Bill Amendment: IL HB2535 | 2023-2024 | 103rd General Assembly

NOTE: For additional amemendments please see the Bill Drafting List

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Bill Title: RAISE FAMILY CAREGIVERS ACT

Status: 2025-01-07 - Session Sine Die [HB2535 Detail]

Download: Illinois-2023-HB2535-House_Amendment_002.html

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Rep. Camille Y. Lilly

Filed: 4/18/2024

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AMENDMENT TO HOUSE BILL 2535
AMENDMENT NO. ______. Amend House Bill 2535 by replacing
everything after the enacting clause with the following:
"Section 1. Short title. This Act may be cited as the
Recognize, Assist, Include, Support, and Engage (RAISE) Family
Caregivers Act.
Section 5. Definitions. As used in this Act:
(1) "Advisory Council" means the Family Caregiving
Advisory Council.
(2) "Family caregiver" means an adult family member or
other individual who has a significant relationship with, and
who provides a broad range of assistance to, an individual
with a chronic or other health condition, disability, or
functional limitation.
(3) "Director" means the Director of Aging.
(4) "Strategy" means the Family Caregiving Strategy.

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Section 10. Family Caregiving Strategy.
(a) In general. The Director, in consultation with the
heads of other appropriate State agencies, shall develop
jointly with the Advisory Council and other State agencies
responsible for carrying out family caregiver programs, and
make publicly available on the website of the Department on
Aging, a Family Caregiving Strategy.
(b) Contents. The Strategy shall identify recommended
actions that State agencies, units of local government,
communities, health care providers, long-term services and
supports providers, and others are taking, or may take, to
recognize and support family caregivers in a manner that
reflects their diverse needs, including with respect to the
following:
(1) Promoting greater adoption of person-centered and
family-centered care in all health and long-term services
and supports settings, with the person receiving services
and supports and the family caregiver (as appropriate) at
the center of care teams.
(2) Assessment and service planning (including care
transitions and coordination) involving family caregivers
and care recipients.
(3) Information, education and training supports,
referral, and care coordination, including with respect to
hospice care, palliative care, and advance planning

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services.
(4) Respite options.
(5) Financial security and workplace issues.
(6) Delivering services based on the performance,
mission, and purpose of a program while eliminating
redundancies.
(c) Duties of the Director. The Director, in carrying out
subsection (a), shall oversee the following:
(1) Collecting and making publicly available
information submitted by the Advisory Council under
subsection (d) of Section 15 to the Governor and the
General Assembly, including evidence-based or promising
practices and innovative models (both domestic and
foreign) regarding the provision of care by family
caregivers or support for family caregivers.
(2) Coordinating and assessing existing State programs
and activities to recognize and support family caregivers
while ensuring maximum effectiveness and avoiding
unnecessary duplication.
(3) Providing technical assistance, as appropriate,
such as disseminating identified best practices and
information sharing based on reports provided under
subsection (d) of Section 15, to State or local efforts to
support family caregivers.
(d) Initial strategy; updates. The Director shall:
(1) not later than 18 months after the effective date

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of this Act, develop, publish, and submit to the Governor
and the General Assembly, an initial Strategy
incorporating the items addressed in the Advisory
Council's initial report under subsection (d) of Section
15 and other relevant information, including best
practices, for recognizing and supporting family
caregivers; and
(2) biennially update, republish, and submit to the
Governor and the General Assembly, taking into account the
most recent annual report submitted under paragraph (1) of
subsection (d) of Section 15:
(A) to reflect new developments, challenges,
opportunities, and solutions; and
(B) to review progress based on recommendations
for recognizing and supporting family caregivers in
the Strategy and, based on the results of such review,
recommend priority actions for improving the
implementation of such recommendations, as
appropriate.
(e) Process for public input. The Director shall establish
a process for public input to inform the development of, and
updates to, the Strategy, including a process for the public
to submit recommendations to the Advisory Council and an
opportunity for public comment on the proposed Strategy.
Section 15. Family Caregiving Advisory Council.

