Bill Text: IL HJR0071 | 2025-2026 | 104th General Assembly | Introduced
Bill Title: Declares June 1 through June 7, 2026 as Hidradenitis Suppurativa Awareness Week in the State of Illinois. Recognizes the importance of increasing awareness and education about HS among the public and health professionals, promoting timely and accurate diagnosis of HS through improved screening and culturally competent care, supporting research to better understand HS pathogenesis, treatment efficacy, and long-term outcomes, accelerating the development of effective treatments and expanding access to existing therapies for HS, and advancing policies that improve access to care and quality of life for people living with HS and their caregivers.
Sponsorship: Partisan Bill (Democrat 1)
Status: (Introduced - Dead) 2026-11-04 - Filed with the Clerk by Rep. Yolonda Morris [HJR0071 Detail]
Download: Illinois-2025-HJR0071-Introduced.html
| |||||||
| |||||||
| 1 | HOUSE JOINT RESOLUTION | ||||||
| 2 | WHEREAS, Hidradenitis Suppurativa (HS) is a chronic, | ||||||
| 3 | inflammatory skin disease that affects approximately 3.3 | ||||||
| 4 | million people in the United States; and | ||||||
| 5 | WHEREAS, HS causes painful, boil-like nodules and | ||||||
| 6 | abscesses anywhere on the body, and the disease can progress | ||||||
| 7 | to form tunnels under the skin and cause extensive scarring; | ||||||
| 8 | and | ||||||
| 9 | WHEREAS, Individuals with HS frequently suffer from five | ||||||
| 10 | primary domains of physical and emotional suffering, including | ||||||
| 11 | pain, drainage, odor, itching, and profound psychological | ||||||
| 12 | distress; and | ||||||
| 13 | WHEREAS, HS is associated with one of the highest | ||||||
| 14 | completed suicide rates among dermatological diseases, second | ||||||
| 15 | only to melanoma; and | ||||||
| 16 | WHEREAS, 75% of individuals with HS are misdiagnosed or | ||||||
| 17 | not diagnosed until after age 25, and the average accurate HS | ||||||
| 18 | diagnosis can take up to seven to ten years to reach, missing | ||||||
| 19 | critical windows for early intervention and prolonging | ||||||
| 20 | physical and psychological distress; and | ||||||
| |||||||
| |||||||
| 1 | WHEREAS, Delayed diagnosis of HS contributes to worsening | ||||||
| 2 | disease progression, higher healthcare costs, avoidable | ||||||
| 3 | emergency room visits, and unnecessary procedures; and | ||||||
| 4 | WHEREAS, Individuals with HS are often diagnosed in the | ||||||
| 5 | prime of their lives, affecting their ability to work, | ||||||
| 6 | maintain relationships, and participate fully in society; and | ||||||
| 7 | WHEREAS, Prolonged and repeated courses of topical and | ||||||
| 8 | oral antibiotics remain a standard of care for HS despite a | ||||||
| 9 | lack of quality data demonstrating efficacy and safety; and | ||||||
| 10 | WHEREAS, Studies have documented elevated rates of | ||||||
| 11 | antimicrobial resistance in HS lesions among patients with | ||||||
| 12 | prior or ongoing antibiotic use for HS, raising concerns for | ||||||
| 13 | both individual patients and broader public health; and | ||||||
| 14 | WHEREAS, Additional research focused on HS is urgently | ||||||
| 15 | needed to develop new treatments, understand the pathogenesis | ||||||
| 16 | of the disease, identify biomarkers, and improve outcomes for | ||||||
| 17 | patients; and | ||||||
| 18 | WHEREAS, State policy can play a critical role in | ||||||
| 19 | improving access of HS patients to therapies, wound care, and | ||||||
| 20 | comprehensive care; and | ||||||
| |||||||
| |||||||
| 1 | WHEREAS, Designating the first week of June as | ||||||
| 2 | Hidradenitis Suppurativa Awareness Week would increase public | ||||||
| 3 | awareness, foster understanding, and catalyze progress in | ||||||
| 4 | diagnosing, treating, and ultimately curing HS; therefore, be | ||||||
| 5 | it | ||||||
| 6 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | ||||||
| 7 | HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, THE | ||||||
| 8 | SENATE CONCURRING HEREIN, that we declare June 1 through June | ||||||
| 9 | 7, 2026 as Hidradenitis Suppurativa Awareness Week in the | ||||||
| 10 | State of Illinois; and be it further | ||||||
| 11 | RESOLVED, That we recognize the importance of increasing | ||||||
| 12 | awareness and education about HS among the public and health | ||||||
| 13 | professionals, promoting timely and accurate diagnosis of HS | ||||||
| 14 | through improved screening and culturally competent care, | ||||||
| 15 | supporting research to better understand HS pathogenesis, | ||||||
| 16 | treatment efficacy, and long-term outcomes, accelerating the | ||||||
| 17 | development of effective treatments and expanding access to | ||||||
| 18 | existing therapies for HS, and advancing policies that improve | ||||||
| 19 | access to care and quality of life for people living with HS | ||||||
| 20 | and their caregivers; and be it further | ||||||
| 21 | RESOLVED, That a suitable copy of this resolution be | ||||||
| 22 | delivered to the Illinois Department of Public Health. | ||||||
