Bill Text: IL HB2535 | 2023-2024 | 103rd General Assembly | Introduced

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Bill Title: Creates the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act. Requires the Director of Aging, in consultation with the heads of other appropriate State agencies, to develop jointly with the Family Caregiving Advisory Council (Advisory Council) a Family Caregiving Strategy (Strategy). Requires the Director to submit the Strategy to the Senate Subcommittee on Long-Term Care and Aging and to the House Workforce Development Subcommittee, and to other State agencies responsible for carrying out family caregiver programs, and to make the Strategy publicly available on the Department on Aging's website. Provides that the Strategy shall identify recommended actions that State agencies, units of local government, communities, health care providers, long-term services and supports providers, and others are taking, or may take, to recognize and support family caregivers in a manner that reflects their diverse needs, including with respect to promoting greater adoption of person-centered and family-centered care in all health and long-term services and supports settings. Requires the Director of Aging to: (1) oversee the collection and public dissemination of certain information submitted by the Advisory Council in its initial report concerning the development, maintenance, and updating of the Strategy; (2) oversee the coordination and assessment of existing State programs and activities to recognize and support family caregivers while ensuring maximum effectiveness and avoiding unnecessary duplication; (3) develop, publish, and submit to specified committees and other State agencies, an initial Strategy that incorporates the items addressed in the Advisory Council's initial report; and other duties. Requires the Director to convene the Advisory Council to advise and provide recommendations to the Director on recognizing and supporting family caregivers. Contains provisions concerning the Advisory Council's membership, meetings, and annual reports. Provides that no additional funds are authorized to be appropriated to carry out the Act. Provides that the authority and obligations established under the Act shall terminate on the date that is 3 years after the effective date of the Act. Provides that the Act is repealed 4 years after its effective date.

Spectrum: Partisan Bill (Democrat 3-0)

Status: (Introduced) 2024-04-19 - House Floor Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee [HB2535 Detail]

Download: Illinois-2023-HB2535-Introduced.html

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103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 HB2535 Introduced , by Rep. Camille Y. Lilly SYNOPSIS AS INTRODUCED:
New Act
Creates the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act. Requires the Director of Aging, in consultation with the heads of other appropriate State agencies, to develop jointly with the Family Caregiving Advisory Council (Advisory Council) a Family Caregiving Strategy (Strategy). Requires the Director to submit the Strategy to the Senate Subcommittee on Long-Term Care and Aging and to the House Workforce Development Subcommittee, and to other State agencies responsible for carrying out family caregiver programs, and to make the Strategy publicly available on the Department on Aging's website. Provides that the Strategy shall identify recommended actions that State agencies, units of local government, communities, health care providers, long-term services and supports providers, and others are taking, or may take, to recognize and support family caregivers in a manner that reflects their diverse needs, including with respect to promoting greater adoption of person-centered and family-centered care in all health and long-term services and supports settings. Requires the Director of Aging to: (1) oversee the collection and public dissemination of certain information submitted by the Advisory Council in its initial report concerning the development, maintenance, and updating of the Strategy; (2) oversee the coordination and assessment of existing State programs and activities to recognize and support family caregivers while ensuring maximum effectiveness and avoiding unnecessary duplication; (3) develop, publish, and submit to specified committees and other State agencies, an initial Strategy that incorporates the items addressed in the Advisory Council's initial report; and other duties. Requires the Director to convene the Advisory Council to advise and provide recommendations to the Director on recognizing and supporting family caregivers. Contains provisions concerning the Advisory Council's membership, meetings, and annual reports. Provides that no additional funds are authorized to be appropriated to carry out the Act. Provides that the authority and obligations established under the Act shall terminate on the date that is 3 years after the effective date of the Act. Provides that the Act is repealed 4 years after its effective date.
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A BILL FOR
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AN ACT concerning aging.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
Section 1. Short title. This Act may be cited as the
Recognize, Assist, Include, Support, and Engage (RAISE) Family
Caregivers Act.
Section 5. Definitions. As used in this Act:
(1) "Advisory Council" means the Family Caregiving
Advisory Council.
(2) "Family caregiver" means an adult family member or
other individual who has a significant relationship with, and
who provides a broad range of assistance to, an individual
with a chronic or other health condition, disability, or
functional limitation.
(3) "Director" means the Director of Aging.
(4) "Strategy" means the Family Caregiving Strategy.
Section 10. Family Caregiving Strategy.
(a) In general. The Director, in consultation with the
heads of other appropriate State agencies, shall develop
jointly with the Advisory Council and submit to the Senate
Subcommittee on Long-Term Care and Aging and to the House
Workforce Development Subcommittee, and to any other State

