Bill Text: IL HR0031 | 2017-2018 | 100th General Assembly | Introduced

---

Bill Title: Designates March of 2017 as "Fibromuscular Dysplasia Awareness Month" in the State of Illinois.

Sponsorship: Partisan Bill (Republican 1)

Status: (Failed) 2019-01-08 - Session Sine Die [HR0031 Detail]

Download: Illinois-2017-HR0031-Introduced.html

---

HR0031 LRB100 05978 MST 16006 r
HOUSE RESOLUTION
WHEREAS, Fibromuscular dysplasia (FMD) is a disease that
causes abnormal cell growth of the arterial wall; it can lead
to areas of narrowing, beading, aneurysms, and dissections of
the arterial wall; and
WHEREAS, Until recently, there has been very little
progress in understanding the disease since it was first
diagnosed in 1938; there is no known cause or cure for the
disease and there are no set protocols to treat the disease;
and
WHEREAS, FMD has always been considered and is still
classified as a rare disease; many researchers now believe FMD
is an under-diagnosed disease; some of the data suggest that
4-5% of the population may be affected by the disease; and
WHEREAS, Ninety percent of the patients affected by FMD are
women, but men and children are also afflicted; there are
different classifications of FMD; the two most common types are
medial fibroplasia and intimal fibroplasia; unlike the adult
population, children tend to be diagnosed with intimal
fibroplasia, which can be more aggressive; some patients
present with both types of the disease; there is no
understanding of why there are differences; and

HR0031 - 2 - LRB100 05978 MST 16006 r
WHEREAS, Individuals and families affected by
fibromuscular dysplasia often experience problems such as a
sense of isolation, difficulty in obtaining accurate and timely
diagnosis, and optimal treatment options; and
WHEREAS, The Fibromuscular Dysplasia Society of America
(FMDSA) was founded in March of 2003; over the past 13 years,
this association has been active and successful with many
programs, including public and physician awareness, patient
support, and engaging with researchers from around the world;
and
WHEREAS, The FMDSA is funding the United States Registry
for Fibromuscular Dysplasia; previously it was thought that 75%
of FMD cases affected the renal arteries, but recent data has
proven that to be inaccurate; it is also very common to have a
5-year delay from onset of symptoms to diagnosis; and
WHEREAS, There is still much needed awareness and research
of the disease; FMD patients present with many of the same
complaints as other patients with more common conditions, such
as hypertension, headaches, and dizziness; others present with
TIA or stroke, dissection of an artery, aneurysm, swooshing
noise in the ear, and renal infarction; children can present
with basic symptoms such as high blood pressure, headaches,

HR0031 - 3 - LRB100 05978 MST 16006 r
insomnia, fatigue, and abdominal pain; misdiagnoses of FMD can
lead to severe consequences and disability; and
WHEREAS, During the month of March each year, the FMDSA
organizes a global observance of the issues associated with
fibromuscular dysplasia; patients, medical professionals, and
researchers join together to focus attention on fibromuscular
dysplasia as a public health issue; therefore, be it
RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
HUNDREDTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we
designate March of 2017 as "Fibromuscular Dysplasia Awareness
Month" in the State of Illinois; and be it further
RESOLVED, That a suitable copy of this resolution be
presented to the Fibromuscular Dysplasia Society of America as
an expression of our esteem and respect.