmonary
function; and
WHEREAS, Congenital Diaphragmatic Hernia patients often
endure long-term complications such as pulmonary hypertension,

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pulmonary hypoplasia, asthma, gastrointestinal reflex, feeding
disorders, and developmental delays; and
WHEREAS, Congenital Diaphragmatic Hernia survivors
sometimes endure long-term mechanical ventilation dependency,
skeletal malformations, supplemental oxygen dependency,
enteral and parenteral nutrition, and hypoxic brain injury; and
WHEREAS, Congenital Diaphragmatic Hernia has a survival
rate of 50%; and
WHEREAS, Congenital Diaphragmatic Hernia has affected over
600,000 babies worldwide since the year 2000; and
WHEREAS, Babies born with Congenital Diaphragmatic Hernia
endure extended hospital stays in intensive care with multiple
surgeries; the extended hospital stays in some cases have
exceeded one year; and
WHEREAS, Congenital Diaphragmatic Hernia is as common as
Spina Bifida and Cystic Fibrosis; and
WHEREAS, Congenital Diaphragmatic Hernia is diagnosed in
utero in only 75% of cases; and
WHEREAS, Congenital Diaphragmatic Hernia is treated

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through mechanical ventilation, heart and lung bypass
(Extracorporeal Membrane Oxygenation) machines, and surgical
repair; and
WHEREAS, Congenital Diaphragmatic Hernia surgical repair
is often outgrown thus leading to reherniation and requiring
additional surgery; and
WHEREAS, Congenital Diaphragmatic Hernia does not
discriminate based on race, gender, religion, economic status,
or lack of prenatal care; and
WHEREAS, The cause of Congenital Diaphragmatic Hernia is
unknown; and
WHEREAS, Congenital Diaphragmatic Hernia takes more lives
in the average year in the United States than lightening
strikes, tornadoes, hurricanes, and floods combined; and
WHEREAS, The average hospital bill per Congenital
Diaphragmatic Hernia patient is $500,000; and
WHEREAS, The estimated total annual economic impact of
Congenital Diaphragmatic Hernia in the United States is in
excess of $800,000,000; and

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WHEREAS, Annual federal support for Congenital
Diaphragmatic Hernia research at the National Institutes of
Health is currently estimated at less than $5,000,000;
therefore, be it
RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE
NINETY-SEVENTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
we urge Congress to pass S.3396 to expand the funds available
for Congenital Diaphragmatic Hernia Research; and be it further
RESOLVED, That a suitable copy of this resolution be
presented to Governor Pat Quinn and the Illinois Congressional
Delegation.