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agencies responsible for carrying out family caregiver
programs, and make publicly available on the website of the
Department on Aging, a Family Caregiving Strategy.
(b) Contents. The Strategy shall identify recommended
actions that State agencies, units of local government,
communities, health care providers, long-term services and
supports providers, and others are taking, or may take, to
recognize and support family caregivers in a manner that
reflects their diverse needs, including with respect to the
following:
(1) Promoting greater adoption of person-centered and
family-centered care in all health and long-term services
and supports settings, with the person receiving services
and supports and the family caregiver (as appropriate) at
the center of care teams.
(2) Assessment and service planning (including care
transitions and coordination) involving family caregivers
and care recipients.
(3) Information, education and training supports,
referral, and care coordination, including with respect to
hospice care, palliative care, and advance planning
services.
(4) Respite options.
(5) Financial security and workplace issues.
(6) Delivering services based on the performance,
mission, and purpose of a program while eliminating

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redundancies.
(c) Duties of the Director. The Director, in carrying out
subsection (a), shall oversee the following:
(1) Collecting and making publicly available
information submitted by the Advisory Council under
subsection (d) of Section 15 to the Senate Subcommittee on
Long-Term Care and Aging and to the House Workforce
Development Subcommittee, including evidence-based or
promising practices and innovative models (both domestic
and foreign) regarding the provision of care by family
caregivers or support for family caregivers.
(2) Coordinating and assessing existing State programs
and activities to recognize and support family caregivers
while ensuring maximum effectiveness and avoiding
unnecessary duplication.
(3) Providing technical assistance, as appropriate,
such as disseminating identified best practices and
information sharing based on reports provided under
subsection (d) of Section 15, to State or local efforts to
support family caregivers.
(d) Initial strategy; updates. The Director shall:
(1) not later than 18 months after the effective date
of this Act, develop, publish, and submit to the Senate
Subcommittee on Long-Term Care and Aging and to the House
Workforce Development Subcommittee, an initial Strategy
incorporating the items addressed in the Advisory

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Council's initial report under subsection (d) of Section
15 and other relevant information, including best
practices, for recognizing and supporting family
caregivers; and
(2) biennially update, republish, and submit to the
Senate Subcommittee on Long-Term Care and Aging and to the
House Workforce Development Subcommittee the Strategy,
taking into account the most recent annual report
submitted under paragraph (1) of subsection (d) of Section
15:
(A) to reflect new developments, challenges,
opportunities, and solutions; and
(B) to review progress based on recommendations
for recognizing and supporting family caregivers in
the Strategy and, based on the results of such review,
recommend priority actions for improving the
implementation of such recommendations, as
appropriate.
(e) Process for public input. The Director shall establish
a process for public input to inform the development of, and
updates to, the Strategy, including a process for the public
to submit recommendations to the Advisory Council and an
opportunity for public comment on the proposed Strategy.
(f) No preemption. Nothing in this Act preempts any
authority of a unit of local government to recognize or
support family caregivers.

