Bill Text: IL HR0195 | 2023-2024 | 103rd General Assembly | Introduced
Bill Title: Declares August 2023 as Spinal Muscular Atrophy Awareness Month in the State of Illinois. Encourages continuing research on spinal muscular atrophy and community support for those affected with the disease.
Spectrum: Bipartisan Bill
Status: (Passed) 2023-05-18 - Added Chief Co-Sponsor Rep. Angelica Guerrero-Cuellar [HR0195 Detail]
Download: Illinois-2023-HR0195-Introduced.html
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1 | HOUSE RESOLUTION
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2 | WHEREAS, The members of the Illinois House of | ||||||
3 | Representatives wish to raise awareness surrounding the rare | ||||||
4 | disease of spinal muscular atrophy; and
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5 | WHEREAS, Spinal muscular atrophy is a degenerative, | ||||||
6 | genetic neurological condition that affects and prevents | ||||||
7 | motor-control neurons from sending signals from the central | ||||||
8 | nervous system to the body's muscles that, in turn, causes the | ||||||
9 | loss of muscle control and ultimately muscle wasting; and
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10 | WHEREAS, Spinal muscular atrophy is a rare genetic | ||||||
11 | neuromuscular disease; and
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12 | WHEREAS, In the United States, an estimated one in 11,000 | ||||||
13 | babies are born with spinal muscular atrophy; and
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14 | WHEREAS, There are four types of spinal muscular atrophy, | ||||||
15 | the most severe of which may require a ventilator and feeding | ||||||
16 | tubes; and
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17 | WHEREAS, Spinal muscular atrophy affects everyone | ||||||
18 | differently, and symptoms can vary greatly according to the | ||||||
19 | age of onset and the severity of the disease; and
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1 | WHEREAS, Those who suffer from spinal muscular atrophy | ||||||
2 | have normally developed brains and are bright, sensitive, and | ||||||
3 | full of life despite their diagnosis; and
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4 | WHEREAS, Unlike many other rare neuromuscular diseases, | ||||||
5 | there is a clear understanding of the specific genetic cause | ||||||
6 | of spinal muscular atrophy; and
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7 | WHEREAS, Ongoing research offers the promise that a cure | ||||||
8 | for spinal muscular atrophy may one day be found; and
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9 | WHEREAS, Increased awareness of spinal muscular atrophy | ||||||
10 | will lead to increased knowledge and increased support for | ||||||
11 | both disease research and the families affected by the | ||||||
12 | disease; therefore, be it
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13 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | ||||||
14 | HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that | ||||||
15 | we declare August 2023 as Spinal Muscular Atrophy Awareness | ||||||
16 | Month in the State of Illinois, and we encourage continuing | ||||||
17 | research on spinal muscular atrophy and community support for | ||||||
18 | those affected with the disease.
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