Bill Text: IL HB5295 | 2025-2026 | 104th General Assembly | Enrolled
Bill Title: Reinserts the provisions of the engrossed bill with the following changes. Makes changes to definitions of the terms "abortion-related health care services", "electronic health network", and "patient". Adds definitions of the terms "coded private health care information", "covered entity", and "private health care information". Deletes the definition of "protected health information". Provides that an electronic health network shall prevent the disclosure of a patient's coded private health care information (rather than specified electronic medical information) to a provider, business entity, other electronic health network, or health information exchange located outside this State unless the disclosure is for certain enumerated purposes. Makes changes concerning the prerequisites for disclosure to a covered entity. Makes changes concerning the technological capabilities an electronic health network must develop. Provides that, if the Department of Public Health adopts rules regarding the definition of private health care information, the Department shall consider any necessary exceptions to segregation in the rules it adopts. Specifies that the Act shall not be construed to require health care providers to use electronic health networks. Makes changes in a provision concerning patient directions to share medical information. Makes other changes. Effective July 1, 2027.
Sponsorship: Partisan Bill (Democrat 18)
Status: (Passed) 2026-06-24 - Public Act . . . . . . . . . 104-0471 [HB5295 Detail]
Download: Illinois-2025-HB5295-Enrolled.html
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| 1 | AN ACT concerning health. | ||||||
| 2 | Be it enacted by the People of the State of Illinois, | ||||||
| 3 | represented in the General Assembly: | ||||||
| 4 | Section 1. Short title. This Act may be cited as the | ||||||
| 5 | Reproductive Health Records Privacy Act. | ||||||
| 6 | Section 5. Definitions. As used in this Act: | ||||||
| 7 | "Abortion" has the meaning given to that term in Section | ||||||
| 8 | 1-10 of the Reproductive Health Act. | ||||||
| 9 | "Abortion-related health care services" means all | ||||||
| 10 | supplies, care, and services of a medical, behavioral health, | ||||||
| 11 | mental health, physical health, surgical, psychiatric, | ||||||
| 12 | therapeutic, diagnostic, preventive, rehabilitative, or | ||||||
| 13 | supportive nature relating to an abortion. | ||||||
| 14 | "Coded private health care information" means the health | ||||||
| 15 | information contained in an electronic health network, related | ||||||
| 16 | to the following, unless expanded, narrowed, or otherwise | ||||||
| 17 | changed by rule adopted by the Department of Public Health | ||||||
| 18 | under this Act: | ||||||
| 19 | (1) codes for designating diagnoses, treatments, | ||||||
| 20 | outcomes, or other health care information, including, | ||||||
| 21 | without limitation, Current Procedural Terminology (CPT) | ||||||
| 22 | codes, Healthcare Common Procedure Coding System (HCPCS) | ||||||
| 23 | codes, or National Drug Codes, associated with any of the | ||||||
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| 1 | following: | ||||||
| 2 | (A) complications following induced termination of | ||||||
| 3 | pregnancy; | ||||||
| 4 | (B) failed attempted termination of pregnancy; | ||||||
| 5 | (C) continuing pregnancy after selective reduction | ||||||
| 6 | of one fetus or more; | ||||||
| 7 | (D) encounter for elective termination of | ||||||
| 8 | pregnancy; | ||||||
| 9 | (E) induced abortion; | ||||||
| 10 | (F) multifetal pregnancy reductions; | ||||||
| 11 | (G) mifepristone; or | ||||||
| 12 | (H) medically induced abortion by oral ingestion | ||||||
| 13 | of medication, including all associated services and | ||||||
| 14 | supplies except drugs or medications; and | ||||||
| 15 | (2) medical diagnosis codes associated with gender | ||||||
| 16 | dysphoria. | ||||||
| 17 | "Covered entity" has the meaning given to that term in the | ||||||
| 18 | Health Insurance Portability and Accountability Act of 1996 | ||||||
| 19 | (HIPAA), as specified in 45 CFR 160.103. | ||||||
| 20 | "Electronic health network" means an entity, other than a | ||||||
| 21 | health care provider or a hospital licensed under the Illinois | ||||||
| 22 | Hospital Licensing Act or a hospital licensed under the | ||||||
| 23 | University of Illinois Hospital Act, that is responsible for | ||||||
| 24 | facilitating the exchange of health information and is either: | ||||||
| 25 | (1) an entity that provides software or services that | ||||||
| 26 | allow health care providers to maintain health care | ||||||
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| 1 | information electronically and make that information | ||||||
| 2 | available to other authorized persons, providers, or | ||||||
| 3 | entities; or | ||||||
| 4 | (2) a health information technology developer of | ||||||
| 5 | certified health information technology that develops or | ||||||
| 6 | offers health information technology, as that term is | ||||||
| 7 | defined in 42 U.S.C. 300jj(5). | ||||||
| 8 | "Health care provider" has the meaning given to that term | ||||||
| 9 | in the Health Insurance Portability and Accountability Act of | ||||||
| 10 | 1996 (HIPAA), as specified in 45 CFR 160.103. | ||||||
| 11 | "Patient" means any person who has received or is | ||||||
| 12 | receiving health care services in this State from an | ||||||
| 13 | individual or institution licensed to provide health care | ||||||
| 14 | services in this State. | ||||||
| 15 | "Private health care information" means the health | ||||||
| 16 | information contained in an electronic health network related | ||||||
| 17 | to the following, unless expanded, narrowed, or otherwise | ||||||