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(g) Rule of construction. Nothing in this Act shall be
construed to permit the Director (through rule, guidance,
grant criteria, or otherwise) to:
(1) mandate, direct, or control the allocation of
State or local resources;
(2) mandate the use of any of the best practices
identified in the reports required under this Act; or
(3) otherwise expand the authority of the Director
beyond that expressly provided to the Director in this
Act.
Section 15. Family Caregiving Advisory Council.
(a) Convening. The Director shall convene a Family
Caregiving Advisory Council to advise and provide
recommendations, including identified best practices, to the
Director on recognizing and supporting family caregivers.
(b) Membership.
(1) In general. The members of the Advisory Council
shall consist of:
(A) the appointed members under paragraph (2); and
(B) the State members under paragraph (3).
(2) Appointed members. In addition to the State
members under paragraph (3), the Director shall appoint
not more than 15 voting members of the Advisory Council
who are not representatives of State departments or
agencies and who shall include at least one representative

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of each of the following:
(A) Family caregivers.
(B) Older adults with long-term services and
supports needs.
(C) Individuals with disabilities.
(D) Health care and social service providers.
(E) Long-term services and supports providers.
(F) Employers.
(G) Paraprofessional workers.
(H) State and local officials.
(I) Accreditation bodies.
(J) Veterans.
(K) As appropriate, other experts and advocacy
organizations engaged in family caregiving.
(3) State members. The State members of the Advisory
Council, who shall be nonvoting members, shall consist of
the following:
(A) The Director of Healthcare and Family Services
or his or her designee.
(B) The Secretary of Human Services or his or her
designee who has experience in both aging and
disability.
(C) The Director of Veterans' Affairs or his or
her designee.
(D) The heads of other State departments or
agencies (or their designees), including relevant

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departments or agencies that oversee labor and
workforce, economic, government financial policies,
community service, and other impacted populations, as
appointed by the Director or the Chair of the Advisory
Council.
(4) Diverse representation. The Director shall ensure
that the membership of the Advisory Council reflects the
diversity of family caregivers and individuals receiving
services and supports.
(c) Meetings. The Advisory Council shall meet quarterly
during the one-year period beginning on the effective date of
this Act and at least 3 times during each year thereafter.
Meetings of the Advisory Council shall be open to the public.
(d) Advisory Council annual reports.
(1) In general. Not later than 12 months after the
effective date of this Act, and annually thereafter, the
Advisory Council shall submit to the Senate Subcommittee
on Long-Term Care and Aging and to the House Workforce
Development Subcommittee, and make publicly available on
the website of the Department on Aging, a report
concerning the development, maintenance, and updating of
the Strategy, including a description of the outcomes of
the recommendations and any priorities included in the
initial report in accordance with paragraph (2), as
appropriate.
(2) Initial report. The Advisory Council's initial

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report under paragraph (1) shall include:
(A) an inventory and assessment of all
State-funded efforts to recognize and support family
caregivers and the outcomes of such efforts, including
analyses of the extent to which State-funded efforts
are reaching family caregivers and gaps in such
efforts;
(B) recommendations:
(i) to improve and better coordinate State
programs and activities to recognize and support
family caregivers, as well as opportunities to
improve the coordination of such State programs
and activities with programs administered by units
of local government; and
(ii) to effectively deliver services based on
the performance, mission, and purpose of a program
while eliminating redundancies, avoiding
unnecessary duplication and overlap, and ensuring
the needs of family caregivers are met;
(C) the identification of challenges faced by
family caregivers, including financial, health, and
other challenges, and existing approaches to address
such challenges; and
(D) an evaluation of how family caregiving impacts
the Medicare program, the Medical Assistance program
under Article V of the Illinois Public Aid Code, and

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other State programs.
Section 20. Funding. No additional funds are authorized to
be appropriated to carry out this Act. This Act shall be
carried out using funds otherwise authorized.
Section 25. Termination. The authority and obligations
established by this Act shall terminate on the date that is 3
years after the effective date of this Act.
Section 30. Repealer. This Act is repealed 4 years after
the effective date of this Act.