Bill Text: IL HR0246 | 2009-2010 | 96th General Assembly | Introduced

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Bill Title: Proclaims May of 2009 as Neurofibromatosis Month in the State of Illinois.

Sponsorship: Partisan Bill (Republican 1)

Status: (Passed) 2009-05-30 - Resolution Adopted 116-001-000 [HR0246 Detail]

Download: Illinois-2009-HR0246-Introduced.html

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HOUSE RESOLUTION
WHEREAS, Neurofibromatosis is a genetic disorder that
causes growths and tumors to form on nerves; neurofibromatosis
is one of the most common genetic disorders, approximately one
in every 3,000 babies born has neurofibromatosis;
neurofibromatosis occurs in both genders, and all ethnic groups
equally; and
WHEREAS, There are two types of neurofibromatosis: Type 1
is a form of neurofibromatosis that can be inherited from a
parent or be a spontaneous mutation and affects a gene on
chromosome 17; people with this type of neurofibromatosis
generally have brown oval or circular spots on the skin called
cafe-au-lait spots and freckles under the arm or in the groin
area; they also have benign soft tumors or lumps under the skin
called neurofibroma; and
WHEREAS, Neurofibromatosis Type 1 often causes learning
difficulties in children, and can also affect physical growth;
tumors may form along nerves anywhere in the body; and it can
cause atrophy, pseudarthrosis, scoliosis, plexiform
neurofibroma, bright spots on the brain, optic glioma,
depression, executive function issues, and other psychological
issues; and

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WHEREAS, Neurofibromatosis Type 2 is also inherited or a
spontaneous mutation caused by a change in a gene on chromosome
22; neurofibromatosis Type 2 is sometimes referred to as
central neurofibromatosis or bilateral acoustic neuroma;
neurofibromatosis Type 2 affects nerves next to the brain or
spinal chord and can cause serious disabilities; and
WHEREAS, People with neurofibromatosis Type 2 have tumors
that affect hearing and balance, and they can have tumors that
push on the brain or spinal chord, as well as tumors along the
peripheral nerves; these problems can cause weakness and
seizures; and
WHEREAS, Neurofibromatosis Inc. Midwest is a network that
provides information on neurofibromatosis, makes referrals to
local medical resources, sponsors national and local
conferences for neurofibromatosis families, as well as other
services; their mission is to create a community of support for
individuals and families affected by neurofibromatosis; and
WHEREAS, May is National Neurofibromatosis Month; Great
Steps for Neurofibromatosis 2009 will take place at the
Naperville Riverwalk on Saturday, June 6, 2009 and in Effingham
on June 20, 2009; therefore, be it
RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE

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NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we
proclaim May of 2009 as Neurofibromatosis Month in the State of
Illinois; and be it further
RESOLVED, That a suitable copy of this resolution be
presented to Neurofibromatosis Inc. Midwest as a symbol of our
respect.