| 18 | changed by rule adopted by the Department of Public Health | ||||||
| 19 | under this Act: | ||||||
| 20 | (1) coded private health care information; and | ||||||
| 21 | (2) abortion or abortion-related health care services. | ||||||
| 22 | Section 10. Segregation of information; technological | ||||||
| 23 | capabilities. | ||||||
| 24 | (a) An electronic health network shall prevent the | ||||||
| 25 | disclosure of a patient's coded private health care | ||||||
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| 1 | information to a provider, business entity, other electronic | ||||||
| 2 | health network, or health information exchange located outside | ||||||
| 3 | this State unless the disclosure is: | ||||||
| 4 | (1) for technical support purposes; | ||||||
| 5 | (2) for quality assurance purposes; | ||||||
| 6 | (3) for payment or health care operations, as defined | ||||||
| 7 | by the Health Insurance Portability and Accountability Act | ||||||
| 8 | of 1996 (HIPAA); or | ||||||
| 9 | (4) to a specific covered entity with the consent of: | ||||||
| 10 | (A) the patient, for health care services for | ||||||
| 11 | which the patient can provide consent under the laws | ||||||
| 12 | of this State; or | ||||||
| 13 | (B) the patient's parent, guardian, health care | ||||||
| 14 | surrogate decision maker, or power of attorney for | ||||||
| 15 | health care for health care services for which the | ||||||
| 16 | parent, guardian, health care surrogate decision | ||||||
| 17 | maker, or power of attorney for health care can | ||||||
| 18 | provide consent under the laws of this State. | ||||||
| 19 | (b) An electronic health network shall develop and enable | ||||||
| 20 | the technological capabilities to, with respect to | ||||||
| 21 | out-of-state disclosures: | ||||||
| 22 | (1) parse coded private health care information and | ||||||
| 23 | convey all other information in a patient's electronic | ||||||
| 24 | health record that is not prohibited by law; | ||||||
| 25 | (2) allow a health care provider to manually segregate | ||||||
| 26 | or otherwise prevent the sharing or disclosure of private | ||||||
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| 1 | health care information from a patient's electronic health | ||||||
| 2 | record; | ||||||
| 3 | (3) allow a patient to request and consent to the | ||||||
| 4 | exchange of private health care information to a specific | ||||||
| 5 | covered entity; and | ||||||
| 6 | (4) allow a patient to opt out of segregating private | ||||||
| 7 | health care information in a patient's electronic health | ||||||
| 8 | record. | ||||||
| 9 | (c) An electronic health network shall not notify a health | ||||||
| 10 | care provider, business entity, other electronic health | ||||||
| 11 | network, or health information exchange located outside this | ||||||
| 12 | State that private health care information may have been | ||||||
| 13 | segregated from a patient's electronic health record. | ||||||
| 14 | (d) The Department of Public Health may adopt rules as | ||||||
| 15 | necessary to administer and implement this Act. If the | ||||||
| 16 | Department adopts rules regarding the definition of private | ||||||
| 17 | health care information, the Department shall consider any | ||||||
| 18 | necessary exceptions to segregation and adopt rules that set | ||||||
| 19 | forth those exceptions as determined. | ||||||
| 20 | (e) Nothing in this Act shall be interpreted to undermine | ||||||
| 21 | the existing protections against disclosure of confidential | ||||||
| 22 | health information or lawful health care activity, including, | ||||||
| 23 | but not limited to, pursuant to the Lawful Health Care | ||||||
| 24 | Activity Act and the Personal Information Protection Act. | ||||||
| 25 | (f) Nothing in this Act shall be interpreted to require | ||||||
| 26 | health care providers to use electronic health networks. | ||||||
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| 1 | Section 15. Patient direction to share health information. | ||||||
| 2 | (a) A patient may direct private health care information | ||||||
| 3 | to be shared, in whole or in part, with a specific covered | ||||||
| 4 | entity located outside the State through an electronic health | ||||||
| 5 | network in accordance with 45 CFR 171.202(b)(1). A patient may | ||||||
| 6 | also revoke a prior decision to direct private health care | ||||||
| 7 | information to be shared or not to be shared. | ||||||
| 8 | (b) An electronic health network shall make available to | ||||||
| 9 | covered entities meaningful information regarding a patient's | ||||||
| 10 | right to direct the electronic health network to share the | ||||||
| 11 | patient's private health care information. | ||||||
| 12 | (c) The Department of Public Health may publish, on its | ||||||
| 13 | website, information about this Act in English, Spanish, and | ||||||
| 14 | any other languages the Department deems necessary. | ||||||
| 15 | Section 20. Violations. Any person aggrieved by a | ||||||
| 16 | violation of this Act by an electronic health network may | ||||||
| 17 | bring an action against that electronic health network. Actual | ||||||
| 18 | damages, injunctive relief, and reasonable attorney's fees and | ||||||
| 19 | costs, as well as any other relief which the court deems | ||||||
| 20 | proper, may be awarded to a successful plaintiff in any action | ||||||
| 21 | under this Act. Nothing contained in this Act shall be deemed | ||||||
| 22 | to authorize the bringing of any action against any health | ||||||
| 23 | care provider. | ||||||
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| 1 | Section 97. Severability. The provisions of this Act are | ||||||
| 2 | severable under Section 1.31 of the Statute on Statutes. | ||||||
| 3 | Section 99. Effective date. This Act takes effect July 1, | ||||||
| 4 | 2027. | ||||||