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(a) Convening. The Director shall convene a Family
Caregiving Advisory Council to advise and provide
recommendations, including identified best practices, to the
Director on recognizing and supporting family caregivers.
(b) Membership.
(1) In general. The members of the Advisory Council
shall consist of:
(A) the appointed members under paragraph (2); and
(B) the State members under paragraph (3).
(2) Appointed members. In addition to the State
members under paragraph (3), the Director shall appoint
not more than 20 voting members of the Advisory Council
who are not representatives of State departments or
agencies and who shall include at least one representative
of each of the following:
(A) Family caregivers.
(B) Older adults with needs for long-term services
and supports.
(C) Individuals with disabilities.
(D) Health care and social service providers.
(E) Long-term services and supports providers.
(F) Employers.
(G) Paraprofessional workers.
(H) State and local officials.
(I) Accreditation bodies.
(J) Veterans.

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(K) Area Agencies on Aging.
(L) Non-profit organizations representing adults
50 years of age and older.
(M) Care Coordination Units.
(N) State Long-Term Care Ombudsman.
(O) As appropriate, other experts and advocacy
organizations engaged in family caregiving.
(3) State members. The State members of the Advisory
Council, who shall be nonvoting members, shall consist of
the following:
(A) The Director of Healthcare and Family Services
or his or her designee.
(B) The Secretary of Human Services or his or her
designee who has experience in both aging and
disability.
(C) The Director of Veterans' Affairs or his or
her designee.
(D) The heads of other State departments or
agencies (or their designees), including relevant
departments or agencies that oversee labor and
workforce, economic, government financial policies,
community service, and other impacted populations, as
appointed by the Director.
(4) Diverse representation. The Director shall ensure
that the membership of the Advisory Council reflects the
diversity of family caregivers and individuals receiving

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services and supports.
(c) Meetings. The Advisory Council shall meet quarterly in
person or virtually during the one-year period beginning on
the effective date of this Act and at least 3 times during each
year thereafter. Meetings of the Advisory Council shall be
open to the public.
(d) Advisory Council annual reports.
(1) In general. Not later than 12 months after the
effective date of this Act, and annually thereafter, the
Advisory Council shall submit to the Governor and the
General Assembly, and make publicly available on the
website of the Department on Aging, a report concerning
the development, maintenance, and updating of the
Strategy, including a description of the outcomes of the
recommendations and any priorities included in the initial
report in accordance with paragraph (2), as appropriate.
(2) Initial report. The Advisory Council's initial
report under paragraph (1) shall include:
(A) an inventory and assessment of all
State-funded efforts to recognize and support family
caregivers and the outcomes of such efforts, including
analyses of the extent to which State-funded efforts
are reaching family caregivers and gaps in such
efforts;
(B) recommendations:
(i) to improve and better coordinate State

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programs and activities to recognize and support
family caregivers, as well as opportunities to
improve the coordination of such State programs
and activities with programs administered by units
of local government; and
(ii) to effectively deliver services based on
the performance, mission, and purpose of a program
while eliminating redundancies, avoiding
unnecessary duplication and overlap, and ensuring
the needs of family caregivers are met;
(C) the identification of challenges faced by
family caregivers, including financial, health, and
other challenges, and existing approaches to address
such challenges;
(D) an evaluation of how family caregiving impacts
the Medicare program, the Medical Assistance program
under Article V of the Illinois Public Aid Code, and
other State programs.
(e) All requirements of this Act shall be met as part of
the Department on Aging's overall strategic multi-agency State
plan, including reporting requirements.
Section 20. Funding. No additional funds are authorized to
be appropriated to carry out this Act. This Act shall be
carried out using funds otherwise authorized.

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Section 25. Termination. The authority and obligations
established by this Act shall terminate on the date that is 3
years after the effective date of this Act.